Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Monday, February 2, 2015

bob marley staves off the nursing home

a new appreciation for bob marley.

and for the power of the third resetting of the mp3 player, 90-minute mode.


Get up, stand up! (Jah, Jah!)
Stand up for your rights! (Oh-hoo!)
Get up, stand up! (Get up, stand up!)
Don't give up the fight! (Life is your right!)
Get up, stand up! (So we can't give up the fight!)
Stand up for your rights! (Lord, Lord!)
Get up, stand up! (Keep on struggling on!)
Don't give up the fight! (Yeah!)

first, i thought, snuggling into my favorite off the shoulderless-shoulder, pea-green, perfectly worn, perfectly over-sized sweat shirt, "ah, an encouraging ode to all who are suffering, how nice. thank you, bob marley and friends. please leave the weed and accoutrements within easy reach as i flop over and rediscover this thang called sleep."

the mere thought of movement brought it home.  the upper reaches of my bladder were banging against the flabby flab of the empty trough of my stomach pouch.  we shall not mention the crunch:crunch:scream:scream from ankles:knees:hips:shoulders and overall joy of awakening.

so we took on the song as mantle, girded the loins, wherever they might be, interpolated a few verses of our own, scattering cats like no body's bidness, used the cane while still wearing our fuzzy blue hand splints (complete with nubs-between-the-knuckles-resembling-nuttin'-better-than-blue-fuzzy-TITS).

ever grip a slick cane handle with a hand predominantly filled with fuzzy blue hand splints and titty knuckles?

singing "get up, stand up, leave the mary-ju-wanna on the bedside table, woodja, bobby marley?" à très haute voix, losing the battle to keep your pants up along the way? ah, it was a woodcut in the making.

oh, listen!  the rascal is back!  "buffalo soldier"!

Dreadie, woy yoy yoy, woy yoy-yoy yoy,
Woy yoy yoy yoy, yoy yoy-yoy yoy!
Woy yoy yoy, woy yoy-yoy yoy,
Woy yoy yoy yoy, yoy yoy-yoy yoy!
Buffalo Soldier troddin' through the land, wo-ho-ooh!
Said he wanna ran, then you wanna hand,
Troddin' through the land, yea-hea, yea-ea.

anyway, i did not fall down, not on the way, not on the way back.  technically, i am not back yet, having stopped to see what bob marley et al left me on the bedside table. not one blessèd leaf, not one blessèd seed.  i haven't had any blessèd pot since 1992.

i landed with the left hanche perched daintily mid-mattress, the right (of the magically disappearing femur) propped by -- get this, GET THIS! -- a large blob of a right foot covered by a SOCK, by a SOCKsockSOCKsock planted on what appears to be a natural seagrass rug next to an inordinately large, loving, very worried, inordinately large, very sweet maine coone cat. remind me to do something sweet for that animal.

but bless the marley for waking me, stirringly, with a universal song. otherwise, i might have decided today was the day to cave, to say, "YES, put me in the nursing home, but not before i piss in the bed, not before i color mine hair blue, and hit the local spy store for ingenious kitsch into which nanny-cams may be inserted, the first objets d'art to be stolen by my new 'caretakers,' juicy fruit poppers all.  their goodness, the new 'caretakers'?  i bet they know where to score a joint, in exchange for my blessèd great aunt booboo's brooch from liberated northeastern indonesia." 

time to leave an email for fred, wherever he may find me. the text, always determined:

another night, gone, hallelujah!
i know you've a Haddock Corporation luncheon today of great height proportions.  
however, before you leave, and no matter how you assess my consciousness, please prepare one cafe-presse café, generous with the café, steeped to the 7-minute mark (or 9, your call), served with a hearty-textured -- but not soured -- milk. 
make sure i am awake, tell me you love me, make sure i tell you the same, have a wonderfully productive lunch.  if the captain shows up, drag his ass home and i'll do something with that organic pumpkin goodness. 
i do love you so.  you saved my life last night, telling me and dobby stories in the dark, talking tanzania, barney rubble, the galiban, and why, despite your (and my) absolute capacity to do it, some poems simply defied the form of the villanelle.  you also did laundry, and stretches.   
remember:  no matter whether i appear to be asleep or not, i am not, and need you, and that coffee, and need you, and need you, and need you.  and the captain, or dr. jean, or even kitty, achoo, eschew, bring her home. i can do a post-working lunch. 
i can.  i can do anything.  just ask bob marley.
drive carefully, for i do love you so.
just for you, my friends, as i enjoyed a brief pass out, and another hearty wake-up by my colleague-in-music, the mp3 player, with twinkle-eyed marmy and dobby, each aside me, buddy now asleep on the wheelchair, ears swiveling suspiciously.

loudon wainwright the third, this time. "got a ukulele." and that ain't nuthin' if not fred incarnate!

Got a ukulele now I'm not a fraidy
Cat in case I get a bout of blues
In the event I get 'em
There's no way that I'll let 'em
Bring me down no way I'll just refuse (believe me)

'Cause a ukulele's like a little baby
You cradle it in your arms and you sing
A lullaby or ditty
When you're feeling sh*tty
It will cheer you up
It's just the thing

Life should be bright and breezy
Winds could be light and easy
There's nothing hard or heavy 'bout a uke
I don't play bull fiddle
No mystery no riddle
Schleppin' that thing you look like a kook

4 strings made of nylon
Always put a smile on
Anybody's face who's feelin' blue
When your mind starts slummin'
Start a little strummin' on your uke
And you're gonna feel brand new (you gotta believe me)

Even though it's rainin'
Quit all your complainin'
Your roof's not leakin' nothin's gettin' in
This axe is a hatchet there's magic you can catch it
On your uke you can't lose you just win

Life should be bright and breezy
Winds could be light and easy
There's nothin' hard or heavy 'bout a uke
I don't play the tuba tuba's do it to ya
Just the thought of tubas makes me puke

Kind sirs and gentle ladies grab your ukuleles
I suspect by now you know my song
And the next time that I do it
Get down and get into it
I trust you all will sing and strum along (you gotta believe me)



© 2015 L. Ryan

Thursday, October 9, 2014

It's important, so do it.

Quick, note the day and time:  I'm having a productive day.  Two loads of laundry, the weekly refilling of the med box, several psychological evaluations of the Feline Triumvirate, orientation of several new Marlinspike Hall Manor Gift Shoppe volunteers, coffee -- perfectly strong and I did not pour boiling water in my lap in its making!

Sure, there were errors, flukes, lots of pills on the floor, and the Gift Shoppe may be in retail peril, but there is an abundance of clean covers, ranging from light and kind to tender skin to heavy and cold repellent. None of the cats aberrant behaviors have improved but we have lowered alert levels to DefCon 2, hoping that we can continue to deescalate tensions and avoid Buddy killing Marmy, or Marmy shifting from clawing defense mode to slashing aggression.  Most of all, we would like Dobby to retain some fur, as when the little guy is stressed, he releases all of his hairy hairs, usually on my clean clothes.  And, if we put all our desires out there, well, we'd like him to shut up, as well. He's the Town Crier of our world and, honest to God, it sounds like a nonstop tirade of a lisped "Oyez, Oyez, Oyez!"

Ahem.  Yes, I'm having a day!

My right foot is probably as small as it's ever been in the past 12 years. If you ignore its purple and frigid state, well, hell, it almost looks like a doggone foot!

The claw phenomenon is, indeed, spreading to two fingers on my left hand, but rather than cry over that (we now cry for an hour when the lights go out at day's end), I am forcing that hand to do extra duties.  I suppose someone without CRPS would call the doctor.  I have been taught not to, trained better than a seal.  Oh, how to stave off the urge to balance a beach ball on my nose?

I am daring to see another Kaiser Permanente neurologist next Thursday.  Yesterday, if you had dared to ask, I'd have told you it was a hoop to be leaped through, or thrown through (by the neurologist, or Fred, perhaps... maybe even Lumpy, if he could work up the strength).  Today, I've decided to focus on researching these sudden and completely un-freaking-expected changes in my upper extremities.  Research as only I can.  I have awesome research powers, friends, and they, coupled with unerring insight, rarely lose me in a corn field.

Don't know where that came from, that whole "lose me in a corn field" thing, but I like it. So it stays.

So next Thursday, yes, we slough off the history of Kaiser Permanente's abysmal neurology department (though I hear that EAST of the Lone Alp, they have better staffing) and we politely make the focus saving my hand function.  The OT kept concentrating on the pain of it, not hearing my oft-repeated: "I can handle the pain... what I cannot handle is losing the use of my hands."

It's easier to focus on the amorphous and try to score points for ass-kissing empathy, sympathy, compassion rather than brainstorm with me how I am going to toilet myself, wash, and manipulate forks, knives, knobs, buttons, cats, Fred, paperwork, pens, computers, car doors, seat belts, coffee cups, telephones, and pills, pills, pills!

Much better to wheedle: "It must hurt a lot.  Does it hurt a lot?"

Button my shirt, bitch!
Dice the Holy Trinity of onion, bell pepper, and celery.  Or the required base to a magnificent, fragrant stir fry:  ginger, garlic, and several optional thirds -- onion, chilies... none of that to be confused with the saucing options.  Don't get excited, Therapist, about a perceived ease to the saucing, because the saucing involves mixing, and the opening of many tiny bottles, and the outpouring -- precise outpouring -- of fish sauce and sesame oil and the many variants of soy and chili and sweet/sour viscous liquids.
I had trouble washing my face last night and dropped my toothbrush in the toilet.

But that was last night, and the OT was Tuesday, and won't be seen again until a few hours after the neurologist next week!

I've a firm grip on this day, still.

Part of that vise-like hold has been enabled by merely turning off all the phones and watching a few episodes of what I call a soap opera, but Fred insists is a "drama series." Yay for solutions, because they're solutions!

Clearly, giving my brain, such as it is, and these hands, such as they are, access to a keyboard has not been conducive to what pop stars like Dr. Phil might call "self talk." Dr. Phil is a marketing genius and a professional fraud.  I know the difference between what I type and what I actually feel.

Harrumph.

Time to finish my chores, turn the phones back on, be an encouragement to Fred and the hulking, skulking cats.  The genetically indentured Domestic Staff Executive Committee has requested a meeting with the Haddock Labor Relations Board, and judging by the steely glint in a few eyes, there are more issues than territorial disputes and genetic engineering snafus on the table. I think, I am guessing, I assume... that they want a bump in salary, an expansion of benefits, and some minimization of their essential serfdom.

I could be wrong.

Last night, when I turned off the lamp beside this godawful hospital bed, after I threw the stupid washcloth gripped by my right claw all of three feet (after a full wind-up and high kick), before I picked the 90-minute "sleep" music option (which started with dear Simone's "Go to Hell"), I spent an hour crying.  I didn't time it, the hour is a guess.



All I could see was Lumpy's sweet face, his eyes gone deeper than deep seems possible, and dark, much darker than seems fair.  I don't see the two lumps he says are there -- in his skull, one on the left hairline and the other at the base of his jaw.  Granted the jaw is disfigured and I can actually see it, but I like to pretend that I don't, and that his well-trimmed beard just has an inexplicable scruffy area.

To me, he is beautiful, handsome.  And, damn it, other worldly.

Can I convince you, you who are as mortal as he is, that he does not deserve death, that the world needs him, that nothing will ever be the same when he dies?  That a whole generation of mediocre writers will not have the touchstone of his classroom f-bombs and hilarious illustrations of rhetorical fallacies by the citation of the authority of South Park and The Simpsons?  They won't learn the crucial life lesson, the crucible of working life, that he models when explaining, over and over: "I grade what you put in front of me."

You haven't seen him mime gold medal winning Olympic ski jumpers.  He's a little over 6' 4" and could launch himself off the icy ramp, and extend his upper body, straight as a rail, over his legs until his slightly Roman nose seemed (and therefore, was) mere inches from his skis.




A Normal Hill specialist, his split leg landings, with arms making delicate ballast adjustments, would be the envy of any world class orchestral conductor.  The arms part, not the leg part. Unless we're talking some sort of weirdly energetic orchestra conductor, or perhaps an afflicted one, suffering from neurological tics, Parkinson's, or Tourette Syndrome aggravated by the brass section, probably the tenor trombones.




So tears turned into giggles in the dark.  And each cat came by, politely following their peculiar rules of Buddy first, Marmy second, and -- everpresent, very somber -- little Dobby.  Dobby never leaves me when I cry, though he may position himself so as to be unseen.  On the top edge of the pillow, perched on the corner of the bedside table, alertly upright between my feet.  He didn't learn the "don't stare" lesson in kittenhood, so he stares, and mewls softly.

Like I said, the hour was just a guess.  I also visited with some other beloveds, before relaxing my mind into the recurring memory of me, seated on Lumpy's shoulders as he walked, slowly, from the shallow end of our swimming pool to the deep end.  Yes, that put him under water for about a third of the journey, but never did he hasten the pace, break the rhythm.  Sometimes the tipsy Happy Hour boozers at poolside noticed, sometimes they did not, but it was something to behold.

Well, I just promised Fred, The Castafiore, Sven and his son, Cabana Boy, a healthy dinner of roasted organic vegetables and some sort of fish.

A chance to wield knives and cavort with a very hot oven!  Now, THAT is what I call Occupational Therapy. No co-pay and a delicious pay off at the task's end.

Readers?  Love the ones you're with, and find ways to transmit, send, convey, and give away the love you have for those not within your wily grasp.  It's important, so do it.








© 2013 L. Ryan

Sunday, August 17, 2014

Sunday Phone Calls: When Even Death is Funny

It's been a rough week, the kind where the best communication turns out to be reminding the people whom you love that you do, indeed, love them.  It makes for a shorter phone call, a blink-of-an-eye visit, and calls for just a tiny greeting card, though the cost of postage does not change.

Growing up, Sunday was the day for obligatory phone calls to family members living far, far away.  Granted, it was usually my immediate family that bore the responsibility for the distance issue.  We tended to be overseas, or living somewhere inaccessible to even those relatives who enjoyed travel.  Or I could be honest and say that no one really gave a crap, and the Sunday telephone ritual was just another thing to check off the list.

I managed three calls today.

Those Dear Readers who've been with me a while know that my use of the telephone is, itself, miraculous, as I find it the least endearing mode of communication of the many modes we have in this technological age.

For instance, Grader Boob, one of my two beloved Brother-Units, is now so weak that his voice does not carry efficiently to the telephone receiver.  He prefers "Lumpy" now to GB, but that's just trivia.  And a lie. He has no sense of humor discernible any longer, cancer's gift, pain's offering.  As for his voice, part of it is also, I am guessing, change brought about by impingement of various nerves by those nefarious Lumps about which we so want to joke.

He could out grim the Grim Reaper, and will, I hope. Grumpy Lumpy seems to be so intensely in a snit because his life has been destroyed in what must feel like an overnight happening, despite what hindsight now reveals as a vine-like underground creep over a decade, culminating in Kudzu's blazing speed once that first tendril found the sun.

His pain is unimaginable, even to me, the Queen of Pain. His perennial lack of social graces, once endearing, now has the edge of a feudal samurai sword, his made to accommodate one-handed lunges. It's just a matter, really, of a shorter grip.  Maybe a tanto grip with a freaking 4-5 foot ōdachi blade.  I carry a small antique tanto in my obi, as do all my female friends.  Bianca Castafiore, we all know, is never without her 06 F.A.S.T. from Gerber.  She swears by the G-10 handle.  In a nod toward beauty, my dagger handle is a subtle, but distinctive, teal-green silk cord and black samé -- ray skin -- topped with a black iron tsuba bearing a dragonfly motif.

None of us bother with saya, or scabbards. Marlinspike Hall's women are famous for our mastery and obsession with fabrics of incredible tensile strength, and their artistic draping, which most men assume comes from a lurid obsession with shiny, metallic, decorative threading.  Yes, we live for the glint of reinforced brocade on a clear, hot summer day.

"The effect is elegant and rich without becoming fussy. "


Lumpy's issue is the same problem that turned the ōdachi into a ceremonial thing, a spiritual weapon.  The answer, I think, to the obstacle of how to carry his very particular sword, and successfully draw it, lies in providing him with a trusty steed, though that might attract undue attention as he canters about the hallways of higher learning. Better might be an unobtrusive trusty sidekick.  Like a dedicated sister in a wheelchair. I could pass off six feet of sword as a stylized assistive mobility device, no problem.  Who better to have his blessèd back?  Plus, I can help with any grading duties, and be the one to chuck chalk at any undergraduates who dare nap during class.

And here you thought a samurai sword reference was to end in its metaphorical stage! We are a knife-wielding clan, we are.  You should see some of Fred's knives. His nonchalant explanation for seemingly artless features -- a notch here, an odd finish to the metal, a strange blunt affect -- can chill my blood. He and Abbot Truffatore do not so much resemble Boy Scouts comparing five-tooled pocketknives as handy camping tools when they extricate their shiny toys from humble scabbards and lay them on felt-covered table tops as they seem men under the ancient enchantment of war.

So, though weak in body and voice, this Brother-Unit remains obstinately militarized, and determined to try teaching this semester -- two courses in person and one as an internet prof.  I want him to succeed;  I know he won't.  And so pardon my fantasy of squiring him à la Sancho Panza, ready, in the end, to do wheelies and behead the archaic administrators who failed him, impale the students who worked him into weakness, slash the desks and podia that his university maintained instead of providing health care for those who sat and leaned there.

I hate these Sunday calls.

And then there was the dear sister, caring for a waning mother, blindly navigating the end-of-life barriers thrown in their way by that same health care system that has failed the rest of this fucked-up family.  Mom is unaware of the obstacles she dodges, her memory gone, or maybe that stealthy faculty forces her to relive each trouble more than is useful.  The Sister-Unit has become a faithful nurse, tending three bed sores, feeding a weak 81-pound matriarch.  Her partner has leukemia -- that's some punchline, eh?  He is doing well, however, though they are smartly close-mouthed about it.  He's a Prince, a Peach, a Pear, which is the highest accolade of my people.

I did not even consider asking to speak to Mom.  In my mind, likely as confused as hers, I am an abstract construct to her.  The child who caused so much trouble.  The child who said "thanks, but no thanks" some 24 years ago, and by letter, not phone.  I'd had enough, enough doublespeak, enough lies, enough suppression, oppression.  I was careful to express my real gratitude for the raising, for the good times, for the afternoon on the sailboat, for the tea and toast, for the tips on dumping drinks into potted plants at cocktail parties, and the admonitions to stand up straight and be proud of my height.

She taught the art of thank-you notes, of indexing social debts (keeping a tit-for-tat list of Christmas card recipients and a neat list of who attended what party and what outfit she had worn to each). She taught the power of obligation, the complexities of generations.  She was, too, a teacher. Of little ones, but they are the most precious of all.  I did a brief stint as a substitute in a second grade classroom and was more terrified than when I faced a room full of savvy, educated, bright-as-the-moon, inquisitive young men and women.  It was Mom's influence that tainted my university teaching with the same urge to protect and defend that comes so naturally on behalf of six-year-olds.  (Sometimes that was a problem.)

I wished the Sister-Unit good courage and good luck, as she fights for some semblance of coordinated care, hires nurses, and deals with an overfed dog now prone to urinary incontinence.  Oh, and a doctor who opines only the glaringly obvious and does not return her polite phone calls.  It's not his mother, what does he care?  Oh, I take that back.  He's perfectly competent.  There's nothing to do but muddle through.

The other mother, the biological Mother-Unit?  I don't call, or not often, and cannot face it today.  She's likely to make a perfunctory inquiry about her first set of boys, and I cannot spit out the perfunctory lies, not today.  Maybe I should call, but have ready the most non-perfunctory of retorts.  "Lumpy? After winning Wimbledon, he took a brief rest in Monte Carlo -- you know what a gamer he is -- before sporting the yellow jersey on the Tour.  Right now, he's gearing up for a stint as Compositional Inquisitor.  He gets to wear flowing robes and a pouffy hat, Ma.  Isn't that grand?"

Of the other sweet Brother-Unit, I could just wow her with the truth, but her dementia, like her normal state, won't admit too much of the stuff.  So I'd say something like: "He still proudly marches to the beat of his own drum and radiates compassion and equanimity into the wavelengths of the universe, Ma, just like I told you last time."

The third call?  To an evangelical busybody who delights in telling me what to do and then, in undermining my efforts.  This week she taught me a valuable lesson about trust, as in:  Don't do it.  So the third call was harsh but easy. Her proselytizing had brought her no Godly approbation, just the stench of manure spread on burning sulfur. That may be overstating the matter.  I'll let you know.

How am I?  How do you think?  I'm in terrible physical pain, my right hand and foot have seceded from the union, I cannot eat, barely drink, sleep in fits, spasm at the whim of invisible cattle prods, and am returned to the days of fever and sweats, lethargy. Despite that, I take my cue from my siblings, a hardy bunch, smart enough to know that the only way through is through. That there is still music, and that even death is funny.

I cannot bear much more of this, but we all know I will.  My piddling troubles are as nothing. I still recognize beauty and humor -- but they must be either exquisite or of admirable kitsch.




© 2013 L. Ryan

Tuesday, June 17, 2014

If It Is Tuesday...

Cape May During Hurricane Sandy




If it's Tuesday, then Monday must be over.

Anyone wishing to argue about space and time continua or parallel string bikinis may simply go take a dip in the moat.

Because, damn it, Monday is over.  We start fresh.  All devices have been charged.  The Manor is pristine, the grounds are pruned, raked, and -- where absolutely necessary -- mowed.  Sven Feingold putters about giggling, so something is up with the latest ManorFest Maze design.  La Bonne et Belle Bianca Castafiore stays on her cell, when she can get reception, because she is *this* close to garnering a position as spokesperson for a major weight loss company that specializes in busty divas.  Just the exercise and muscle toning from running up and down turret stairs and sprinting around Captain Haddock's miniature submarine wormhole gateway will make her lose a few dozen dress sizes.  Should Marlinspike Hall ever successfully be enveloped in a wifi bubble, the Milanese Nightingale may well gain back all the fat she's discarded chasing a phone signal.

Our various herds and fruit orchards are all in their proper states.  The monks next door are reworking their Christmas Catalog of Wasted Calories and the Abbot, Fred, and I have been designated taste-testers.  Life is sweet.

But Monday.

The Mother-Unit that actually raised moi decided to need emergency surgery.  In a test of the emergency surgery system in the coastal backwaters of her slice of paradise, she encountered the requisite number of idiots at the local beach bum hospital over the weekend.  So, in a way, Monday was her salvation, as it brought an influx of actual medical practitioners leaking grains of sand onto the spit-shined checkerboard hallowed hospital halls.

I was a tad bit worried when I looked up her surgeon's credentials to find that he also enjoyed the practice of ophthalmology.

I've not seen her in decades but every description begins with her diminutive stature.  She has everyone and everyone's brother worried about her weight -- no busty diva, she.  I want to scream sometimes.

Oh, about what?  I need to particularize my need?

I want to scream at the "but she's so tiny," "she can't take it, she has no... reserves!"

Puh-leeze.  This is a woman who was a fierce ballerina.  I watched her employ many tricks of the dancing trade as she guarded her lithe status through the years -- as if it mattered once she was no longer expected to enter rooms via a grand jeté.  She is not anorexic in the strict definition of the malady.  Nor is she an alcoholic, nor does she abuse prescription drugs, in spite of a lifelong celebration of Happy Hours and a honking bottle of bazillions of phenobarbital kept in the last drawer of her dressing table.

Anyway, she survived the weekend, and made it through a scary surgery with style.  And got -- with us -- to Tuesday!  Yay, Mom!  Point your toes and twirl, twirl, twirl!

Equally wonderful about this day?  Grader Boob gets his first doses of chemotherapy!  His story has become so sad, beset with that ogre of physical pain and the great deceivers of the mind that pain welcomes. If you're a Dedicated Reader, you've seen me act out that drama, o'er and o'er.  Therefore, rejoice in Tuesday, for shrinking those tumors will result in less pain, and less pain will allow sleep, and sleep will further decimate the pain cycle.

All together now:  "Shrink, tumors, shrink!  Shrink, tumors, shrink! Shrink, tumors, shrink!" I have an accompanying tune in mind, but don't want to limit your creativity as you dance your way through this Tuesday, chanting, cavorting, and casting Grader Boob tumor cells into Tumor Cell Inferno.

Use any musical genre that works.  Though I have to admit that "country/western" somehow doesn't fly. Feel free to prove me wrong. Something in a Texas Two-Step, maybe?  Just be stylish.  This is my brother we are talking about.

He's simply riddled with cancer, the reprobate.  His new oncologist, who seems a very good dood, is starting the meds today whether he is admitted to the clinical trial or not.  And no, I am not stupid.  Prevailing winds, insight, what is not said -- I'm on it.

Given that it's been over 6 weeks since the official diagnosis, it is fair to say that the new oncologist's very life may have hinged on that decision, as I was gathering weaponry to bring down on his toupéed head if something were not done this week.

Would I kill to improve Grader Boob's Quality of Life?  Let me see.  Hmm. Yes, of course I would.

Wouldn't you?  If I were willing to personally extrajudicially execute Pinochet, Jesse Helms, and various other errors, an attempt on the life of someone impeding the life of Grader Boob is one of those famed "slam dunk" decisions. The weird problem with my Kill List, and this has been the case since roughly the 1970s, is that once penciled in for an extrajudicial execution, my Listees just... drop dead.  Or are taken out in the wrong fashion, a tragedy equal to the horror of their continued existence.  If you have any insight into how I might stem the tide of these unworthy deaths and promote the karma-cleansing of my efficient Kill List, the comment section is all yours.

If you're lathered in a cold sweat and thinking of calling the Interwebs Keystone Kops, relax. I was voted the Family Member Least Likely To Commit Murder.

So, it is Tuesday.  The Mother-Unit may yet gambol along the edge of her watery front yard, scotch and soda in one hand, the other arm gracefully indicating the vastness of the Atlantic.  The Brother-Unit may get to drop the F-bomb on another set of undergraduates, or he may be granted furlough to gambol alongside the Mother-Unit, leaving now and then to swim out past the breakers.

Have I told you lately, Dear Readers, that I love you?  Particularly You... That's right, You.

Instructions for Tuesday:

  • Point your toes and twirl, twirl, twirl!
  • Shrink, tumors, shrink!  Shrink, tumors, shrink! Shrink, tumors, shrink!


© 2013 L. Ryan

Thursday, November 21, 2013

I'm Asking For Your Prayers

If you are new to my blog, welcome to a crazy place, an ambitious reflection of a complicated life, a crowded intellect, an ardent site of political yearnings, all wrapped up in an anonymizing fiction.  The Blog Back Story has me, the Profderien, and my partner of 23 years, Fred, living as squatters in a perversion of a small bit of Hergé's geography of the great Tintin books.  Captain Haddock's Marlinspike Hall is our home and our work, too.  Together with the inimitable Bianca Castafiore, the Milanese Nightingale, and a horde of genetically indentured Domestic Staff, we maintain the Haddock holdings, buff up the Caravaggio collection, and try to keep The Castafiore from helping too much -- she has been known to lust after the absent Captain, imbibe a tad bit much, and wax the Carrara marble spiral staircases.

Most of the blog is dedicated to my woes.  Truly.  Just hop around the archives, or simply bend close to your screen and cup a hand behind your ear and listen for the self-indulgent moaning.

When I do deign to mention Fred, I hope I do so with love but know that is not always evident.  Writing love is a hard task and my writing talents wane.  But know this:  I love Fred.

There are more things to say in that vein, more crass but equally true.  Things like... I owe Fred, I owe Fred everything.  Things like... Fred is a hero of the kind that are slowly drifting into the ether, fading from this orb.
Things like... there is no face I'd rather see, no voice I more long to hear.

He can piss me off like nobody's business but generally in that age-old way that provokes a roll-of-the-eye and a peeved cry of "Men!"

He does stuff like wash all the dishes but one.  He's cursed to have the most idiotic drivers in our region (west of the Lone Alp) end up in front of him on a two-lane road, and in a country where there are always double yellow lines and people who pass are considered uncouth.  He thrills at finding new and cheaper spray cleaners.  He goes to court to support women friends who are being stalked.  He welcomes people into the sanctuary at his house of worship, and often spends Friday nights killing bottles of communion wine at our next door neighbors rectory -- the Cistercians whose monastery is just past our apple orchard. Without Fred's attentiveness, the moat around Marlinspike Hall would be three feet thick with blooming red algae, blocking the emergence of the Captain's fleet of miniature submarines that travel the inner core's wormholes and the planet's high seas.

Fred paints, plays the piano, the guitar, and the ukulele.  He overcame a childhood of unimaginable abuse and survived his own acting-out.  The brain fascinates him, and he is one of those high end audio types.

It looks as if Fred may have a tumor called an acoustic neuroma.  He's not felt well since... well, I cannot honestly say, because he's studly.  At least since February/March.  He suddenly -- very suddenly -- lost all hearing in his right ear.  No pain.  Lots of fatigue.  Never close to being balletic, if possible he morphed into a dedicated klutz.  Actually, this last symptom is one we have difficulty gauging with any objectivity, as Fred will try to shorten any walking path by grazing door frames and finding ridiculously direct routes which frequently bruise his shins and stub his hairy toes.

If you will put up with some of my well-worn impropriety, the asshat of an internist, and the dipshit of a physician's assistant who saw him with remarkable frequency, considering this is a man of the old school we're discussing, who has to be feeling pretty gosh god-damned awful to set foot in a doctor's office... Ahem.  I lost the tight thread of my post.  The idiots he saw between March and this month, November, said "ear infection," said "antibiotics," said "ear drops," and essentially placed him in the basket of cases that should get better whether they did a damned thing, be that damned thing right or be that damned thing wrong.

He became dizzy.  Two weeks ago, he came home from the grocery store, shaken.  He'd gotten disoriented, shaky, almost blacked out.  Back to the doctor, who must have had his coffee enema that morning, for he finally referred dear Fred to an ENT.

The ENT found no evidence of the famed raging infection and set up some testing.  Acoustic neuromas are rare, and account for something like 1% of cases of unilateral hearing loss.  For reasons that Fred did not investigate ("Men!"), the doctor suspects that Fred is one of the one percent.  The ENT also, and rightly so, soft-pedaled what a "tumor near the cochlea" actually was, what it actually could do, what it could become, and what was entailed in treating it.

Despite our leather bustiers, dirndls, and tie-dyed lederhosen, we are a modern couple.  It took us longer than usual, but we eventually hit the internet for information.  Did I mention that Fred's degree is in neuropsychology and that he knows his way around the brain better than I know my way around Diderot's Salon of 1767?  An acoustic neuroma is essentially a non-cancerous brain tumor, slow-growing, but that grows in a terrible direction -- toward the brainstem.  It almost always impacts facial nerves and hearing loss is almost always permanent.

I'm trying to sublimate my pains and disabilities, trying to be supportive without being Pollyannish.  Truth be told, my sudden transformation into an irrepressible optimist would cause Fred to suffer a heart attack born of pure shock.

But I found myself ending an email to him -- Yes, we email each other within the same domicile.  Marlinspike Hall is a tremendous manor, and he is in the Computer Turret doing Important Computer Work, while I'm pecking away at my dilapidated laptop in our West Wing apartments, a cat on my head, a cat between my feet, a cat on watch at the window, and Castafiore taking up most of the king-sized decadent round bed, hooting and hollering at American college hoops.  I know, who knew?  Lounging on the Kodiac bear rug, toying with a massive paw of claws, not understanding basketball in the least, is Sven Feingold of the Manor Staff, whose family is genetically indentured to the maintenance of our Labyrinth, the highlight of our annual summer ManorFest.  Sven and Bianca are obnoxiously lusty, but on a cold November night, great fun.  The Castafiore is, at this moment, explaining "traveling" to Sven, who cares only for soccer, and I must say, I almost understand what she is saying.  For a few decades now, it looks to me as if everyone travels, usually in that one long stride from half court to the basket.

Right.
Well.
Anyway.

I ended my short email to The Fred this way:

For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear; I will help you. (Isaiah 41:13)
I am a huge Isaiah fan, and it's his time of year, and I could babble hundreds of embarrassed denials of my biblical sincerity... but this is Fred, and Fred's beautiful brain and hearing, steadiness and string-strumming, his kindness and abstract fingering of piano keys, his love of the Ethiopian sky, the sounds and smells of the Danakil. This is Fred we're talking about, a leitmotif on my blog, a raison d'être in my life.

We all have something tragic ongoing, already gone and ghostly, or on the way.  But I don't care -- I really don't.  I want this man, who has saved my life many times over and then taught me to be glad of it, to be healed.  Yes, I recognize the narcissism running rampant, but as you know, writ large in attitudinal font throughout elle est belle la seine is the ringing query:  Whose blog is it anyway?

Please pray for Fred.  You're so much more likely to have the words, the mien, the means.
Thank you.

[The relevant testing needed for diagnosis cannot begin until the first few weeks of December. I'll keep you apprised, Dear Reader.]


Bach's Jesu, Joy of Man's Desiring, in the well-known piano arrangement by Dame Myra Hess (published by Oxford), has single notes (not part of a chord) on the "wrong" side of the stem; this odd bit of notation occurs on the right-hand staff almost from beginning to end. Why? In the words of Sadie (2001), article "Notation", these are "reversed note shapes representing one strand of a complex texture."



© 2013 L. Ryan

Saturday, September 21, 2013

the email story of five poems

the email story of five poems

originally "composed" on Feb 10 2013.  forgotten.  dug up a few minutes ago.




PART ONE:
I have two brothers.

One left our family (he was the intelligent child) when I was about eight.  It might be said that the family, in whole and in parts, left him.  We found each other three or four years ago, and it's been a hesitant love fest ever since. (He gives good phone. He's funny. Kind. Wary. A friend to the Earth, a spiritualist. A good'un.)

The other is an English professor, also positively brilliant, and with whom I've enjoyed an uninterrupted lifelong love fest.  I love him, not for his brilliance or his own impressive feats, but for his compassionate soul. He may curse at his students and drop the F-bomb in class, but he labors over what his writers write with a care that would make them weep.  (I threw chalk at sleeping students, or even wide-awake ones, and graded very rapidly.)

The two of them, who love one another in a way I cannot describe, do not speak, do not commune in any way.  For all those missing years, the professor has felt the pain of being left behind, the pain of brother love and a brother believed dead.  And now he will not relent to communicate, will not call, type, lift a pen.
Though youngest, I have always been the muddled middle.  Not your usual peacemaker, no. I've cursed both the naturalist and the bookish boy grown old.  In the beginning, a beginning of just three (or four) years ago, please hold in mind, I would occasionally try to trick them.  That never worked, because as youngest, I am, perforce, the dumbest.

So now I've taken to writing them both emails, blind-copying them both and letting them know so.  The canyon trekker is an accomplished poet and writer, and, well, what can you say of an English professor? (I'll pretend I did not hear you think that.)  I got tired of composing emails that expressed the same thing except for their separated minutiae.

Since I've recently become active at a neighboring joint dedicated to poetry, I fired off one of these double-blinded emails, begging my brothers for help.

PART TWO:
This is how my email went:
i'm trying to make certain dead areas of my brain surge back to life, or at least elicit some sort of neuro-spark, and one of the ways i've chosen is poetry, the reading, writing, and critique of it.   pretty much the moment i discovered george oppen ("i discovered george oppen," chuckle), i stopped reading anything new.   would you recommend some "new" poetry?  maybe regional, maybe obnoxious, marginal, or so popular that one'd be tempted to snub her just because?  just please don't list anyone rising from the detritus of vanity presses (i am struggling to get over a recent encounter with such a poet who used me to beat upon, i assume because he does not know me.  i had entered his "round robin poetry contest" without doing due diligence into his overwhelming dickhood, his quintessential dickiness.  he punished my questioning of just what constituted a "round robin" poetry contest, once the arbitrary nat! ure of the rules began to slowly seep, like used motor oil, from his dickified mouth.  for the first "round," the 25 entrants were surprised to discover that we were to vote for our "top ten." i defended a man who, without any doubt, wrote the best poem but dared to ask if we might vote for ourselves... anyway, it got ugly, and i ended up making unavoidable references to the rampant spread of "the browning of the nose" among the broader contestentry.  both the very nice, best poet and i were promptly eliminated, despite both receiving mostly "votes" of between #1 and #10.   i am -- what is the word? oh yeah, i am all broken up.  bereft.  désolée.   but the fun is reading new poetry by people unknown to me, most of it god-awful (and you know how awful god can be!) but some of it embedded with those moments, though with all of us what's constant is our inconstancy.     so in the 20 years since i've seriously read poetry, what have i missed, what should i rea d?  not looking to emulate, no, as i said, i'm looking to shock brain parts back to life.   everything in me wants to run back to ronsard & du bellay, sweet l'il louise labé or even la chanson de roland.  villon! the draw of mallarmé... and lamartine as much as baudelaire. weirdly, you now couldn't pay me to read huysmans but i'd pay you for the ability to concentrate for an hour on georges bataille or blanchot. people change -- who knew?   i've not read near enough of h.d., stein, WCW, pound.  whitman.  dickinson. stevens, lowell. wilbur.   oppen, oppen, oppen.   so, five poems i ask of you.  that's all -- five measly poems.   oh -- the other part of my attack upon cognitive decline:  mahjong solitaire.   i know you are busy earning the money required to live, as well as pursuing life, liberty, and happiness -- so please take your time.  i'm feeling confused a lot, and there's familiar evidence -- the way i keep (do not keep) my checkbook, the drying of clothes before they're clean, these familiar markers.  little, very little, sleep.  too many medications, though we've cut as many as seem prudent.     maybe prudence is over-rated, maybe we are fools to think ourselves prudent.  i dunno.     sorry to always be desperate, but i am. it's no fun being alive. poetry might help, or at least obfuscate things enough that i'll forget the silliness of expecting fun at all.   i love you so deeply, respect you so deeply --
moi

PART THREE:
I had serious doubts that this story -- well, not a story, more of a profound historical record of the sort people used to bury in cardboard boxes kept in unventilated attics, or in the corners of damp unfinished basements, back when people could afford homes -- would develop a third section.

So it is with joy that I transcribe, changing only what must be changed to protect myself, the flurry of emails between myself and the brother-unit who professes English.  His first volley shocked me, for he has been the source of many gifts of poetry over the years.  Now that I press my leaking sieve of a memory, however, I remember that he usually chose his gifts with precision from a list that I provided.

You see, we were both the confused recipients of strange offerings from an unrelated great-step-aunt, a very wealthy aunt who married as an old woman the publisher of a group of major southern newspapers.  Sara, herself, was a hoot, a ringer for Aunt Clara of Bewitched, and so, of course, she outlived her filthily-lucred one-man dynasty of a husband., and dedicated herself to the preservation of his capital.  She closed off the upper two stories of their mansion, and most of the first floor, too -- because who needs three kitchens?  We loved her for herself, for her insistence on stopping at every street corner, no matter the existence of a stop light or stop sign.  We enjoyed traveling through three lanes of oncoming traffic as the best way to enter McDonald's by its clearly marked exit.  I often slept on a plush and ratty chaise longue in the anteroom to her boudoir in the mansion because she was scared at night.  I was scared at night, too, because every bit of every wall was covered by gilded frames holding the dead, posed faces of rich strangers.

Her kin folk, again, all step-kinfolk, but lovely people, both hungered to inherit her money and also loved her a lot and took good care of her (like sending me over to sleep on the plush and ratty chaise longue to stare at the dead, posed faces of rich strangers all night).

My point, clearly, is that she gave us strange gifts.  I remember a Christmas gift wrapped in official Belk's paper, nestled in crisply folded tissue paper, with Belk-approved ribbonry.  The treasure at its heart?  A plastic comb, complete with a sample hair, and a pair of stained, pastel pink underpants, about 20 sizes too large.

So the professor and I became strict list adherents.  It seemed the safest way to celebrate the birth of Christ and our own trips around the sun in a world of such biohazards.

The train of my thought?  The train of my thought?  Oh, yes.  My request for 5 measly poems. Although the first to reply, my F-bombing Classroom Leader led with an effort to evade:

Howdy-- I have to chuckle at your request for poetry recommendations. I stopped reading poetry in grad school and my only exposure since has been to whatever is included in those 2,000 page anthologies that departments make the students buy for 1102. I realized I'd not be reading any more poetry in 1990 when I bought my first CD and couldn't read the liner notes or the lyrics! Had to chuckle at your idea of putting the painting on the piano--tres chic. Any concert recommendations from Wolfgang's Vaults? Love to thee and thine.

A few words of clarification.  Our father died last July, and since then there has been an insurgence of little clown cars spewing forth relatives we never knew we had.  One was my father's brother, who recently shocked us with the revelation that he had held in trust, for almost 50 years, an oil painting of our mother, commissioned by the aforementioned dead father, and delivered to our uncle upon the occasion of our father's remarriage.  Most men, my brother and I agree, would have chucked the thing in the nearest dumpster.  Well, someone had to say "oh-yes-that-is-something-I-cannot-imagine-living-without" and we all knew that someone had to be me.  So we've joshed a bit about how outright freaky it would be to hang it over our recently acquired scuffed up, duct-taped upright piano.  (As it turned out, it was a beautiful portrait and I sent it to her daughter to return to her.)

And if you are unfamiliar with Wolfgang's Vaults, well, look it up -- a very cool site for those of us who may still have vinyl stashed in blue plastic milk cartons, and who, while no longer being able to afford concerts, adore the sound of live music.  (I neglected to tell you that my other beloved brother-unit was a bona fide Dead Head, having followed the band and made superb recordings of beaucoup concerts.  His silence in the face of my 5 Poem Demand is not surprising, as he takes things very seriously, or not at all.  His life, after all, has been "a long strange trip..."  Also, as eldest, he's perforce smartest.  But we've covered that, already.)

You can see the Deflective Tactics hard at work chez the Professor.  Who would believe that a former undergrad who drooled when given the chance to be in the same room as the earliest known transcription ofBeowulf would walk away from poetry based on sucky lyrics and worse liner notes?

And so I responded in bull-by-the-horns fashion:
On Sun, Feb 10, 2013 at 4:54 PM, The Professor @juno.com> wrote:
"Any concert recommendations from Wolfgang's Vaults?" 

not until you name a poem.

I may have been youngest but you can only play coy for so many decades, you know?  No longer do I play far, far right field ("a little farther, a little farther, and behind the fence would be best!") or when Seeker in Hide and Seek, discover that the brothers left for town hours ago....

He knew there'd be no value in making me cool my heels, so I received this seven minutes later:

Alright, but the only poems I can recall always start with "There once was a man from Nantucket..." So we have a standoff then! (I wish I had something short and pithy, almost poetic, to say...)

I went to bed with smug thoughts of progress, much as I used to think each year, on my birthday, that I was catching up in age to these reprobate siblings of mine.  Surely, one poem at least was within my grasp!
A mere four hours ago, I found this vibrating in my email box:

Poetry in motion--take a look on the Rolling Stone web site at the video clip of Queen performing at Live Aid. A rousing 25 minutes. I'd never seen that before. (Poetry in motion with mass adulation--just the sort of set up Dickinson was after! Not.) Never was a fan of the band but that was quite the "poetic" set. (Note how often I'm trying to fool you with the constant repetition.) 

Okay, I admit to feeling on the losing side of a subtly waged war of attrition.   I do think, however, that with the aid of near Silent Treatment, that while he may not give me the recommendation of a single poem, I may unnerve him just enough that he might write one.

PART FOUR:
[This story will conclude once I've received a sage response from the other Brother-Unit, who may be feeling tapped out, as his last gift box to me contained the complete works of e. e. cummings along with huge bags of homegrown and dried organic jalapeños and habaneros, sunny tomatoes, squash, and green peppers.  Never has poetry been so sweetly scented.  This dear gardening pilgrim, I hope I've mentioned, is a poet.  That means extra cunning.  Also inevitable self-deprecation.  He's a good'un, I say again.]


© 2013 L. Ryan

Sunday, June 23, 2013

UPDATED POST: do what you do...

UPDATE 6/23/2013

hello, you gorgeous loving readers, you!  i don't have it in me to write a whole new post about "my" caringbridge kids and families, but there are some updates some of you may appreciate.

sadly, ashley riemer died yesterday afternoon, but on her own terms -- at home, with her family.  her decline was rapid, such that some may call it a blessing.  she was up and about, even out shopping earlier in the week, and then on the 20th was brought low by pain.  hospice was ready, and her pain was managed.

she was elven; she was on the cusp of womanhood;  she was brave, ardent, angry, faithful.  she knew long before the blood tests and the bone marrow biopsies that this was the last fight.  i'd love to have known her at 90 -- i imagine blond and pink pig tails, cherry red lipstick and those cutting, pixie eyes.

her mom wrote, at the end of her post notifying everyone of her passing:  "Ashley donated her body to Georgetown Medical University as she was a lifelong learner."  damn straight.  good on you, ms. ashley.

brayden is on his make-a-wish trip, and enjoying it thoroughly.  like so many of my heroes, he is keeping those he loves and who love him, in laughter, no matter what.  his mom, maranda, writes:
I hope you all have had a nice week. I am sorry I have not updated, we have been so busy. The boys go, go ,go and then they drop. Brayden is totally in love with Blue Skies. He now is asking me to buy him, a jacuzzi bath tub- which he does not think would be too expensive. He also wants a golf cart- which he said should probably only cost about 5 dollars. 
brayden and his buddy nolan (nolan had to be admitted yesterday
for pneumonia, so good thoughts for brayden's best bud)


that's the end of this update.  i've discovered that crying clears up my vision much longer than eye drops.  keep brayden close to your heart, and ms. hannah, too, as she is in the midst of the planned destruction of her immune system prior to receiving what the whole darned world hopes is a life-saving bone marrow transplant, the gift of an anonymous lovely, adorable man in europe.  her mom updated this morning:

One week down in the BMT. Hannah's doing better thanks to Reglan/Benadryl & Zofran. She will get Cytoxan and ATG today. Please continue to pray she tolerates with no/minimal side effects. 

END OF UPDATE... thanks for tolerating my lazy blogging.

********************************************************************************



To begin with, and this is especially important for those of you visiting the blog for the first time, I found the doggone ankle brace.  Rather, Fred found it.  There are certain loads of laundry too heavy for me to transfer to the dryer, so he's frequently in receipt of the cryptic request, "Please transfer." Well, as he transferred one bedspread, guess what fell out, now not only a boon to a cracked ankle but also sweet smelling and spotless?  Yes, the thing that mashes all those plates, pins, and screws back into non-jostling positions.

The other thing a new visitor to the blog should know is that I (Retired Educator, aka profderien, alter ego of one Bianca Castafiore, the famed Milanese Nightingale -- oh just read "About this Blog" over in the right hand margin...).  Hellfire. Choo?  Train of thought?  Ah, yes.  I follow, at any given time, four pediatric cancer patients, patients that are in the beginnings, middlings, and endings of their journey's trek.  My means of following them is respectful and done primarily through a wonderful creation and organization called CaringBridge.org.  Support them if you can, and definitely check them out.  Remember that CaringBridge is there should your family ever suffer a medical crisis or catastrophe and need a means to communicate news to family and friends -- as well as to blog and vent, and cry and beg for prayers, and send complete strangers into whirling dervishes of ecstasy the day you are declared NED -- No Evidence of Disease.

But give it some thought.  For parents with kids given tough diagnoses, it's generally not a good sign for there to be extensive or regular blogging and journaling on CaringBridge.  Who'd have time, what with time proved so precious, and the days being near perfect now that the little ones are getting better?

All of which means that bad news is coming in, thus far, in twos.  I'm bewitched into the "it comes in threes" belief, and am waiting for the third bit of sadness.

In the middle of it all, great joy!  For Kate McRae, another completely clean MRI of both brain and spine.  "Miracle" is not much in my vocabulary -- you'll note it's even set aside here with the embracing arms of quotation marks.  This may be one, though.  There's no way this child should be alive, and as untouched by the ravages of the chemo and radiation as she is.  Oh, she was touched -- there are struggles, daily, and sadness at what she cannot do that she once could, but she's ALL there, is Miss Kate McRae.  She is every bit herself, and we're better as a species for it.

Kate McRae
Why don't the doctors listen to the mothers?  Or are there so many mothers tugging at the pediatric oncologist's hearts, telling them they "know" something is wrong, the cancer is back.  They "know" it but the protocol for the chemo, or the radiation, or the study, or the only schedule that insurance will pay for... is every 3 months, or sometimes even six.

Maranda has been struggling for so long now, her son Brayden cruelly afflicted with Metastatic Anaplastic Medulloblastoma.  He has relapsed several times.  And now has again.  I am trying to arrange a meeting with her, as we both live southwest of the Lone Alp, but perhaps this is not the best time to pop in for a coffee.  She has a toddler, is a single, unemployed mom.

Anyway, for you to stare at, enjoy, and contemplate as you meditate and pray for Brayden, here is a recent photo of the little guy.  I love his face.  It's grown up but it's tricky.  I bet he's a trickster... Peace on you, Brother Brayden, and on your mom Maranda, and on his favorite little person, his brother Mason.



Now, I do have a thing or two to say about Brayden and Maranda.  They treat Maranda, it sounds like to moi, somewhat badly as she struggles to get to the clinic as scheduled, without daycare for Mason, and having been pegged an overanxious mother.  She asked them repeatedly to move up the MRI and was pretty rudely brushed off, with suggestions for therapy for anxiety or some psycho-crapo get-her-off-my-back shit.  The day of the MRI, same day as Kate's, his oncologist was out of town.  After they got home, Brayden, who has trouble controlling his bowels, needed changing and Maranda set about doing that... and in the process, his leg bent the wrong way, and broke, badly.  So back they went to the hospital... and she exhausted, and he in pain, and she could not stop worrying about the MRI results, even with the drama of the broken leg.

So a nurse finally prints out the MRI report and hands it to her.

That's how she discovers Brayden has indeed relapsed, and that's how that nurse got herself a few precious minutes of not being stressed out by Brayden's Mom and her worry-wart ways.

Maranda is smart as a whip but waited for the oncologist's return, and her phone call.  Today.  Monday.


Brayden's cancer is back.Dr A called me this afternoon. I will be going over options with her tomorrow, she is even calling St Jude's and MD Anderson, please keep praying for God to heal Brayden. I don't want just a little longer here with Brayden. I want a lot longer and I know that's not promised to anyone but if you could all please pray for that I would really appreciate that.

Jeez life is painful sometimes. It is worth it though, I feel like my heart is broken. I will update tomorrow with whatever treatment is decided.

The other person who is in decline is no longer a child.  She had leukemia as a kid, and relapsed once.  Then, last year, first year of college, it came back.  She only qualified for a certain highly experimental protocol, and I think she knew from the beginning of this latest round in the fight, this last trek as a pilgrim, that this was going to be her death.  But it is coming now so fast and furious that my heart breaks at the thought that she might not be ready.  Which is pretty freaking presumptuous of me.

All I can do is show you the picture that made me fall in love with her, and tell you that Ashley is now suddenly on hospice care and in severe pain.  She is from a very religious and faith-driven family and community, and I hope that is a source of immense and unending comfort.  Throughout the past months, she's pitched a fit to be able to attend her Japanese classes, and has kept the state of her coiffure right where it should be -- at the forefront of everything.  She's a beautiful nymph. You'll see.  You'll fall in love, too.





Ashley Riemer, September 2012I write tonight with the news of the biopsy results from last week. Ashley's cancer in her bone marrow is showing 70%. This is very high and alarming. Ashley is now receiving Hospice care for pain. 





Ashley Riemer, May 2013



Prayer of Pan Cogito – Traveller

Lord
Thank you for creating the world beautiful and of such variety
And also for allowing me in your inexhaustible goodness
To visit places which were not the scene of my daily torments

- for lying at night near a well in a square in Tarquinia while the swaying
bronze declared from the tower your wrath and forgiveness

and a little donkey on the island of Corcyra sang to mi from
its incredible bellowing lungs the landscape’s melancholy

and in the very ugly city of Manchester I came across
very good and sensible people

nature reiterated her wise tautologies the forest was
forest the sea was sea and rock was rock

stars orbited and things were as they should be – Jovis omnia plena

- forgive me thinking only of myself when the life of
others cruel and irreversible turned round me like the huge
astrological clock in the church at Beauvais

for being too cowardly and stupid because I did not understand
so many things

and also forgive me for not fighting for the happiness of
poor and vanquished nations and for seeing only moonrise and museums
- thank you for the works created to glorify you which
have shared with me part of there mystery so that in gross conceit

I concluded that Duccio Van Eyck Bellini painted for me too

and likewise the Acropolis which I had never fully understood
patiently revealed to me its mutilated flesh

- I pray that you do not forget to reward the white-haired old
man who brought me fruit from his garden in the bay of the island of Ithaca

and also the teacher Miss Hellen on the isle of Mull whose
hospitality was Greek or Christian and who ordered light
to be placed in the window facing Holy Iona so that human
lights might greet one another

and furthermore all those who had shown me the way and said
kato kyrie kato

and that you should have in your care the Mother from Spoleto
Spiridion from Paxos and the good student from Berlin who
got me out of a tight spot and later, when I unexpectedly
ran into him in Arizona, drove me to Grand Canyon which
is like a hundred thousand cathedrals standing on their heads

- grant O Lord that I may forget my foolish and very weary
persecutors when the sun sets into the vast uncharted
Ionian sea

that I may comprehend other men other tongues other suffering
and that I be not stubborn because my limitations are
without limits

and above all that I be humble, that is, one who sees
one who drinks at the spring

thank you O Lord for creating a world very beautiful and varied

and if this is Your temptation I am tempted for ever
and without forgiveness 






Daisy Merrick


Sunday, December 16, 2012

orryvoyer:: to stem the endless tide::orryvoyer


as the shell casings of dead children, educators, and gunman -- today of newtown, connecticut -- ricocheted around my brain, my hands strayed over the bookcases, and landed here. another occasion to contribute to the ruination of copyright protections.  i don't think white would have minded, much. if you're unfamiliar with his Book of Merlyn, please, go and buy a copy.


here is the wikipedia "plot summary":  
The book opens as King Arthur prepares himself for his final battle. Merlyn reappears to complete Arthur's education and discover the cause of wars. As he did in The Sword in the Stone, Merlyn again demonstrates ethics and politics to Arthur by transforming him into various animals.

The last chapter of the book takes place only hours before the final battle between King Arthur and his son and nephew Mordred. Arthur does not want to fight after everything that he has learned from Merlyn. He makes a deal with Mordred to split England in half. Mordred accepts. During the making of this deal, a snake comes upon one of Mordred's soldiers. The soldier draws his sword. The opposing side, unaware of the snake, takes this as an act of betrayal. Arthur's troops attack Mordred's, and both Arthur and Mordred die in the battle that follows.


Guenever joins a convent, and remains there till death. Lancelot becomes a hermit and dies a hermit. His last miracle was making the room that he died in smell like heaven.








"Mv FATHER made me a wooden castle big enough to get into, and he fixed real pistol barrels beneath its battlements to fire a salute on my birthday, but made me sit in front the first night—that deep Indian night—to receive the salute, and 1, believing I was to be shot, cried."
Throughout his life White was subject to fears: fears from without—a menacing
psychopathic mother, the prefects at Cheltenham College "rattling their canes," poverty, tuberculosis, public opinion; fears from within—fear of being afraid, of being a failure, of being trapped. He was afraid of death, afraid of the dark. He was afraid of his own proclivities, which might be called vices: drink, boys, a latent sadism. Notably free from fearing God, he was basically afraid of the human race. His life was a running battle with these fears, which he fought with courage, levity, sardonic wit, and industry
. -- Prologue, Sylvia Townsend Warner




The magician stood up, looking at his ancient pupil in perplexity. He twisted his beard into
several rat tails, put the corners in his mouth, twirled his moustachios, and cracked his finger
joints. He was frightened of what he had done to the king, feeling as if he were trying to
revive a drowned man with artificial respiration, who was nearly too far gone. But he was not
ashamed. When you are a scientist you must press on without remorse, following the only
thing of any importance, Truth.

Later he asked quietly, as if he were calling somebody who was asleep: "Wart?"

There was no reply.

"King?"

The bitter answer was: "Le roy s'advisera."

It was worse than he had feared. He sat down, took the limp hand, and began to wheedle.

"One more try," he asked. "We are not quite done."

"What is the use of trying?"

"It is a thing which people do."

"People are dupes, then."

The old fellow replied frankly: "People are dupes, and wicked too. That is what makes it
interesting to get them better."

His victim opened his eyes, but closed them wearily.

"The thing which you were thinking about before I came, king, was true. I mean about
Homo ferox. But hawks are ferae naturae also: that is their interest."

The eyes remained closed.

"The thing which you were thinking about... about people being machines: that was
not true. Or, if it is true, it does not signify. For if we are all machines ourselves, then there
are none to bother about."

"I see."




homo ferox, The Book of Merlyn, T.H. White




"We know the objections," he said. "The idea that it is useful might be considered a little
more. If there is some necessity for Might, why is the committee ready to stop it?"

"Sir, the committee is attempting to trace the physiological basis, possibly of a pituitary or
adrenal origin. Possibly the human system requires periodical doses of adrenalin, in order
to remain healthy. (The Japanese, as an instance of glandular activity, are said to eat large
quantities offish, which, by charging their bodies with iodine, expands their thyroids and
makes them touchy.) Until this matter has been properly investigated the subject remains
vague, but the committee desires to point out that the physiological need could be supplied
by other means. War, it has already been observed, is an inefficient way of keeping down
the population: it may also be an inefficient way of stimulating the adrenal glands through
fear."

"What other ways?"

"Under the Roman Empire, the experiment of offering bloody spectacles in the circus was
attempted as a substitute. They provided the Purgation which Aristotle talks about, and some such alternative might be found efficient.  Science, however, would suggest more radical cures. Either the glandular deficiency might be supplied by periodical injections of the whole population with adrenalin—or with whatever the deficiency may prove to be—or else some form of surgery might be found effective.  Perhaps the root of war is removable, like the appendix."

"We were told that war is caused by National Property: now we are told that it is due to a
gland."

"Sir, the two things may be related, though they may not be consequent upon one another.
For instance, if wars were solely due to national property, we should expect them to continue
without intermission so long as national property continued: that is, all the time. We find,
however, that they are interrupted by frequent lulls, called Peace, It seems as if the human
race becomes more and more comatose during these periods of truce, until, when what you
may call the saturation-point of adrenalin deficiency has been reached, it seizes upon the first handy excuse for a good shot of fear-stimulant. The handy excuse is national property.
Even if the wars are dolled up as religious ones, such as crusades against Saladin or the
Albigensians or Montezuma, the basis remains the same. Nobody would have troubled to
extend the benefits of Christianity to Montezuma, if his sandals had not been made of gold,
and nobody would have thought the gold itself a sufficient temptation, if they had not been
needing a dose of adrenalin."

"You suggest an alternative like the circus, pending the investigation of your gland. Have you
considered it?"

Archimedes giggled unexpectedly.

"Merlyn wants to have an international fair, Sir. He wants to have a lot of flip-flaps and giant
wheels and scenic railways in a reservation, and they are all to be slightly dangerous, so as
to kill perhaps one man in a hundred. Entrance is to be voluntary, for he says that the one
unutterably wicked thing about a war is conscription. He says that people will go to the fair of
their own freewill, through boredom or through adrenalin deficiency or whatever it is, and that
they are likely to feel the need for it during their twenty-fifth, thirtieth, and forty-fifth years. It is
to be made fashionable and glorious to go. Every visitor will get a commemorative medal,
while those who go fifty times will get what he calls the D.S.O. or the V.C. for a hundred
visits."

The magician looked ashamed and cracked his fingers.

"The suggestion," he said humbly, "was more to provide thought, than to be thought of."

"Certainly it does not seem a practical suggestion for the present year of grace. Are there
no panaceas for war, which could be used in the meantime?"

"The committee has suggested an antidote which might have a temporary effect, like soda
for an acid stomach. It would be of no use as a cure for the malady, though it might alleviate
it. It might save a few million lives in a century."

"What is this antidote?'

"Sir, you will have noticed that the people who are responsible for the declaration and the
higher conduct of wars do not tend to be the people who endure their extremes. At the battle
of Bedegraine Your Majesty dealt with something of the same sort. The kings and the
generals and the leaders of battles have a peculiar aptitude for not being killed in them. The
committee has suggested that, after every war, all the officials on the losing side who held a
higher rank than colonel ought to be executed out of hand, irrespective of their war-guilt. No
doubt there would be a certain amount of injustice in this measure, but the consciousness
that death was the certain result of losing a war would have a deterrent effect on those who
help to promote and to regulate such engagements, and it might, by preventing a few wars,
save millions of lives among the lower classes. Even a Fiihrer like Mordred might think twice
about heading hostilities, if he knew that his own execution would be the result of being
unlucky in them."

"It seems reasonable."

"It is less reasonable than it seems, partly because the responsibility for warfare does not lie
wholly with the leaders. After all, a leader has to be chosen or accepted by those whom he
leads. The hydra-headed multitudes are not so innocent as they like to pretend. They have
given a mandate to their generals, and they must abide by the moral responsibility."

"Still, it would have the effect of making the leaders reluctant to be pushed into warfare by
their followers, and even that would help."

"It would help. The difficulty would lie in persuading the leading classes to agree to such a convention in the first place. Also, I am afraid that you will find there is always a type of maniac, anxious for notoriety at any price, or even for martyrdom, who would accept the pomp of leadership with even greater alacrity because it was enhanced by melodramatic penalties. The kings of Irish mythology were compelled by their station to march in the forefront of the battle, which occasioned a frightful mortality among them, yet there never seems to have been a lack of kings or battles in the history of the Green Isle."

"What about this new-fangled Law," asked the goat suddenly, "which our king has been
inventing? If individuals can be deterred from murder by fear of a death penalty, why cannot
there be an international law, under which nations can be deterred from war by similar
means? An aggressive nation might be kept at peace by the knowledge that, if it began a
war, some international police force would sentence it to dispersal, by mass transportation
to other countries for instance."

"There are two objections to that. First, you would be trying to cure the disease, not to
prevent it. Second, we know from experience that the existence of a death penalty does not
in fact abolish murder. It might, however, prove to be a temporary step in the right direction."

The old man folded his hands in his sleeves, like a Chinaman, and looked round the council
table, doggedly, waiting for further questions. His eyes had begun to discharge their watch.

"He has been writing a book called the Ubellus Merlini, the Prophecies of Merlyn," continued Archimedes wickedly, when he saw that this subject had been concluded, "which he had intended to read aloud to Your Majesty, as soon as you arrived."

"We will hear a reading."

Merlyn wrung his hands.

"Sir," he said. "It is mere fortune-telling, only gypsy tricks. It had to be written because there
was a good deal of fuss about it in the twelfth century, after which we are to lose sight of it
until the twentieth. But, oh Sir, it is merely a parlour game—not worth Your Majesty's
attention at present."

"Read me some part of it, none the less."

So the humiliated scientist, all of whose quips and quiddities had been knocked out of him
in the last hour, fetched the burnt manuscript from the fender and handed round a collection
of such slips as were still legible, as if it had been a parlour game in earnest. The animals
read them out in turn, like mottos from crackers, and this is what they said:

"God will provide, the Dodo will remark."

'The Bear will cure his headache by cutting off his head—but it will leave him with a sore
behind."

"The Lion will lie down with the Eagle, saying, At last all the animals are united! But the Devil
will see the joke."

"The Stars which taught the Sun to rise must agree with him at noon—or vanish."

"A child standing in Broadway will cry, Look mother, there is a man!"

"How long it takes to build Jerusalem, the spider will say, pausing exhausted at his web on
the ground floor of the Empire State Building."

"Living-space leads to space for the coffin, observed the Beetle."

"Force makes force."

"Wars of community, county, country, creed, continent, colour. After that the hand of God, if
not before."

"Imitation before action will save mankind."

"The Elk died because it grew its horns too big."

"No collision with the moon was required to exterminate the Mammoth."

"The destiny of all species is extinction as such, fortunately for them."

There was a pause after the last motto, while the listeners thought them over.

"What is the meaning of the one with the Greek word?"

"Sir, a part of its meaning, but only a small part, is that the one hope for our human race
must lie in education without coercion. Confucius has it that: In order to propagate virtue to the world, onemust first rule one's country. In order to rule one's country, one must first rule one's family. In order to rule one's family, one must first regulate one's body by moral training.  In order to regulate one's body, one must first regulate one's mind. In order to regulate the mind, one must first be sincere in one's intentions. In order to be sincere in one's intentions, one
must first increase one's knowledge."

"I see."

"Have the rest any relevant meaning?" added the king.

"None whatever."

"One further question before we rise. You have said that politics are out of order, but they
seem so closely tied to the question of warfare that they must be faced to some extent. At an
earlier stage you claimed to be a capitalist. Are you sure of these views?"

"If I said so, Your Majesty, I did not mean it. Badger was talking at me like a communist of
the nineteen-twenties, which made me talk like a capitalist in self-defence. I am an
anarchist, like any other sensible person. In point of fact the race will find that capitalists and
communists modify themselves so much during the ages that they end by being
indistinguishable as democrats: and so will the fascists modify themselves, for that matter.
But whatever may be the contortions adopted by these three brands of collectivism, and
however many the centuries during which they butcher each other out of childish ill-temper,
the fact remains that all forms of collectivism are mistaken, according to the human skull.
The destiny of man is an individualistic destiny, and it is in that sense that I may have implied
a qualified approval of capitalism, if I did imply it. The despised Victorian capitalist, who did at least allow a good deal of play to the individual, was probably more truly futuristic in his politics
than all the New Orders shrieked for in the twentieth century. He was of the future, because
individualism lies in the future of the human brain. He was not so old-fashioned as the
fascists and communists. But of course he was considerably old-fashioned for all that, and
that is why I prefer myself to be an anarchist: that is, to be a little up-to-date. The geese are
anarchists, you remember. They realise that the moral sense must come from inside, not
from outside."

"I thought," said the badger plaintively, "that communism was supposed to be a step
towards anarchy. I thought that when communism had been properly achieved the state
would wither away."

"People have told me so, but I doubt it. I cannot see how you may emancipate an individual
by first creating an omnipotent state. There are no states in nature, except among
monstrosities like the ants. It seems to me that people who go creating states, as Mordred
is trying to do with his Thrashers, must tend to become involved in them, and so unable to
escape. But perhaps what you say is true. I hope it is. In any case let us leave these dubious
questions of politics to the dingy tyrants who look after them. Ten thousand years from now it
may be time for the educated to concern themselves with such things, but meanwhile they
must wait for the race to grow up. We for our part have offered a solution this evening to the special problem of force as an arbiter: the obvious platitude that war is due to
national property, with the rider that it is stimulated by certain glands. Let us leave it at that
for the present, in God's name."

The old magician swept his notes away with a trembling hand. He had been deeply
wounded by the hedgehog's earlier criticisms, because, in the secrecy of his heart, he loved
his student dearly. He knew now, since the royal hero had returned victorious in his choice,
that his own wisdom was not the end. He knew that he had finished his tutorship. Once he
had told the king that he would never be the Wart again: but it had been an encouraging thing to say: he had not meant it. Now he did mean it, now knew that he himself had yielded
place, had stepped down from the authority to lead or to direct. The abdication had cost him
his gaiety. He would not be able to rant any more, or to twinkle and mystify with the flashing
folds of his magic cloak. The condescension of learning was pricked in him. He was feeling
ancient and ashamed.

The old king, whose childhood had vanished also, toyed with a slip left on the table. He was
at his trick of watching his hands, when in abstraction. He folded the paper this way, that
way, carefully, and unfolded it. It was one of Merlyn's notes for the card-index, which badger
had muddled with the Prophecies: a quotation from a historian called Friar Clynn, who had
died in 1348. This friar, employed as the annalist of his abbey to keep the historical records,
had seen the Black Death coming to fetch him—possibly to fetch the whole world, for it had killed a third of the population of Europe already. Carefully leaving some pieces of blank parchment with the book in which he was to write no longer, he had concluded with the following message, which had once awakened Merlyn's strange respect. 

"Seeing these many ills," he had written in Latin, "and as it were the whole world
thrust into malignancy, waiting among the dead for death to come to me, I have put into
writing what I have truthfully heard and examined. And, lest the writing should perish with the
writer or the work fail with the workman, I am now leaving some paper for the continuation of
it—in case by any chance a man may remain alive in the future, or any person of the race of
Adam may escape this pestilence, to carry on the labour once begun by me."

The king folded it neatly, measured it on the table. They watched him, knowing he was about
to rise and ready to follow his example.

"Very good," he said. "We understand the puzzle."

He tapped the table with the paper, then got to his feet.

"We must return before the morning."

The animals were rising too. They were conducting him to the door, crowding round him to
kiss his hand and bid farewell. His now retired tutor, who must conduct him home, was
holding the door for him to pass. Whether he was a dream or not, he had begun to flicker, as
had they all. They were saying "Good success to Your Majesty, a speedy and successful
issue."

He smiled gravely, saying: "We hope it will be speedy."

But he was referring to his death, as one of them knew.

"It is only for this time, Majesty," said T. natrix. "You remember the story of St. George, and
Homo sapiens is like that still. You will fail because it is the nature of man to slay, in
ignorance if not in wrath. But failure builds success and nature changes. A good man's
example always does instruct the ignorant and lessens their rage, little by little through the
ages, until the spirit of the waters is content: and so, strong courage to Your Majesty, and a
tranquil heart."

He inclined his head to the one who knew, and turned to go.

At the last moment a hand was tugging at his sleeve, reminding him of the friend he had
forgotten. He lifted the hedgehog with both hands under its armpits, and held it at arm's
length, face to face.

"Ah, tiggy," he said. "Us have thee to thank for royalty. Farewell, tiggy, and a merry life to
thee and thy sweet songs."

But the hedgehog paddled its feet as if it were bicycling, because it wanted to be put down.
It tugged the sleeve again, when it was safe upon the floor, and the old man lowered his ear
to hear the whisper.

"Nay, nay," it mentioned hoarsely, clutching his hand, looking earnestly in his face. "Say not
Farewell."

It tugged again, dropping its voice to the brink of silence.

"Orryvoyer," whispered the urchin. "Orryvoyer."

WELL, WE HAVE REACHED IT AT LAST, the end of our winding story.
Arthur of England went back to the world, to do his duty as well as he could. He called a
truce with Mordred, having made up his mind that he must offer half his kingdom for the sake
of peace. To tell the truth, he was prepared to yield it all if necessary. As a possession it had
long ceased to be of value to him, and he had come to know for sure that peace was more
important than a kingdom. But he felt it was his duty to retain a half if he could, and it was for
this reason: that if he had even half a world to work on, he might be able still to introduce, in
it, the germs of that good sense which he had learned from geese and animals.

The truce was made, the armies drawn up in their battles, face to face. Each had a standard
made from a ship's mast set on wheels, at the top of which a small box held the consecrated Host, while, from the masts, there flew the banners of the Dragon and the Thistle. The knights of Mordred's party were dressed in sable armour, their plumes were sable also, and, on their arms, the scarlet whip of Mordred's badge glared with the sinister tint of blood. Perhaps they looked more terrible than they felt.

It was explained to the waiting ranks that none of them must make a hostile demonstration,
but all must keep their swords in sheath. Only, for fear of treachery, it was told that they might
charge to rescue, if any sword was seen unharnessed at the parley.

Arthur went forward to the space between the armies with his staff, and Mordred, with his
own staff in their black accoutrements, came out to meet him. They encountered, and the old
king saw his son's face once again. It was taut and haggard.  He too, poor man, had strayed beyond Sorrow and Solitude to the country of Kennaquhair;  but he had gone without a guide and lost his way.

The treaty was agreed on, to the surprise of all, more easily than had been hoped. The king
was left with half his realm. For a moment joy and peace were in the balance.

But, at that knife-edge of a moment, the old Adam reared itself in a different form. The feudal
war, baronial oppression, individual might, even ideological rebellion: he had settled them
all in one way or another, only to be beaten on the last lap now, by the episodic fact that
man was a slayer by instinct.

A grass-snake moved in the meadow near their feet, close to an officer of Mordred's staff.
This officer stepped back instinctively and swung his hand across his body, his armlet with
the whip shewing for a second's flash. The bright sword flamed into being, to destroy the so-called
viper. The waiting armies, taking it for treachery, raised their shout of rage. The lances on
both sides bowed to rest. 






And, as King Arthur ran towards his own array, an old man with white hair trying to stem the endless tide, holding out the knuckled hands in a gesture of pressing them back, struggling to the last against the flood of Might which had burst out all his life at a new place whenever he had dammed it, so the tumult rose, the war-yell sounded, and the meeting waters closed above his head.

Lancelot arrived too late...