Showing posts with label Gratitude. Show all posts
Showing posts with label Gratitude. Show all posts

Monday, April 6, 2015

a repost for myself, alone: "your kin have bought the rest by their suffering the loss forever"

a repost for myself, as i keep forgetting who i am, and 
my strengths and purposes. 




From -- Pour un tombeau d'Anatole by Stéphane Mallarmé

RÉSUMÉ :




Le 6 octobre 1879 mourait de maladie, à l'âge de huit ans, le petit Anatole,fils tendrement aimé de Stéphane Mallarmé. Les deux cents feuillets présentés ici par Jean-Pierre Richard furent rédigés par le poète à la suite de cet événement, et pour tenter d'en amortir en lui le choc. Ceci déjà annonce leur valeur : elle tient à leur extraordinaire poids humain ; aucun écrit de Mallarmé ne possède cette qualité brûlante, immédiate, cette puissance crue d'émotion. Mais le pathétique s'en trouve aussi médité et dominé, repris par un esprit souverain, l'esprit d'un grand poète qui met en oeuvre toutes ses ressources créatrices afin de dépasser ce fait indépassable et insupportable : la mort d'un être cher. Comme tant de grands poèmes mallarméens, ces notes décrivent un combat, la "lutte d'un génie et de la mort", lutte à l'issue de laquelle la mort eût été vaincue par le génie. Anatole eût finalement été sauvé par un poème dont ces pages tracent le plan et constituent l'ébauche. Si Mallarmé n'a pu finalement écrire ce poème, il est déjà très important pour nous qu'il ait pu le rêver : car l'on voit ici s'annoncer, ou se prolonger, maint thème développé dans l'oeuvre publiée. Une longue introduction redonne à cette méditation funèbre toute sa cohérence ; elle montre la profondeur, la rigueur, le caractère très purement mallarméens.



Retired Educator here. This is the esquisse, the design, the carefully laid out spaces of an architecture in decline that never knew the light of day and whose replication is full of violence and 'translationary' rape. I love the Paul Auster translation but haven't the inclination to type out his doings of the first ten poem-fragments. Here, however, is his translation of the first section:

child sprung from
the two of us -- showing
us our ideal, the way
-- ours! father
and mother who
sadly existing
survive him as
the two extremes --
badly coupled in him
and sundered
-- from whence his death -- o -
bliterating this little child "self"


There is an inside joke among language teachers and that is to say, liltingly, "Native speakers disagree..." But I hold translations and translators to a higher standard than one of simply being able to correctly channel word and sentiment. "Translators disagree..." is not a problem to be left alone -- rather it is like solving a crime: The problem must be worked.

Or maybe it is more the artifice in play, like that of building replicas of gothic ruins. There is, you know, a robust aesthetic of ersatz ruins, despite the sniff:sniff of those who claim it all romantic kitsch. For the literal minded, it is more a question of restoration.

We work it, we work it, we end up, still, with over 200 ruinous fragments -- la genèse d'un poème -- about the death of his son. Never does the original take completed form; Never could the translation be more than ego-driven lattice work that might bolster the crumbling brick and stone of the original.

Remember always -- and this is, I think, specific to all of Mallarmé -- that in his originality, even his [soi-disant] completed works, there is a high concentration of negative space: the "irrecoverable state of devastation and destruction" that defines a ruin, n.

Were I to work it instead of admiring the sweat of someone else's brow, I would not be snobbish envers literary history -- This work, in particular, demands it. But how do you work and knead anything beyond "[l]e 6 octobre 1879 mourait de maladie, à l'âge de huit ans, le petit Anatole, fils tendrement aimé de Stéphane Mallarmé"? Where is the literary history in that, beyond the date, beyond the age, beyong the provenance?

This is what William Marsh wants us to know -- that Walter Benjamin informs his translation and that he has been respectful of spatial and architectural elements in Mallarmé through some very successful homophonic and anagrammic schemes. There are dangers in citing the authority of Benjamin here, as I don't see the role of the translator of Pour un tombeau d'Anatole as primary authorship, no matter how solemn the task. At the same time, there is no room for error. On this one, native speakers in no way disagree. The less we can posit through the work of literary history and analysis of style, the more dangerous and fictitious our bold restatements become.

Denials of death and negations of history, the fake piles and slivers of disrepair of plaster and paint, trompe-l'oeil trumped, while what is real and undone, or real and never finished, stands as a testament to death, and a validation of certain history: ruins of roman kitchens, the arches and apses of abbeys and cloisters, the armaments of towers, turrets and battlements ("oh, my!")

The ruin can be exploited as a point of meditation -- and as a place of mediation between those things we all are caught in -- life after the other's death, the unimaginable death of a child. Mallarmé is cobbling together all that he can of the experience, saving in his way his son's life, literally making, and carefully crafting, the artifice that is the tomb for Anatole. This ruin of a tomb wants to make the reader squirm, makes the reader question what is inside verus outside, what is private, what is public, what is visible, what is hidden, and what may well be absent, gone forever.

So, yeah, fearless translator, set yourself up as intrepid author! Just kidding.
It's late and we're all tired.

William Marsh explicates his process:

Drawing impetus from Walter Benjamin's claim in "The Task of the Translator" that "a translation issues from the original--not so much from its life as from its afterlife," the following poems attempt to define the "afterlife" of Mallarmé's Anatole while carefully acknowledging both Auster's work and the notion (again Benjamin) that "a translation, instead of resembling the meaning of the original, must lovingly and in detail incorporate the original's mode of signification, thus making both the original and the translation recognizable as fragments of a greater language." With the intention of honoring both the sense and form of Mallarmé's poem (its mode of signification), these new renderings make use of both homophonic and anagrammic translation tools in constructing the English versions (or harmonies) of the original fragments. Employing a set of devices including anagram, same-sound correlations, exact or near-exact cognates, as well as common etymologies (near-matches of meaning), the poems excerpted here try to rebuild the Mallarmé texts in such a way that both the syntactical variety and the physical shape (letters, words, lines) of the originals are reflected as well in the English.



[sections 1-10] [fragments]




1

enfant sorti de
nous deux--nous
montrant notre
idéal, le chemin
--à nous! père
et mère qui lui
en triste existence
survivons comme
les deux extrêmes--
mal associés en lui
et qui se sont séparés
--d'ou sa mort--annu-
lant ce petit <> d'enfant




an infant dies to
us both--de
monstrates our
ideal, child-man
--anew! father
& mother quietly
entrust existence
survive a son in
the two extremes--
malassociating him
acquiescing separate
--death is more--nul
ling this tiny "self" denied



2

(3
meilleures
comme s'il
était encore--
quelqu'ils fussent,
des qualificatifs
digne--etc.
les heures où
vous fûtes et ne
fûtes pas



(3
better is
he becomes --
that which was,
engraved qualities
dignity--etc.
the hours you
fought but never
fought past



3

malade au
printemps
mort en automne
--c'est le soleil
-----
la vague
idée la toux
2



ailing in
springtime
mourned in autumn
--celestial soul
----
the wave -
idea attacks
2


4

fils
résorbé
pas parti
c'est lui
--ou son frère
moi
je le lui
ai dit
deux frères
---



if he's
reabsorbed
is a-part
it's he
--or his brother
me
shall i
say it
two brothers
---


5

refoulée restée
en flanc--
sur de moi
siècle
ne s'écoulera pas
juste pour
m'instruire




repelled - - resting
in womb--
over me
century
won't roll past
just for
my instruction



6

pas connu
mère, et fils ne
m'a pas connu! --
--image de moi
autre que moi
emporté en
mort!




unknown
mother, a face un
recognized! --
--image of me
other than me
transported in
death!



7

qui s'est réfugié
ton futur en moi
devient ma
pureté a travers vie,
à laquelle je ne
toucherai pas --




what's in refuge
your future in me
become my
purity through life,
which i shall not
touch upon --



8

il est époque de
une
l'Existence où nous
nous retrouverons,
sinon un lieu--
--et si vous
en doutez
le monde en
sera témoin,
en supposant que
je vive assez vieux
_______




it's the epoch of
one
Existence in us
in us retrieved,
is not in lieu--
--& if you
doubt these
mundane
testimonies -
let's suppose that
i live long enough
_______



9

préf.

père qui
né en temps
mauvais avait
préparé à fils--
une tâche sublime

--
< remplir--d'enfant
la sienne--la douleur le désire
de se sacrifier à qui n'est
plus l'emporteront-ils sur
vigueur (homme qui'il n'a pas été)
et fera-t-il la tâche de l'enfant



pref.

father who
eve'n in times
gone bad had
prepared a son--
a touch sublime

--
"the double re
plenished--the child's
his own--the dull hour the desir
ed sacrifice to one who's no
more will triumph over
vigor (man he wasn't to be)
& through it all the task of infancy



10

le but suprême
n'eût été
que partir pur
de la vie
tu l'as accompli
d'avance
en souffrant
assez--doux
enfant pour que
Cela te soit compté
pour ta vie perdue--les tiens
ont acheté le reste par leur
souffrance de ne plus t'avoir




the highest aim
nothing but
to part pure
from life
you accomplish it
in advance
in suffering
all this--gentle
infant so that
This will be counted
part of your due--your kin
have bought the rest by their
suffering the loss forever








Bard College's literary journal Conjunctions publishes innovative fiction, poetry, criticism, drama, art and interviews by both emerging and established writers.

The starting point for the [preceding] poems lies in Paul Auster's excellent 1983 translation of
Mallarmé's long poem, Pour un tombeau d'Anatole, released by North Point Press under the title A Tomb for Anatole.

Friday, January 9, 2015

One "Thank You" That Is Meaningful Because It Is REAL

I give many small amounts to "progressive" political, social, and [shocker-of-shockers!] religious organizations, even some that are not tax-deductible (who cares? i am dirt poor in the soil surrounding -- and sometimes within -- Marlinspike Hall, a manor to the west of the Lone Alp smack dab in the middle of Tête de Hergé!)

I consider the american academy of poets a different thing altogether.  A port in the storm.  History. Infuriating. Exhilarating.  A holy book.  Often, a warning we should heed.  Delightful guffaws and harrumphs.  And since I am an educator, add "educating." 

The "thank you" notes from those progressive [entre guillemets] organizations?  They always include two, even three, additional dumbed-down pitches for a further donation, unable to imagine how poor I really am.

The Academy of American Poets?  These poetic types?  They reek of sincerity!  And... they delight me with a poem-a-day that inevitably relieves my considerable physical pain by generating a humongous influx of endorphins.

poets-header
poets

Dear Academy Supporter:

I want to thank the many readers like you who supported the Academy of American Poets during our year-end campaign last month. Shortly after 2014 drew to a close, we discovered we raised $42,000—more than matching the $25,000 challenge made by one of our Board members!

We rely on contributions from our members and donors to help showcase poets and champion the art of poetry with our programs, including Poets.org, Poem-a-Day, and the free educational resources we provide for K-12 teachers during National Poetry Month and year-round.

As our Chancellor Alberto Ríos wrote in his poem, “When Giving Is All We Have:”

What you did not have, and I gave you
What I had to give—together, we made

Something greater from the difference.

Together, we are helping to ensure the important place poets and poetry have in our culture.

Here’s to a new and inspiring year!

In gratitude,
Jennifer Benka photosignature
Jennifer Benka,
Executive Director


© 2015 L. Ryan

Wednesday, December 3, 2014

For Baba: Made New

i am brimming with new posts, some very funny, some of scien-tific/istic ilk, some so personal as to succeed as universal.  more than a few are essays that would make montaigne sniff a dusty dead man's egotistical sniff.  so long as he does not sneeze, we're okay.

the post below was originally published on 3 december 2013.

i did not know, on 3 december 2013, that my brother grader boob, now better known as "lumpy," was very ill with cancer.  he had only the soupçon of the beginning of a barely nascent suspicion. he was then suddenly a very grumpy lumpy grader boob, and could not seem to get his bearings, seemed perpetually under that pathetic fallacy of the weather.

he pushed me to reconnect with our stepmother.  this man who now will not connect with anyone! he had that frustratingly perfect impulse -- outward.  i did not remember that he was the impetus, that he was the sweating, grunting worker plying the splintering board that leveraged the boulder... that was me (the boulder, if i lost you).

a gift.

i have two brothers, so similar, so different.  they give gifts like maniacal gift givers, crazy-assed coo-coo givers, scented personal shoppers in the virtual world we now share and the vague shadow of a long gone world. we all meet in the lobby in my dreams -- that dream lobby that morphs into a music room of bean bags and comfy mattresses and vinyl, into softball fields, hot sidewalks, the backseats of cars, tiny basketball courts, much like the end of a concrete driveway crowned with a backboard and a hoop.  always, there is music.  gifts.

there are things i remember clearly.  these things may not be true.

i remember the both of them, evil in their older age. i was in [very baggy] diapers.  you know, i have always been remarkably slim in the hips.  anyway, i am crawling, vaguely bothered by the drag factor of these very baggy diapers. i want it clear that they were not messy diapers, just not well fitted to my slim hips. i fear that soon i will renew the experience this unfortunate fitting difficulty, but we're not there yet, oh no, not just yet. yes, right, so... there i am, in ankara, turkey, exercising my cute little tush off.  i presume i am in a dining room because the trajectory of my efforts seem to end under the carved legs of our famous dining table.  the one i inherited and finally destroyed just before fred and i became squatters here at marlinspike hall.  it had, by then, been painted white and the cushions were of a scary yellow plastic -- that was stepmom baba's treatment, to make it match her "breakfast nook" concept.  that table must have seemed an albatross around her thin neck -- highly stylized, obviously "foreign" and not conducive to her admittedly matchy-matchy decorative ways.

oh, that woman could decorate!

ya, so, my two good-for-nothing siblings are egging me on, making great use of that linguistic "come hither" known as intonation ascendante by my later french linguistic professors.

"c'mon, you droopy-drawered excuse for a baby sister, c'mon!" and so they dangled a cup of something in front of my cherubic visage, luring me closer to the little fort made of table legs.

when i finally made it, drooling as only such a diva can drool, the chant became, "c'mon, take a sniff of this!  you're gonna love it!  c'mon, would we lead you astray, hmm?"  reaching the cup, smiling like the innocent baby i was and always would be, i took a dedicated whiff.

it was ammonia.
my first, but hardly last, loss of brain cells.

okay, so there's that in the negative column for those two.  i could add grader boob/lumpy almost taking my head off with a powerful warm-up swing with a solid wood baseball bat... but that was an accident.  so was the time that one of them (no recollection which of 'em did the deed) threw a dart in my arm.  see, there was a wooden fence.  they were on the "inside" -- picture a poor man's courtyard
-- innocently playing darts.  i was on the "outside," oblivious, and made the turn inward, stepping directly in front of the dart board just as a projectile was released.

big whoop -- a tetanus shot. still!  still!

other than that, it's been nothing but gifts, gifts, gifts -- from the both of them.  in return, i've given them terrible gifts, as in, stuff that i think they should want. lumpy/grader boob has also received more than his share of "things that a person very ill with cancer needs." they are, i know, piled high, box upon box, almost reaching heaven, unopened, and possibly tripped over.

i blush to think of the olde english curses that may be heaped upon my head every time lumpy grader boob sees or sidesteps my gift pile. an auditory heap on the head is detectable only to those who attain nirvana. i'm about two-fifths of the way to enlightenment, to having those individual desires and suffering go... away. so for now, he curses into the void, he pisses into the wind.

the gifts left to give may be few, but they're the best, the saddest, the silliest, the happiest, the most meaningless.  there's no suitable box, which is good, as i lack the dexterity to pack.  thank god for teleflora and the saints be praised that godiva chocolate delivers.

there is still music. there will always be music.
and, somehow, harder to explain, animals.
words. rhythms. winds. rivers. oceans.

yeah, so i wanted to make an effort to write something today.  anything.  and seeing this from exactly a year ago, and thinking of baba, the nickname given our stepmother by her baby brother, frankie something-or-other...

...thinking of how this dream of the beach house, and her ending her days there, painted toes dug in the sand, a silly hat keeping off the harmful sun, a book and a drink at hand... or having coffee on a front porch that leads your eye into an infinity of water, of sky...

well, once upon a time, pretty much just as lumpy was having his fears of terrible illness confirmed, baba required emergency surgery. she experienced a mental decline, as old people often do when wrenched from their familiar environments, particularly those that offer infinities of sky, of water. she lost much weight, developed bedsores.  a trial run was made back at the cottage but it was untenable. back she went into that euphemistic hell called "rehab," while her daughter, my stepsister, did the research and the calling, vetting of the scary, sad work of placing your parent in as great a place as you can find and they can afford.

she's a bit of a pushy person, this stepsister, but she will tell you, probably, to kiss her grits if you requested that she cut if the fuck out.  it is, she thinks, the only way to get things done. if a bit of the truth falls by the wayside, if someone else's wussy sensitivities become obstacles instead of whimsical happy hour stories, well, a bass track will start in the background and soon sweet baby james will be screeching something about Well, I'm a steamroller, baby, I'm bound to roll all over you-u-u.

the thing is, she's sweet, too. extremely nice. i'd try to relate to the goings-on of her life but -- jeez, i'm clueless. probably it's punishment for my natural reticence, because hell's bells! if i think something, it's going to be a secret from the entire blessèd world. no way are you going to weasel a thought or scuzzily judgmental opinion out of this tête!

she doesn't trust me. how could she?  she does not know me, nor care to.  do you know what it's like to ask someone several times for their address and not be answered?  that's me:  the bedridden psycho-killer, drooling in droopy diapers, ready to show your zombie-self a little zombie "mercy." and yes, that's me, who doesn't get the message the first two times!  it makes the moment of realization ("oh, this is actually all bullshit!") that much more embarrassing!

until, until, until --  in my effort to force friendship, force relationship, i betrayed lumpy, and hurt, very likely, his polite elder sibling, the unsullied wise one. it involves a letter that NO ONE forced me to write but which fed my desire to control and dictate.

it was about -- bleck! ick!  yuck! -- wills, as in last, as in testaments.
and the stepsister i am trying to make look villainous? she's not. she's careful, and she's smart to be that way. she and i, we will journey on, learning.

i'm sorry, rolling one, o winged pigweed, for sending you a copy of that letter. i cannot say "sorry" to the lumpy one, because there is not enough space there, even for that one word.

the ace i have in the hole? ["ace in the hole": This term comes from the game of stud poker, in which one or more cards are turned face down, or “in the hole,” as bets are placed.] i have the weightless gift of a greeting and good wishes from our elder brother-unit, safely tucked there where i safely tuck things. (hey! what is this? a "tell all"?  i don't THINK so.)  it's a greeting with good wishes and a memory from him to baba.  i've not delivered them yet, dear brother. but the time is now, apparently, because a bunch of well-dressed, colorful, handsome and beautiful strangers holler about "'tis the season" from the blaring idiot box.

i can already tell you that she will be happy, this ancient dancing woman who has almost worked her way back up to a hundred pounds.

we have traversed the seasons and are not where we started.  the orbit is a bit skewed but still an awesome testimony to arcs, gravity, and the-way-of-things. i choose to admire what the universe managed to keep within reach, and to thank it for what i can still see, and everything that i can remember... or imagine remembering.

i want to thank lumpy for taking this picture of our collective beach, from the vantage point of baba's former and forever front yard.  the stepsister-unit would kill me, but i continue to give baba hope that she can get back there.  i use a line that i used on myself when that older, wiser brother-unit, something of a photographer himself, was missing to me -- i have dusted the old line off for dearest baba, made a few verb tense adjustments:

"mom, maybe you'll go home in the spring..." then we talk... about the dangers, about her dog, about her cute hunky man neighbors, about the fears... and then we talk.

to completely ruin the mood, i have to reference the beginning of last year's post.  un-freaking-canny! in all my recent travails -- in case you can't keep track, i'm losing the use of my hands -- i never once remembered fracturing my left hand. not once.  never mentioned it to my new doctors. of course, this time it started in the right hand... oh, never mind!  it's just kinda creepy.

mwa ha ha!

hey, dear readers, especially you dear siblings (and associates -- i know who logs on, for nothing is secret in marlinspike hall) -- thank you for letting me wade far enough into the gentle waves to get my ankles wet.

because -- gasp! -- the days are long gone when lumpy grader boob and i swam far far out, way past the pier, where there was just the sounds of undulating ocean and wind on the water.  we'd float on our backs and play battleship. then just float, saying nothing.  eventually, in big brother fashion, he'd suggest i go back in, that he'd watch to make sure i didn't get eaten by a shark. then i'd sit on the porch with the binoculars, making sure that he made it in, too. he'd stay out there a long time.

be good to one another.



used without permission, this photo was taken by the inimitable grader boob


if you will kindly refer to an earlier post, titled -- with such gentility -- "i flushed the toilet," it will partially explain my latest round of stealing posts from other -- better but still "other" -- sources.  you know that it is never for lack of something to say.

sure, it's usually the same something, but i'm broadening my vocabulary and massaging the play-dough twixt the ears for the malleable fiction of neuroplasticity.  i'm trying.  but when i so famously flushed the toilet, i fractured my left wrist/radius and somehow also developed ulnar nerve palsy. CRPS has a weirdness not often discussed, as one tires of sounding insane, which is its perverse preference for symmetry.  i have developed the same symptoms, minus the palsy, in my right hand, which is completely uninjured.

in some other words, typing is a bitch.  be that as it may, this blog post needs writing.

since my "family," meaning the clan in its traditional form, has begun the unwieldy process of reconstituting its early semantic glory, a sontag metaphor-for of chipped and crackled bits of anachronistic mosaic tile, these full-blood, half-blood, and no-blood relations... are dropping by this blog in decline.

most of you are used to having kin.  i'm out of practice.  let's put it as it is:  i have to consult the dictionary to untie the knots of meaning behind cousin, nephew, niece, and sometimes, even aunt, uncle.  i tend to cling to the memory of loving people, whether it was me they loved, or not, and their anthropological kinship designation fell into the garbage heap of my wayside long ago.

there is an equal and opposite reaction of attraction for and [obliquely] toward the relations who hate me, whom i disturb, a new phenomenon born just within the last few months.  here is a very true truth upon which you can rely:  beware new "friendships" of the familial sort who quickly and with nary a bead of sweat clinging to their upper lips (or eyelids -- since my eye surgeries, my eyelids betray more emotion than your run-of-the-mill rosy cheek, and not by blinking but by their creepy dampness) speak of love, and declare it for you as a lifelong yearning, based on your fledgling, chubby, pigeon-toed stunted five year old self.

do not trust anyone who tosses the love card with the wily acumen of a lifelong gin rummy pro, thanks to many hot, humid, buggy southern summer nights under bare bulbs, cards smartly slapping on real oil table cloths, red checks marred by cigarette burns, the buzz of mosquitoes broken by a smoker's cackle:  "gin!" the good ones, the best, are self-effacing, and languidly caress the discard, take it as their own... and knock. they utter "love" the same way.

yes, so i'm feverish, in severe and unrelenting pain, spasming like a done-for flopping fish, glaring as best a fish can with one eye on a rotting pier, and dealing with keeping home a center for holiday cheer with a broken wrist.  i cooked some overly herbed fish last night.  that's my only clue as to the intrusion of the fish into my tight, linear narrative.

it was an excess of tarragon perfume at fault -- i mixed it with lemon pepper, a pretty strong flavor in itself, and holmes himself wouldn't have deduced its presence, so overdone was the tarragon.

i'm in love with tarragon.

and this one, most recent sample of rosemary.  more perfume.  i like a slight artistic char on my rosemary. it served as counterpoint to wonderfully roasted vegetables -- and those vegetables with sufficient sugar content achieved that perfection of combined char and caramelization.

if i rummaged in the remains of my work ethic, i could eke out clever comparisons about perfumed fish and relatives i cannot recall ever meeting but who have "loved" me since i was but a near microscopic translucent guppy.

okay, for those relatives not in the evil category of easy love, for those who, without forethought, closed our first conversation in over 23 years -- telephonic, of course -- with a natural, casual "love ya," and who began what we decided to designate as "the breaking of the ice" with joyous laughter that cannot be feigned...

for such people, in this instance my step-mother margaret, about whom i thought during every one of the days making up those 23 long years -- when cogent, of course -- i owe more than a little bit of an explanation.

or maybe not.  somehow, it doesn't feel evasive to have picked up the fiendish phone and chatted and laughed for eight minutes without giving a single detail of my life.  we both have followed the other by means both imaginative and wheedling.  well, okay, nothing so very dramatic -- we made discomfiting use of one of my full-blooded brothers, the famed "grader boob."  lately, he's been getting a bit disgruntled serving as middle man, and in a wildly uncivilized move, simultaneously released home phone numbers to all interested parties.  he may have called me a "cowardly girly-girl," and mocked my telephone phobia (it's real!) with a professorial version of "nah-nah nah nah nah": "derr-i-da-da dah dah dah dah."  he should keep well in mind that i serve as his gate-keeper for the nefarious side of our family tree.  these are people with little sense of our cultured culturing of boundaries and who constantly threaten to appear on one's doorstep, unannounced, uninvited.

but in this instance he did well, grader boob.  "pick up the phone, damn it. what are ya, anyway, a freaking emotional misfit"?

well, yes.

margaret said something that made my heart stop, just a quick phrase but that wasn't a throw-away. she hoped i'd come visit her, there at the beach cottage where so much happiness happened, and tragedy, too. it's a touchstone of a place.

i talked over her, i think.  i said the same sentence three times, a pitiful diversion for such a smart old lady who had just extended herself -- the cottage is her sacred place, was the center of her childhood family, a tradition of sand, sun, storm, paperbacks, boiled shrimp, and happy hours.  it is also where she found my father curled up dead on the couch, and into her atlantic ocean did she cast his ashes. and i did not even acknowledge the graciousness of her invitation back into that space.

margaret, i'm basically bedridden, except when i take my breakthrough pain meds and antispasmodics, then i foist myself upon my limited world, and perform with aplomb what now defines me:  my ADLs, my activities of daily living.  basic hygiene, dressing myself, cooking.  i always think of you as i attempt to clean house -- our homes never looked lived in, they were so uncluttered and clean.  your standards became my standards, and when fred looks at me askance as i pry off the knobs to our gas burners so as to soak them clean of non-existent oil splatters and to clean the spotless enamel underneath... i always laugh and say, "but what would my mom say if i didn't do it right?" and to myself i imagine how living at the beach must have both complicated that aesthetic and simplified it, beautifully.

i miss tea and melba toast with you, a wonderful reason to come home from high school. i remember, at the oddest times, the afternoon we went sailing in a thunderstorm.

my standards have fallen.  i am not physically able to do all the things i "ought." it shouldn't plague me, yet it does.

i can walk for very short distances and lately risk falls when i "step out." and i flash on the day in washington, d.c. when you finally explained to my dad that i despised being grabbed by the elbow and told to "step out." i talk to myself -- hey, we all do, to some extent --and sometimes i hear chastisement from my his lips through mine -- "straighten up and fly right," that sort of thing. there are moments of hysteria, too.  i tried to teach fred that "it only costs ten percent more to go first class." fred didn't buy it, and, let's face it, it was one of dad's less successful aphorisms.

i have lupus, which led to something called avascular necrosis [AVN] or osteonecrosis, which led, in turn to adrenal insufficiency (and a few scary instances of adrenal failure).  but what has me beat, mom, is something called CRPS.  a lot of folks still call it RSD.  i'm coming up on my 12th year anniversary with CRPS.  it's made me pretty much unrecognizable and you'd be shocked.  mostly, it's a central nervous system degenerative disease but it shows itself -- when you have it as long and as all over as i do -- by what it does to your arms and legs.  in my case, naturally, it also does a number on my face!  in actuality, despite the skin, blood vessel, and bone damage, the havoc it loosens on the brain in terms of spasticity and neuropathic pain testifies to how monstrous it can be.

the only honest "cure" for AVN is to replace the joints destroyed by the lack of blood supply.  so i'm close to being bionic!  unfortunately, somewhere along that journey, my prosthetic joints picked up bacteria which slowly grew, and being the leftist that you always knew i would be, the little buggers formed communes that secrete a kind of antibiotic-proof material... so i finally declared "uncle" at the end of last year.  it's spreading from one piece of hardware to another, these socialist "biofilm communities."  so that adds to the discomfort of dealing with CRPS, as there are daily fevers and the general nonsense that goes with chronic bone infection -- osteomyelitis.  i ultimately lost my left shoulder, and to be honest?  i'm ready to give up the right one, it hurts that much.

however, mom, i have a great internist who tells me, when i hit the more grating notes of whining about pain:  "this, too, shall pass." i used to curse him under my breath, now i repeat his belief as if it were my guiding light, a mantra.

you've likely had enough.  i know i have.  a few more things, then i'm going to bed.

i don't know that you'd like fred, at first, but he would grow on you.  i've been with him for precisely as long as i have been absent from you.  he's gentle, intelligent, but struggling -- right now with the possibility that his hearing loss is due to an acoutic neuroma.  he's scared.  i need to think of your example, again, and make him my priority.

i'm never going to see you again, i don't think.  won't be for lack of wanting, i can tell you that.  i'm embarrassed and ashamed about so much -- but also secure in who i am, what i became, the life i've lived, getting things right with a gratifying increase in frequency!

you once tried to help me by listing my "accomplishments," and were shocked when i thought you were mocking me.  you were not, of course.  you were trying to build up my sense of worth, my pride.  but i was right, too, because even in that very low moment, i knew that awards, scholarships, and degrees were not important.

but they did allow me to work at what i loved.  everyone always points to dad's mom, to nana, as the source of the "teaching" bug, but let's say that you honed my technique.

when it rained while we vacationed at the cottage, we'd go to what had to be the only pharmacy in town, and get to buy a paperback.  with such nonchalance, you steered a stubborn reader to the fruits of childhood. one year, it was harriet the spy, another, it was jane eyre.  [of course, we still have to discuss the year you took a razor blade to "offensive" passages in one of my christmas wish list books! "too adult," you said,]

my best teaching came when i managed, through sleuthing and careful planning, to allow a struggling student to find the piece of writing, a print of a painting, a translation, a song that would lead them into the "français." they had to find it but i had to learn their need, and supply its want.

it's what you tried to do for me, so faithfully.

thank you. [and good night!  i am going to imagine the sound of the surf...]  stay warm, stay safe.

© 2013 L. Ryan

Wednesday, March 5, 2014

CRPS Update




I should let you, Dear Readers, know upfront that this is an update on the personal level -- although I've been doing a fair amount of reading "in the field," the reading is mostly above my head or personal interest stories.  Why share that with you when I can bitch and moan on my own?

Remember the fundamental principle here at Marlinspike Hall:  Whose blog is it, anyway?

Since life switched from our Renaissance King-sized bed to my single hospital contraption, decorated with an understated trapeze attachment in matte black, I've been in a steady decline.  Well, it's not much of a leap to needing to ask for a hospital bed to that assumption, eh?

Not that my Purple Prose Gratitude Journal is getting fat with loopy handwritten entries, but I will admit that when my body goes into spastic mode, the understated trapeze attachment softly jingles and jangles, calling up memories of one of my favorite Southern Tête de Hergé's front porches and its many gentle wind chimes. Those same spaz attacks bring waves of desire for the blueberry moonshine that also rise up in memory of that ivy-covered porch.  Ahem.

Many is the time I've sworn that it is the spasms that will one day make me paper my body with Fentanyl patches and mix up a chocolate pudding laced with lethal doses of a dozen sweet drugs.  If I did not think that a peaty single malt would make me lose the pudding, it'd replace blueberry shine as my favorite strong drink.

Ah, ha ha, just joshing.

In any event, I've now become the Manor Resident who grabs sleep where she can, and that usually is long after dawn.  This is something I intend to change, and soon, perhaps as soon as tomorrow.  Tomorrow may also see me pitching in to help the Genetically Indentured Manor Staff, as so many have taken vacation time to warmer climes.  A little vacuuming, mopping, laundry, poofing and fluffing never hurt anyone.

Fevers are up about a degree and I blame those mo'fos for my general decline.  A febrile state makes for great melodrama (Oy! I am burning up, as if in the very flames of Hell, and so on, and so forth) and laziness (Is that cat hair clinging to my electrostatic hospital bed rails?  Ew, gross.  SOMEONE should do a bit of dusting around here, damn it!).

But, fevers also are truly... tiring.  Mostly the parts where they're going up, and the parts where they're going back down.  The steady heat is not bad.  Kind of energizing, even.

CRPS is not causing the heat waves, of course, it's the untreatable osteomyelitis, perhaps a touch of lupus. And yet, CRPS so hates to be excluded, and so tends to get nasty during a persistent fever.  So it's spazspazspaz and burning neuropathic pain married to the deep ache of the bones.

I've mentioned before, or hope I have, that I employ more than a bucket load of drugs to handle these things. Heck, I got me a graduate degree at Berkeley, so you know I turn a quick eye to all that is alternative, complementary, or adjunctive therapy.  What works best is ice... until those medical sadists, the Physical Therapist Gangs, beat it into my head that cold is bad, bad, bad, wrong, wrong, wrong.  So I moved on, but how many times can you watch repeats of Downton Abbey?  So I began an incisive, lighthearted study and practice of mindfulness.

The initial forays into mindfulness for CRPS led to anaphylactic shock until my mentors made an adjustment and removed any references to the "happy place."  Once that was taken care of, it turned out to be pretty simple.

You don't run away from the pain.  Like a cat, and some dogs, you circle three times, wiggle your butt a little, and curl up smack dab in the middle of that pain.  There you stay until you're through it.  You don't speak much about it, beyond what may be necessary.  But you snuggle into it, stare at it, see it, observe it. Thank G_d, you don't analyze it (until pressured by such asshats as physicians).

For long term and unending severe pain, like mine, you mix in the occasional distraction, and that would be best defined as whatever works at the moment.  Mahjong, when played in a zen state, can be very effective. The vogue of marathon reruns of classic television might fit like a glove one day, and repulse the next. Law and Order SVU, for example, has no usefulness any longer in mindlessness/mindfulness sessions, whereas the Criminal Intent version, or the early original shows -- the variety pack -- are entertaining.

When mindless mindfulness is flat out denied by a pouting, infantile CRPS patient, that's when such an ingrate should opt for a comedy genre (literary or televised/streamed) or the infallible humor of felines.  Being fussed at by Marmy Fluffy Butt because you dared shift her tiny frame a few centimeters gets a belly laugh every time.  Dobby in a box is hysterical.  Buddy the Maine Coon cracks a person up just by facial expression. And all three have extensive nursing backgrounds.  A kitty massage is a better soporific than anything Big Pharma can dream up.

Music requires a careful touch.  The mp3 player yields mysterious tunes in shuffle mode, sometimes so eerily reflective of one's severe pain that it's simply not a decent option.  Unless, of course, you need to cry and have not been able to produce tears, either due to the constant dehydration from the constant fever, or due to the aridity of my heart.

Most of the time, though, music is a great aid to treating pain, especially in those 20-35 minute periods before the breakthrough meds kick in.  Also, when the dark is terrifying -- you know, when the threat of dawn edges into the window pane and you think: "No, not again, not another night of no sleep."  Then you must make yourself circle thrice, settle in, and call up Nina Simone and Eric Clapton, certain bits of Neil Young, ending with the Brett Dennen of around 2004.  That's this week's menu.  Last week saw more of the Decemberists, my beloved John Hartford, and the Wainwright family, Loudon, Martha, and Rufus.  I am finding great focus for my pain in Johnny Cash's American Recordings and the very sweet beginnings of Bonnie Raitt, from a very sweet album recorded in her parents' garage, with their supremely sweet jazz musician friends.  She sounds so wavery and young, so un-twangy, that knowing every bit of her later sounds is enough to make me weep.

I'm undergoing a good many variations in the CRPS experience, feeling stuff that I thought would never return, rapid cycling from red to deep purple, cold to hot, electric strikes that produce yips of howls. The everpresent, though, is what makes "suicidal ideation" something to ridicule.  The deep, deep pain, the burning bones that are somehow also ice. The "movement disorder" -- but we've covered that.

On the up-side, I have lost most of my decrepit fingernails and the regrowth seems healthier.

Where did I put that Purple Prose Gratitude Journal?

As for how it's going, breaking in my new Obamacare doctors -- last Thursday, I met the doctor who will be my Primary Care.  She put together a hasty Problem List.  I decided CRPS should top it, and so mentioned it first.

Blank look.

Okay, so I reverted to "RSD" and before I could unpack it, she said, hand waving in the air, "Oh, I know. Something Sympathetic Something."

I shot her a bright smile. "Right!"

And when they gave me their efficient printout record of our brief initial alliance, I saw that my primary problem was "CLPS." Fred giggled.

Sorry, loves, but I have to go.  I feel a need for Townes Van Zandt.  twitchtwitchtwitch.  I think I hear his clunky cowboy boots out on the Front Porch... and the gentle call of windchimes.












© 2013 L. Ryan

Monday, September 14, 2009

None the Worse for Wear


The felines strike again, and that always leaves me feeling better, usually for having laughed and laughed and laughed. They're a bunch of nutters.

I am in a Period of Inertia. Not unrelated, but not exactly coincidental, either, is the fact that I am spiking fevers over the 101 mark, and doing that daily. It is, to put it mildly, depressing. As of the first of October, I'll cease to have health insurance coverage. There are several important things that need doing before this happens, and I've not done any of them.

As usual, when I am too self-involved, the antics of our pets manage to both help pass the miserable time spent shivering and lost in febrile headaches, as well as to simply keep me amused and somewhat distracted.

Of what significance, then, this gnawing in the pit of my stomach, this trembling of my hands?

[One very good thing of late? The pain I am in has nearly normalized -- I am back to what is a baseline state of being, and am oh-so-grateful.]

We're gifted with four cats: Sam-I-Am, Marmy (a.k.a. Fluffy Butt), Dobby, and Uncle Kitty Big Balls (a.k.a. Little Boy).

Sammy is the Elder Statesman -- which would be news to him, of course. He is a sensitive soul, which is to say, neurotic -- and needy. Marmy and Uncle Kitty Big Balls are siblings. They were both Street Urchins who began dropping by The Manor for the odd meal and a round of petting. Fred, playing on Sam's need for company and on Marmy's very pregnant condition, lobbied for Marmy's adoption, and won. She was essentially a feral cat that put up with us. Her five kittens were as foreign to her as Moon Rocks. We feared for their little lives those first few days -- they would latch on to her and begin nursing, which would trigger a fit of pique in Marmy, and the next thing you knew, she would take off... leaving blind and bald kittens scattered throughout Our Wing of Marlinspike Hall. I nearly flattened a few with my wheelchair. Anyway, we managed to socialize her but it took a tremendous amount of time -- and the trust we earned risks destruction everytime her routine world is rocked. She has a vet visit scheduled in a few weeks and we dread the impact of that on her -- the vet does not figure among her Facebook Friends.

Dobby, Our Little Idiot, was the runt of Marmy's litter. After the birth of the first four, Marmy lost interest in her last delivery -- Fred served as obstetrician. We were sure that Dobby would either not survive at all, or would be terribly damaged. He barely nursed -- indeed, that whole operation seemed to go right over his little bald and blind head. He showed a strange interest in climbing -- no matter where he was, he seemed determined to hike to the highest available altitude. He was roughly two days behind the others in all the developmental landmarks and could often be found struggling to emerge from beneath a fuzzy pile made up of all his siblings. (That might have fed the desire to constantly climb...)

Once it was apparent that he was going to live, he quickly became our favorite due to his courageous Little Spirit. He would be the first to attack My Red Angora Leg Warmers (I'll give you a moment to visualize), the first to leap from the strange heights of The Gigantic Bed to the antique Persian carpets below, and the first to respond to any cries of distress. Because he has remained such an intelligent, small, and social creature, very dedicated to The Common Good, we named him after the House Elf in the Harry Potter series.

And so, there were three. This suited me just fine, although Marmy could be irksome, and keeping her lucious long hairs off of The Captain's finery was a never-ending task.

Marmy's brother remained a stray and we saw him in fits and starts. His health began to go downhill and Fred suffered pangs of guilt for not having taken him in at the same time we adopted his sister, Miss Fluffy Butt. He suffered bouts of mange, then obvious injuries from fighting. Just before going into the hospital in April, I saw him hanging out by The Moat, and realized that he was limping badly. That hospitalization was difficult, and included time in ICU, on a ventilator.

As I lay there, struggling to breathe, Fred came to my side, looking grave and troubled. I couldn't talk to him, but recall thinking I would do most anything to take that worried look from his face. He said, "There is something important I need to talk to you about..." and thoughts of oh-my-God-he-wants-to-turn-off-the-machines-and-let-me-die went through my head, closely followed by fears of Marlinspike Hall having burnt to the ground.

"Uncle Kitty Big Balls came by this afternoon and was looking horrible. I can't stand it anymore; I want to adopt him. If we don't, he is going to die."

Yes, it took me a minute to switch gears. And then I was so profoundly glad that he wasn't planning to euthanize me and that our current home remained standing, that I mouthed and nodded "yes, yes, yes..."

$3,000 later, Uncle Kitty Big Balls was on the road to recovery. He, like me, had a bad case of osteomyelitis and required amputation of a toe, and removal of some infected bone. The famed Big Balls were gone, too, as were the three or four terrible abscesses from his various street fights. (He has an awesome record, his preferred style being a rustic, yet oddly elegant vale tudo.)

His fur was almost completely shaved off, and he was emaciated.

Unbelievably, though, he suffered from none of the terrible illnesses I'd expected -- no feline leukemia, no feline AIDS, no kidney diseases. And week by week, then day by day, he healed.

The cat follows Fred around as if he were some sort of Feline Deity, which I guess he is, from UKBB's point of view!

Whew. So that's the gang. Sometimes I feel for Sammy -- he's up against a family dynasty... But then I watch him enjoy the comaraderie and fun, and so long as we provide him with one-on-one attention, he really benefits from the company. I mean, just look at this picture -- evidence of the Benefits of Dobby -- Nuggler Par Excellence:



Oh, My God. I put a caption on a photo of my cats. I am Cat Woman. Oh. My. God.
Anyway.
I'm pretty much blind without my glasses. Yes, that's right -- go, ahead, picture it -- glasses, purple legs, and a Pressure Sore, Alma de Cuba of the Ischium. Dress that image up with My Red Angora Leg Warmers. Lucky Fred, eh?


Dobby gets bored easily. Because he's such a sweet-natured creature (We figure because he has only ever known us, and we are such good influences -- imagine if we had human progeny, what delights they might be!) -- because he's such a sweet-natured creature, Dobby is clueless sometimes about right and wrong.

He has boundary issues.


Of course, he's also a cat.


He delights in stealing things. It's comical -- he's so tiny and yet will grip whatever booty he's absconded with in his mouth, and fly like the wind through Our Wing of The Manor, eyes bugging out of his little pin head.


We excuse every lapse in etiquette on The Dobster's part by reminding ourselves that he's got a really tiny little head.


He makes off with pens, tweezers, combs (a real favorite), MP3 players, thermometers, and small paring knives (*once*). His larger conquests include my grabber, which he perceived as a mortal enemy when a kitten, Fred's Crox, and just yesterday, the hefty 2010 IKEA catalogue.


He occasionally steals my eyeglasses.


If that were all, it'd be fine. The thing is, once the theft goes down, Dobby loses interest and his fastidious and freaky mother takes over.

Did I mention that without the aid of glasses, I am essentially blind?


So, this morning, when Marmy got the glasses in the hand-off, I glared and yelled in her general direction. Fairly leaping from bed to wheelchair, I sped off in that same general direction, colliding with two walls and one door frame on the way.


Upon arrival at said general location, I realized that I was chasing... a lambswool duster that La Bonne et Belle Bianca Castafiore had left propped in the corner of The Hallway To Our Rustic Kitchen.


Behind me, I heard the taletell sound of an amused *ack*-*ack*-*ack*. Slowly I turned...


and saw the rapidly receding end of Ms. Fluffy Butt, my glasses astride her fluffy fat head.


And so begins another day, here at Marlinspike Hall, deep, deep in the Tête de Hergé. If Marmy is true to form, she'll eventually return my spectacles by dropping them in the communal water dish, none the worse for wear.


Though temporarily blind, I am blessed. All that remains is to realize it.