Saturday, January 30, 2010

$20, 000


The only update I can find this week in the case of missing 11-year-old Lindsey Baum? The reward for information has doubled to $20,000. Read all associated posts from this blog: here.

FBI ramping up search for missing McCleary girl
By Keith Eldridge & KOMO Staff

McCLEARY, Wash. -- Officials have announced a larger reward for information in the disappearance of a young girl missing since last summer, and investigators are planning a renewed search effort.

Grays Harbor County Undersheriff Rick Scott on Wednesday said a reward of $20,000 is available for anyone who helps find Lindsey Baum, who vanished June 26 after leaving a friend's house to walk home.

"I want to reinforce to the community that we're not going anywhere," Scott said. "This case is a long ways from being at a dead end. We have continued to make this case a priority."

The new money, which ups the reward from the previous offer of $10,000, is being provided by the Federal Bureau of Investigation, Scott said.

Lindsey was 10 years old when she vanished; now she'd be 11, and her family is holding out hope that someone will come forward with information.

"Our world is standing still," said Lindsey's mom, Melissa Baum. "It's hard to stand here and watch the entire world keep going on when we're just frozen in time waiting for her to come home.

"If there's anybody who knows anything, even if you suspect something, if you would just please call law enforcement."

Investigators have received hundreds of tips, but no substantial leads. Volunteer searches have turned up nothing but frustration.

Over the last six months, Lindsey's mother and the police chief appeared on a national TV programs to urge anyone with information to call investigators, and Lindsey was even featured on the cover of People Magazine.

FBI Assistant Special Agent in Charge Ron Twersky said a new group of investigators has been looking at the case to provide an outside review and offer suggestions on how to re-start the search for Lindsey.

"Because Lindsey's missing, we felt it was right to take a 'fresh eyes' approach and simply look at what's been done," Twersky said.

"The work has been extensive, but we just need that break. We know that break is out there, and so that's what this review and this effort is all about."

Twersky said agents will be going over old ground, searching many of the areas they looked at before and talking with many of the people who have already been interviewed.

The FBI will also be employing several new tactics, Twersky said, but he would not detail what those efforts would entail.

Lindsey's mom, meanwhile, is not giving up.

"Lindsey if you can hear me, I love you and I'm not going to stop looking for you, I swear," she said. "I will bring you home."

---

Anyone with information is asked to call 866-915-8299

Brush-evoked allodynia as a predictor of SCS success in CRPS

European Journal of Pain, Volume 14, Issue 2, Pages 164-169 (February 2010)

Brush-evoked allodynia predicts outcome of spinal cord stimulation in Complex Regional Pain Syndrome type 1

Frank van Eijs, Helwin Smits, José W. Geurts, Alfons G.H. Kessels, Marius A. Kemler, Maarten van Kleef, Elbert A.J. Joosten, Catharina G. Faber

ABSTRACT

Background
Spinal cord stimulation (SCS) has proven to be an effective however an invasive and relatively expensive treatment of chronic Complex Regional Pain Syndrome type 1(CRPS-1). Furthermore, in one third of CRPS-1 patients, SCS treatment fails to give significant pain relief and 32–38% of treated patients experience complications. The aim of the current study was to develop effective prognostic factors for prediction of successful outcome of SCS.

Methods and results
The study population consisted of 36 chronic CRPS patients enrolled in a randomized controlled trial of SCS efficacy. We analyzed various prognostic factors in the group of patients treated with SCS and compared baseline values of possible predictors of outcome in the successfully treated and the not successfully treated group. Success was defined as Patient Global Perceived Impression of Change score of at least “much improved” and pain reduction of at least 2.5 on a visual-analogue scale (VAS score 0–10). Univariate analyses showed that patient age, duration of the disease, localization of the disease, intensity of the pain, and the presence of mechanical hypoesthesia did not predict SCS success. The mean and maximum value of brush-evoked allodynia proved to be statistically significant predictors of outcome. Using Receiver-Operating Characteristic (ROC) curve analyses of maximum allodynia values, the diagnostic sensitivity for successful SCS was 0.75 and the specificity 0.81.

Conclusion
Brush-evoked allodynia may be a significant negative prognostic factor of SCS treatment outcome after 1 year in chronic CRPS-1.

Keywords: Spinal cord stimulation (SCS), Complex Regional Pain Syndrome type 1 (CRPS-1), Brush-evoked allodynia, Mechanical hypoesthesia, Prognostic factors

Corresponding author -- Address: Department of Anesthesiology and Pain Management, Maastricht University Medical Centre, Mail Box 5800, 6202 AZ Maastricht, The Netherlands. Tel.: +31 043 3877673.

STUPID QUESTION TIME: Why the insistence on CRPS Type *One* in this study, and most others, too? Is there a possibility that there exist different results for CRPS Type 2?

Sunday, January 24, 2010

The Birthday Gift

Tumbleweed has done it again.

It was pouring rain Friday when the postman plopped the package down on the drawbridge. I thought about letting it sit there and get rained on, thought about how much my gut hurt and how I really wanted to stay curled up, warm, and dry.

And then I thought: "Ah, but what if it is a birthday gift?" I loves my birthday gifties!

However, my Brother-Units had both been sent strict instructions earlier in the week, on January 18. This is the email to Brother Tumbleweed, who goes by "TW":

hullo tw --

i'm in a low, low place, and waving at you from down here, hoping you're much better than "well."

sam-i-am (a cat) is helping me write this. he has become jealous of the keyboard, jealous of the other felines, just downright jealous.

here's the deal: i am still (and will be for a while) sated from your christmas gift... but i DO have a birthday coming up. that would be the 24th, next sunday.

ever following the lead of miss manners, i am writing to tell you that you had better send me a god-damned birthday card/letter. there will be consequences should you fail to do so. timeliness is not an issue, however. indeed, brother bob has been known to mail my b'day cards in july, calling them "early."

should you, however, try to gift me? big trouble, big problems, you're likely to wish you'd never been born. ha!

and so, dear one, in conclusion: always remember -- and never forget -- that a birthday card is de rigueur, oh so de rigueur.

i shall be waiting by the mailbox.

all my love, and hope --
Retired Educator, prof-de-rien

fred would say "hey," but after deftly tossing a huge bowl of popcorn into the air while performing fancy footwork in an effort not to fall and go boom (he tripped over a wire)? he was banished from the bedroom for saying, "fuck you, shut up!" when i attempted to be of assistance. his banishment will end... shortly. he'd probably say nice things -- he likes you, remember -- but you'll just have to do without until the apology-angel lights upon his shoulder, and gives him an everloving clue...


Curious to know the origin of the box sitting out in the rain, I dragged My Sorry Self down this cold, stony corridor and that gilt and glitzy ballroom, through these medieval digs and those renaissance spaces, passing the postmodern but pausing for the romantic, and retrieved the rapidly disintegrating cardboard vessel.

I discovered TW's response to my email only after I opened his gift:

birthday gal-
if my card isn't there on saturday then look for it monday instead. (the 2-3 day delivery estimate straddled sunday)
good luck trying to out-stubborn a left-handed irish taurus.
congratulations one day early and howdies to fred.
--tw


These boxes of his have come to mean the world to me.

What follows is a list of the items contained in the Birthday Gift Box 2010. They are in no particular order:

1. Ken Kesey's Sometimes A Great Notion. I've never read it. The book flops opens to page 134 which happens to contain an explanation of the many personifications of Captain Marvel.

S.H.A.Z.A.M.

On the title page:

Sometimes I live in the country,
Sometimes I live in the town;
Sometimes I get a great notion
To jump into the river...an' drown.

[From the song, Good Night, Irene by Huddie Ledbetter and John Lomax]

2. Kesey's One Flew Over The Cuckoo's Nest. I am going to go out on a limb and say that Kesey was a major influence for TW, as this is the first literary repetition of the two boxes.

I can already hear the Chief, all chatty in his mind's eye: "They're out there. Black boys in white suits up before me to commit sex acts in the hall and get it mopped up before I can catch them..."

3. Okay, so this one brought tears to my eyes. It also served as the germ of the most fascinating conversation The Fredster and I have had in a good while. What is it? The Portable Medieval Reader: The Astonishing World of the Middle Ages brought to life for the modern reader through a rich variety of writings from four centuries... I tell you, that's a work of influence! I cannot remember when I was NOT familiar with it -- which makes me wonder whether TW showed it to me before he up and ran off...

Someone named Peter S. Rich used to own, and scribble in, this book. However, I know that it was a left-handed irish taurus who laughingly flagged this page: The Character and Customs of the Irish, by Giraldus Cambrensis of the Twelfth century. Shit, that shifty irish boy is probably Giraldus' reincarnation.

"I have considered it not superfluous to give a short account of the condition of this nation, both bodily and mentally; I mean their state of cultivation, both interior and exterior. This people are not tenderly nursed from their birth, as others are; for besides the rude fare they receive from their parents, which is only just sufficient for their sustenance, as to the rest, almost all is left to nature..."

Sometimes a book is like an old friend.

4. One birthday card, as politely requested above. The front of the card is from a painting by R. W. Hedge entitled "Symphony," which you, too, can enjoy: here. The cheery inner message is: Hope everything about your day is absolutely grand! Happy Birthday! And TW says, "here's to another successful trip around the sun..."


5. Paris Journal, Volume Three, 1965-1971 by Janet Flanner (Genêt), edited by William Shawn. This is part of the "Letter from Paris" series from the New Yorker. I am very much looking forward to this and cannot imagine why it wasn't included as part of the reader for that seminar I took on 1968. You remember, the seminar in which I was the only one doing the reading? It's not hard to feel like a Grad Student Rock Star in a situation like that. Eventually, J-J took to speaking only to me. Exciting times, exciting times.



A hell of a year for the human world, 1968. I see that on my birthday that year, she notes: The Seine is at flood level. She also relates the thrill of a half hour spent watching a "special weekend TV program called Un Certain Regard, aimed at careful listeners and at minds with serious curiosities... [that featured] the so-called father of structuralist anthropology -- Professor Claude Lévi-Strauss," then at the Collège de France. [pause while I undergo waves of frissons]



She begins her journaling for 1968 with a piece on M. Ingres, who "has come to fame again." There follows wonderful details about the painterly history of Le Bain Turc. [more frissons]





Ingres, long obsessed by the visual richness of the harem, was 82 when he painted Le Bain Turc.

6. One extra-large cotton teeshirt, red, with skull, crossed knife and fork, and the words: Eat the Rich.

7. The following CDs: Pavarotti in Central Park; Daniel Barenboim, Beethoven Sonaten; J. S. Bach Orchestral Suites 3 & 4, Christopher Hogwood, The Academy of Ancient Music; Vivaldi Concerti for viola d'amore, strings, and continuo; Paris Combo; Horowitz Plays Mozart; Claude Debussy, La Mer, Images, Los Angeles Philharmonic Orchestra;

8. A guide to hiking the Inner Canyon, Grand Canyon National Park. I can tell from just the feel of it... He loved it. I am going to use it as I travel through TW's photographs over at American Idyll.

9. [And I laugh with relief, as I had almost given this as a gift to him last year!] The Lost Explorer: Finding Mallory on Mount Everest by Conrad Anker and David Roberts. Okay, so I may have to work to find my interest in mountaineering literature...

10. The Portable Dorothy Parker! Beware oncoming wit.

11. CHESS BLUES -- Chicago and Memphis recordings by Leonard and Philip Chez (americanized to Chess) -- singers and artists who performed first, probably, at The Macomba, then made their way to Leonard's Aristocrat Records. This is an incredible collection: John Lee Hooker, Howlin' Wolf, Little Walter, Etta James, Hound Dog Taylor (to whom it is all dedicated).

12. Fred is going to snag this as soon as he sees it -- Sinatra: Vegas. Recordings from The Sands, Caesar's Palace, and The Golden Nugget.

Let me restate that: Fred saw it, Fred grabbed it, Fred has found religion.

13. The Complete In A Silent Way Sessions: Miles Davis

14. Canyons of the Colorado by Joseph Holmes, with text excerpted from The Exploration of the Colorado River and Its Canyons by John Wesley Powell. A book of photography and reflection.

15. The Clifton Chenier Anthology, Zydeco Dynamite

Clifton Chenier was the undisputed King of Zydeco music. By mixing Cajun and French two-steps and waltzes with blues, R&B and rock and roll, he created the infectious sound of modern zydeco. Chenier was famous for his flashy onstage gear of cape and crown (and natty gold tooth), but it was his creation of joyful, exuberant and highly danceable zydeco music that made him a legend.



16. 4 live cassette recordings of The Grateful Dead

It isn't often I feel complete, my gaps become openings and not wounds. Thank you, Tumbleweed.

Psyche and Soma, Those Crazy Kids!

Good news!

Because I have a really rotten case of first time diverticulitis, and am flirting with a perforated colon, I think I will turn off the boob tube, stop playing bridge, set aside the book... and do some writing. If nothing gets posted, well, at least the pile of drafts will be that much taller. But if nothing EVER gets posted, well, I guess that'll mean I either imploded, or exploded, or both.

This is crazy... Apparently, I had undiagnosed diverticulosis. But I eat beaucoup fiber! Seriously, with my history of small bowel obstructions that have required surgery [4 SBOs, 3 surgeries], you can bet your sweet bippy that I aim for 60 grams of fiber a day, roughly twice the RDA. That's what the last surgeon to unknot my guts recommended, back in 1996, and until last September, I had no problems. For some reason, I developed a partial obstruction that took over a week to resolve. The x-ray studies done then didn't show any diverticulosis... or if they did, it wasn't serious enough to mention.

I finally called Super Doc yesterday afternoon, despite my plans not to bother him until Monday. He started me on antibiotics and made depressing grumbling noises about how steroids thin the intestinal wall, about how much more I am at risk by virtue of being... me.

This is rather painful, this abscessing colon business. It's not the kind of pain one cannot tolerate, though, and I certainly don't need any pain medication to deal with it, as my normal regimen just about covers it... I guess it is more... scary? Is that the word, the attribute? Just knowing that the next sharp pain might be my intestinal wall, caving in?

Psyche, meet Soma.

(Those crazy kids!)

Oh, yes. On this day mumblemumble years ago, my mother demanded some pitocin so that I might be born on her birthday. I was so looking forward to cake but am settling for celebratory broth.

Oh... one more thing. I wasn't gonna say anything, but the topic keeps coming up since Marlinspike Hall, deep, deep in the Tête de Hergé (très décédé, d' ailleurs), is a secret MMA training camp for the Miniature SaraThunderToga ThickNecks of the Third Degree. As a fellow diverticulitis sufferer, I want to distance myself from recent remarks made by Professional Ingrate and Official StupidPerson, Brock Lesnar. Way to alienate half a continent, dood.

Thursday, January 21, 2010

Be 18: ThankYouVeryMuch!

There are so many things in the world that may offend you, why worry about one more?

Hey, wait a minute. Whose blog is it, anyway?

I think this is hilarious:





fresca, if you are out there... on my growing list of "stuff to blog about"? another post on the search terms that bring me my beloved readership, a subcategory of which will be "search terms related to wordle challenges." the latest? "prostitutes in vevay switzerland"

Wednesday, January 20, 2010

Monday, January 18, 2010

Mercedes Sosa y Gracias a la vida de Violeta Parra

Usually, in this mood, I would turn to TW, the Poet/Photographer/Bookie Brother-Unit, and his visions of The River and The Canyon. I would likely call the resultant electronic postcard "when-a-sister-needs-a-brother needs-a-god."

But something there is, tonight, that wants a humming, thrilling, singing woman, La Negra, a strong woman, unrelated.

How did I not know that Mercedes Sosa died last October?




Gracias a la vida que me ha dado tanto
me dio dos luceros que cuando los abro
perfecto distingo lo negro del blanco
y en el alto cielo su fondo estrellado
y en las multitudes el hombre que yo amo

Gracias a la vida que me ha dado tanto
me ha dado el oído que en todo su ancho
graba noche y día grillos y canarios
martirios, turbinas, ladridos, chubascos
y la voz tan tierna de mi bien amado

Gracias a la vida que me ha dado tanto
me ha dado el sonido y el abecedario
con él, las palabras que pienso y declaro
madre, amigo, hermano
y luz alumbrando la ruta del alma del que estoy amando

Gracias a la vida que me ha dado tanto
me ha dado la marcha de mis pies cansados
con ellos anduve ciudades y charcos
playas y desiertos, montañas y llanos
y la casa tuya, tu calle y tu patio

Gracias a la vida que me ha dado tanto
me dio el corazón que agita su marco
cuando miro el fruto del cerebro humano
cuando miro el bueno tan lejos del malo
cuando miro el fondo de tus ojos claros

Gracias a la vida que me ha dado tanto
me ha dado la risa y me ha dado el llanto
así yo distingo dicha de quebranto
los dos materiales que forman mi canto
y el canto de ustedes que es el mismo canto
y el canto de todos que es mi propio canto

Gracias a la vida, gracias a la vida

[violeta parra]

Saturday, January 16, 2010

Education Sentimentale



From the Urban Dictionary, submitted by Demon Phoenix 1347 on April 10, 2005:

Definition of TEABAG:

1) To insert one's nuts into the mouth of another (of either gender), usually while they are sleeping. Can either be a situation of laughter or of excruciating pain, depending on whether the victim is a biter. (verb)

EXAMPLE: Devon teabagged his girlfriend Veronica, then for shits and giggles he teabagged his friend Barton. And Barton bit Devon's left testicle off and beat the shit out of him.

2) When after being brutally killed in Halo 2, your opponent squats repeatedly on you, imitating the act of dipping his balls on you. Rather humiliating, especially when there's more than one of them doing it. (verb)

EXAMPLE: After I sniped five guys on a Multi-Flag CTF in Coagulation (including two in a Warthog) for a Kill Frenzy, two of them killed me with SMG fire and then simultaneously teabagged me.

3) A small bag of dried herbs, that magically makes tea when you add water and give it some time to steep. (noun)

EXAMPLE: I placed the teabag in the boiling water and gently stirred, five minutes later I had hot peppermint tea.

4) The scrotum of a man who has had his testicles removed. (noun)

EXAMPLE: Jenna broked up with her boyfriend Jacob because when she saw his equipment, she noticed he had a teabag.
*** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** *

From the Twitter account of Andy Borowitz, "Comedian and Writer, New Yorker humorist, Creator of BorowitzReport.com," January 15, 2010:

"The Teabaggers just found out what teabag means & freaked out. They're now calling themselves the Dirty Sanchezes."

*** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** * *** *

From the Wikipedia entry for Teabagging;

In 2009, Tea Party protests were formed to protest against United States government tax and spending policies. The use of the term "Tea Bagger" to describe these protesters has been used by several journalists, including Rachel Maddow, Keith Olbermann, Chris Matthews, and Anderson Cooper. Cooper later apologized, calling the term "silly" and stating that his use of it detracted from his serious reporting. The term's growth in the political arena earned attention by the Oxford American Dictionary, and the word "teabagger" achieved finalist status for the OAD Word of the Year.

Friday, January 15, 2010

Scott Reuben, Come on down! Let's Make a Deal!


Newsflash -- courtesy of WSJ Health Blog:

It looks like Scott Reuben, the Massachusetts anesthesiologist said to have used phony research data in 21 published papers, has reached a plea deal with
the feds.


Federal prosecutors accused Reuben of health-care fraud for allegedly
faking data that suggested after-surgery benefits from painkillers including
Merck’s Vioxx and Pfizer’s Bextra and Celebrex, the Justice Department said yesterday. The Justice announcement said he faces as much as a 10-year sentence and a $250,000 fine.

But the Associated Press said Reuben, the former chief of acute pain at Baystate Medical Center in Springfield, has agreed to plead guilty in exchange for prosecutors recommending a more lenient sentence. The sentence
would also reportedly include forfeiting assets of at least $50,000 that Reuben
received for the allegedly phony research. The Republican, a Springfield newspaper, said Reuben has signed a plea agreement under which he must pay $420,000 in restitution to pharmaceutical companies.

Reuben is accused with taking pharma money for doing research, then fabricating results and getting studies published in anesthesiology journals.The tale began to unravel last year as Baystate said it found Reuben had faked data and the Boston U.S. attorney began looking into the case. (For refreshers, see our posts here and here.)

Reuben’s attorney has said in the past his client cooperated with the hospital review and expressed regret. The lawyer didn’t immediately return a call for comment after Thursday’s federal complaint, the AP said.

Tuesday, January 12, 2010

Save the baby from the bath water!

The quote below was taken from the abstract for a study entitled Treatment of complex regional pain syndrome: a review of the evidence, by Tran DQ, Duong S, Bertini P, Finlayson RJ of the Department of Anesthesia, Montreal General Hospital, McGill University, Montreal, H3G 1A4, Quebec, Canada.

The study is published in the Canadian Journal of Anaesthesia, 7 Jan 2010.

"The available evidence does not support the use of calcitonin, vasodilators, or sympatholytic and neuromodulative intravenous regional blockade. Clear benefits have not been reported with stellate/lumbar sympathetic blocks, mannitol, gabapentin, and physical/occupational therapy."

This is probably one of those occasions when laypeople, like me, ought to refrain from commentary, as I am not trained in the statistical evaluation of a scientific study. Has this ever stopped me? Mwa ha ha!

It doesn't take much experience with CRPS studies to learn the pitfalls of the studies we hear cited so often: the sample populations are always too small, the conclusions as imprecise as the subjective measurements of pain. The exceptions are those efforts that detail some clinically measurable aspect of the disease. You know that already.

Nonetheless, I'd like to shout the [admittedly tenuous] conclusions above from the rooftops. Those treating CRPS, especially those treating newly diagnosed cases, need to heed the gathering warnings that the traditional Attack of the Blocks (do you hear the kaching:kaching of the procedurally-oriented anesthesiologist's cash register?) is no longer an acceptable response to nascent CRPS. Indwelling spinal catheters and neurostimulators also aren't turning out to be the longed for panacea. (For some reason, early on, I used to have dreams wherein I'd hear a baritone speaker talking about "bathing the spine in baclofen." I also once lobbied passionately for a spinal cord stimulator, until my compromised immune system rendered that impossible due to the infection risk.)

There are several studies that contradict this one about the influence of PT -- indeed, at least for children, extremely intense inpatient programs crammed full of entire days of PT have had near curative results. At the same time, most of us could testify to the terrible results we have when the physical therapist overprescribes or uses inappropriate modalities. I am still getting over the effects of having my entire right leg put into a machine that blew hay chaff round and round... Was desensitization the goal? I cannot even remember, so subsumed are my memories by the pain.

The subject of gabapentin is not one to address today. I tend to get overly worked up. If you don't know its sordid history, just plug "gabapentin fraud" into your favorite search engine. For me, its results will always be suspect. Yet, for many others, it has been helpful. Go figure.

It may be upsetting to see what you consider "tried-and-true" treatments declared invalid, or more correctly, insufficiently supported by research, but it is something that needs to be said, and faced, by both those who have CRPS and those working to find treatments for it.

Those of us with the disease tend to have a skewed point of view about the very meaning of effectiveness -- any relief at all, no matter how shortlived, has often come to be our goal. It is hard to entertain words like "cure" or "remission" (heck, even "treatment"!) when they no longer apply within our reality.


p.s. i am doing better. still pretty weak and tired, still doing more coughing than anything else -- but the emphasis is on *better*!

Friday, January 8, 2010

u.g.h.

i shoulda known this was gonna happen:

i caught fred's virus, and decided to develop a bacterial pneumonia on top of it. and so, yet again, i encourage you to dwell in the archives until i am done wheezing, coughing, moaning, etcetera.

Thursday, December 31, 2009

I have not abandoned the denizens of The Manor


Ah, things are happening here at Marlinspike Hall; The game is afoot.

Fred has come down with the flu but is being absolutely valiant. I am a dedicated nurse and awesome cook 'n bottle-washer, so odds are that he'll survive. Still, I am sure he'd rather spend New Year's Eve more upright than prone.
As it is, we'll be watching films and perhaps beginning the long awaited Deadwood Marathon Festival. It depends on how he is feeling. He is blessed with the ability to sleep when he feels rotten, so Our Big Plans may need to wait.

The Mother-Unit, we learned last night, fell again -- not just "again," but in the EXACT SPOT where she took a dive before. Not only does she once again have a hip fracture, it is the SAME HIP that she fractured in the aforementioned previous dive. Apparently, she wants her picture to appear next to "déjà vu" in the dictionary.

She was scheduled for (pancreatic and gall bladder) surgery in a few weeks -- I don't know now whether that will be possible or even advisable. There is no intervention planned for her new fracture. It's unclear to me, as yet, where the new fracture is located. She had a THR, and that's apparently intact. Good thoughts go out to her and to my half-siblings who are taking care of her, and who are doubtless at wit's end right now.

Dr. PainDude's PA rearranged some of my meds in an effort to introduce me to this novel concept of sleep -- a word that likely occurs more in this blog than any other object of desire. I got about five hours last night, which is already an improvement. Tonight, the goal is to cobble those hours together!

Just a bit ago, I checked on the news about Lindsey Baum, the 11 year old missing since 26 June 2009 from McCleary, Washington. There is no news to relay, and that's sad.

People are still desperately working to keep her name and face before law enforcement and the media. To that end, click here for Interpol's poster about Lindsey. There's been a fair amount of discussion about the picture on the poster, with most commenters feeling it is not the "best," or makes her look "too old." Well, she is older, as well as being at an age where change comes rapidly. She also was last seen wearing a hoodie, and this complements that information. Also, I doubt she is grinning from ear to ear since her abduction. That is, one picture where she isn't mugging for the camera is probably a good idea! [One suspects Interpol has its reasons, and they are probably well-founded!]

And to bolster my continuing disbelief at this line of "inquiry," I read about a new psychic lead in the case. Please note that the author does not claim, herself, to be psychic. No, she is just acting upon the psychic gleanings of a friend. *That* really clears things up. Anyway, suspicion now is being focused on a minister, thanks to these paranormal efforts... Holy cow, the moronic are multiplying: uh, i am not psychic but i know someone who might be and so i think we should say nasty and unsubstantiated things about this guy she's zeroed in on.



Anyways, I think we should re-think Wayne W. I think he does protest too much. Has anyone else seen his comments on the local news web pages? Also, why did he take down all of the photos of his "missionary" mission down in Mexico with all of those children? Hmmmmmm. Have we ever figured out what church he is a "pastor" for? He also works doing some sort of environmental work as well? He had access to Lindsey and Josh for sure. Does anyone know what the good pastor drives? Just following up on a psychic hunch for whatever it is worth.

By the way, I am certainly not psychic, the hunch is from another person who supposedly has psychic abilities. I am a skeptic, but an open-minded one, lol!

She goes on to cite a Facebook page where WW is linked to a men's worship group, saying suggestively, like a little sexpot of a psychic kitten:

"Just how many churches is Wayne W. connected to?" A minister? With multiple connections to several churches? Verrryyy suspicious.

She then cites an article this poor man wrote, at the end of which he mentions his children. Ever the shrewd one, she mews: "He says he has children? Where are they?"

Turns my turnable stomach, this nonsense.

Believe it or not, I am still working on a blog post and have not abandoned the denizens of The Manor.


Que dieu vous bénisse in the coming new year and decade. May there be an end to hunger and lost children, and a movement toward peace.

Wednesday, December 23, 2009

NORD announces availability of marrow transplant funds

I pass along this announcement from the NORD (National Organization for Rare Disorders) e-News, December 2009 Edition:

Miami Children’s Hospital in Miami Florida has funds available to cover the cost of bone marrow transplantation for patients with financial need. Patients must be between the ages of 0-21 and in need of an allogenic transplant. American citizenship is not required. For more information contact Linda Oher, RN at (305)662-8283 or Linda.Oher@mch.com .

Saturday, December 19, 2009

The Gift


A few weeks back, thinking it would be a way to save money and be a marvelous gift, I asked my two brother-units for used copies of the two books that had been the most formative to the person they each have become.

The Grader Boob, an English prof who is absolutely under the gun at this time of the year, dealing with final grades and student complaints, instead sent me a very generous gift certificate to Amazon. Whether he knows it or not, the student emails that he included in our recent correspondance were his real gift - a representative piece of his life.

The request had really already been answered over the course of the years we have known each other as siblings. He schooled me, seeming to step into the role of Guide from about the time I was eight or nine, and has never stopped. He shocks me with claims that I have schooled him, that I am The One Possessing Knowledge.

My other brother-unit, Tumbleweed, left the "family" -- hmmm, hey! It was about the same time Grader Boob Actively Assumed the Mantle of Sibling Voice of Social Conscience (Dabbling in Rock N Roll). A temporal coincidence? I think not.

Tumbleweed, who now prefers to be called TW, was a young runaway with an old soul. Grader Boob and I loved him with all our hearts, and the many years that passed without word of him were... let's just say difficult. Doubtless, I have little right to claim any difficulty whatsoever, given the harsh realities that TW encountered, but I do, I do lay claim to those years as Hard Times.

He, at least, had been able to leave. He had been free. Doing whatever he wanted to do.

Right?

I mean, switch the genders in Joni Mitchell's Cactus Tree, and there you have it.

Right?

I grew up "while he was so busy being free."

It is only recently that I've discovered my anger at TW. It's not Big Anger; It does not overwhelm -- it's one of your best recipes, having the restraint of a secret bit of heat that hits the back of the tongue in a salty delay.

He had no shelter, no food, was shot once, almost died then, and several other times. He did what one does to survive, maybe more. He loved and won, loved and lost. He and a porn star had a daughter, who now has a daughter of her own. Predictably, they are almost strangers. He met some of the most famous people of his generation. He wrote some stuff, published, read, hid some stuff. He ate out of trash cans, lived in a tent. Learned and learned, stored it and shared it. In fact, if you listen carefully to him, the thing he seems to have dedicated himself most to is the sharing. He did not want anyone to leave him unelevated, unfed, cold.

As for the pain inside the man?
I don't dare go there, unless invited, and I have not been invited.

In my adolescence, he was Seymour to Grader Boob's Buddy. TW was the fourth sick artist adjacent to sick Kierkegaard, sick Kafka, and sick van Gogh. I was into the Glass family, and jealous of its members, when I was all of eleven. This famously convoluted passage copied unevenly across an unlined page in a very uncertain 11-year-old hand has been tucked inside my Bible during all these intervening mumblemumble years:

But where does by far the bulk, the whole ambulance load, of pain really come from? Where must it come from? Isn't the true poet or painter a seer? Isn't he, actually, the only seer we have on earth? […] In a seer, what part of the human anatomy would necessarily be required to take the most abuse? The eyes, certainly. Please, dear general reader, as a last indulgence (if you're still here), re-read those two short passages from Kafka and Kierkegaard I started out with. Isn't it clear? Don't those cries come straight from the eyes? However contradictory the coroner's report - whether he pronounces Consumption or Loneliness or Suicide to be the cause of death -isn't it plain how the true artist-seer actually dies? I say […] that the true artist-seer, the heavenly fool who can and does produce beauty, is mainly dazzled to death by his own scruples, the blinding shapes and colors of his own sacred human conscience. (Salinger's Seymour, An Introduction)

I'd have edited out the reference to the epigraphs if I didn't also have as profound a writerly relationship with them, were they not also emblemmatic of my imaginary life with the real Tumbleweed.

The actors by their presence always convince me, to my horror, that most of what I've written about them until now is false. It is false because I write about them with steadfast love (even now, while I write it down, this, too, becomes false) but varying ability, and this varying ability does not hit off the real actors loudly and correctly but loses itself dully in this love that will never be satisfied with the ability and therefore thinks it is protecting the actors by preventing this ability from exercising itself.
– Franz Kafka

It is (to describe it figuratively) as if an author were to make a slip of the pen, and as if this clerical error became conscious of being such. Perhaps this was no error but in a far higher sense was an essential part of the whole exposition. It is, then, as if this clerical error were to revolt against the author, out of hatred for him, were to forbid him to correct it, and were to say, "No, I will not be erased, I will stand as a witness against thee, that thou art a very poor writer."– Søren Kierkegaard

A few years back, TW settled, somewhat, spending a few months of the year painting houses around Lake Tahoe, five months or so leading hikers and other serious adventurers in treks throughout the Grand Canyon. The rest of the time, he works as a bookie, in order to earn money, he says, "for cat food."

A few weeks back, thinking it would be a way to save money and be a marvelous gift, I asked my two brother-units for used copies of the two books that had been the most formative to the person they each have become.

This is what was in the Christmas box from my big brother that Fred fetched, this morning, from just beyond the drawbridge, in the icy grass next to the frozen moat. (TW took my request to heart.)

The items, at present, are dumped in the middle of our bed, and are recorded in the order of their haphazard retrieval.

1. Grateful Dead, Winterland, 6/9/77 (cassette tape, live)

The Mississippi Half-Step Uptown Toodleloo

On the day that I was born
Daddy sat down and cried
I had the mark just as plain as day
which could not be denied
They say that Cain caught Abel
rolling loaded dice,
ace of spades behind his ear
and him not thinking twice

Half-step
Mississippi Uptown Toodleloo
Hello baby, I'm gone, goodbye
Half a cup of rock and rye
Farewell to you old southern sky
I'm on my way - on my way

If all you got to live for
is what you left behind
get yourself a powder charge
and seal that silver mine
I lost my boots in transit babe
A pile of smoking leather
Nailed a retread to my feet
and prayed for better weather

Half-step
Mississippi Uptown Toodleloo
Hello, baby, I'm gone, good-bye
Half a cup of rock and rye
Farewell to you old southern sky
I'm on my way - on my way

They say that when your ship comes in
the first man takes the sails
The second takes the afterdeck
The third the planks and rails
What's the point to callin shots?
This cue ain't straight in line
Cueball's made of styrofoam
and no one's got the time

Half-step
Mississippi Uptown Toodleloo
Hello baby, I'm gone, goodbye
Half a cup of rock and rye
Farewell to you old southern sky
I'm on my way - on my way

Across the Rio Grand-eo
Across the lazy river
Across the Rio Grand-eo
Across the lazy river


2. Pilgrim at Tinker Creek by Annie Dillard: page 139 is turned down. She is writing about the actual texture of the planet, about a contour globe.

What do I make of all this texture? What does it mean about the kind of world in which I have been set down? The texture of the world, its filigree and scrollwork, means that there is the possibility of beauty here, a beauty inexhaustible in its complexity, which opens to my knock, which answers in me a call I do not remember calling, and which trains me to the wild and extravagant nature of the spirit I seek.

3. Grateful Dead, Winterland 12/31/78 Side A; Oakland Auditorium Arena [w/joan baez on baby blue] 12/31/87 Side B (cassette tape, live)

4. Grateful Dead, Winterland 10/18/74, 3/18/77

5. The Complete Columbia Recordings, 1955-1961, Miles Davis and John Coltane (audio CDs)

6. Go Further, a Ron Mann film (DVD, 2003) "...explores the idea that the single individual is the key to large-scale transformational change. The film follows actor Woody Harrelson as he takes a small group of friends on a bio-fuelled bus-ride down the Pacific Coast Highway..."

7. Peter Brook's Marat/Sade (DVD, 1967)

8. Jacques Perrin, Winged Migration (DVD, 2001)

9. Glenn Gould: Bach -- The French Suites (Audio CD, 1973, 1974 CBS Records)

10. Carolan's Cottage, Joemy Wilson: Music of Turlough O'Carolan (1670-1738) on the Hammered Dulcimer Vol. II (Audio CD, Dargason Music, 1986)

11. Hotwalker: Charles Bukowski & A Ballad for Gone by Tom Russell (audio CD, homemade)

From Stylus Magazine, Reviewed by: Dom Passantino; Reviewed on: 2005-03-25
"It starts off as novelty. Within five minutes of the album starting, you’re laughing. You’re laughing half out of humour, half out of 'What on earth am I listening to?' What you’re listening to is a half-cut helium-voiced midget slurring the tale of the time he and Charles Bukowski drunkenly hijacked a diesel locomotive and drove it from downtown Los Angeles to Pacoima. By the time the album’s over, you’re not laughing, you’re discovered that that midget you were listening to died a few months after recording his vocals, the stage is littered with innumerable other corpses and lost hopes of America, and the smile has been wiped completely from your face, replaced by a stunned gape. Hotwalker isn’t just one of the best albums of this decade; it’s also probably the best documentary that the 2000s have yet produced.

A hotwalker is the name given to the guy at a racetrack who walks hot horses around in a circle to cool them down. Little Jack Horton used to be a hotwalker. He used to be a lot of things, carnival freak, poet, stuntman, 'Voice of the Great American Midway,' human cannonball, stuntman, friend of Charles Bukowski, preacher, alcoholic, philosopher, and alive. He was the midget in question (or 'little person' as he aggressively refers to himself, for an album that rails repeatedly against political correctness they do make concessions for our stumpy brethren) we just mentioned.

Hotwalker is the new album by Tom Russell, except it really isn’t his album. Of the 19 tracks present on this thing he only takes performance credits for nine of them. It’s part documentary, part mix-album, part museum exhibit, part evening spent listening to a rambling bar drunk who occasionally has a moment of clarity which you can’t help but share with him.

The whole enterprise is subtitled 'Charles Bukowski And A Ballad For Gone America,' and that’s what this is, an unapologetically backwards look that’s haunted with ghosts. Charles Bukowski, Jack Kerouac, Lenny Bruce, Harry Partch, Edward Abbey, Dave Van Ronk, Rambling Jack Elliot, a eulogy for each and every single one of these guys and the America they fought for. As a man who’s written for Johnny Cash, it’s no surprise that Russell fetishises the outlaw, and the whole thing is a paean to playing by your own rules. He knows that all of these people have voices strong enough to tell their own stories, and he lets them tell it. So Bukowski performs 'On The Hustle,' exchanging jokes with the audience about his alcoholism. Lenny Bruce asks the audience if there’s any other losers in tonight, before using the loneliness of his divorce as material. So many other voices flutter through, a choir of the damned, and each one has something to say. And Russell isn’t Michael Moore, he knows that the correct place for a documentary maker is out of the picture making sure his subjects get the screen time they deserve.

When he does veer into view, though, his contributions are absolutely perfect. He tells of times spent at Dave Van Ronk’s house, as a drunken Van Ronk would shout at even drunker houseguests, hopeful poets wondering if Dylan had dropped any songs down the back of the sofa, as his wife played the same track over and over again: 'LISTEN TO THIS GODDAMN SONG, YOU PEOPLE.'
"

12. Pirate's Choice Orchestra Baobab: The Legendary 1982 Session (Audio CD, World Circuit, recorded 1982, digitally remastered 1989) i laughed with joy to see this included - it's just... superb.

13. dick's picks #14; The Grateful Dead, boston music hall, 11/30/73, 12/2/73 (cassette tape, live)

dark star
words by Robert Hunter; music by Garcia, Kreutzmann, Lesh, McKernan, and Weir

Dark star crashes
pouring its light
into ashes

Reason tatters
the forces tear loose
from the axis


Searchlight casting
for faults in the
clouds of delusion


shall we go,
you and I
While we can?
Through
the transitive nightfall
of diamonds


Mirror shatters
in formless reflections
of matter


Glass hand dissolving
to ice petal flowers
revolving


Lady in velvet
recedes
in the nights of goodbye


Shall we go,
you and I
While we can?
Through
the transitive nightfall
of diamonds


spinning a set the stars through which the tattered tales of axis roll about the waxen wind of never set to motion in the unbecoming round about the reason hardly matters nor the wise through which the stars were set in spin


#14. Grateful Dead, long beach arena 12/14/80, winterland 10/16/74 (cassette tape, live)

#15. Grateful Dead, greek theatre, berkeley, 5/21/82 (cassette tape, live)
crossed out: Placido Domingo (from bravissimo, domingo!) and Felix Mendelssohn's A midsummer night's dream
clipping of a nature morte by cézanne as "cover art"

Playing In The Band
Words by Robert Hunter; music by Bob Weir

Some folks trust to reason
Others trust to might
I don't trust to nothing
But I know it come out right

Say it once again now
Oh I hope you understand
When it's done and over
Lord, a man is just a man

Playing
Playing in the band
Daybreak
Daybreak on the land

Some folks look for answers
Others look for fights
Some folks up in treetops
Just look to see the sights

I can tell your future
Look what's in your hand
But I can't stop for nothing
I'm just playing in the band

Playing
Playing in the band
Daybreak
Daybreak on the land

Standing on a tower
World at my command
You just keep a turning
While I'm playing in the band

If a man among you
Got no sin upon his hand
Let him cast a stone at me
For playing in the band

Playing
Playing in the band
Daybreak
Daybreak on the land
Playing
Playing in the band
Daybreak Daybreak on the land


#16. An Oral and Visual Portrait of the Grateful Dead: Playing in the Band
[An Updated Memorial Edition]
by David Gans and Peter Simon, foreward by Phil Lesh
St. Martin's Griffin, 1985

With a bit of paper stuck in between pages 188 and 189, at the beginning of Chapter 15, Epilogue: "that's me, holding the microphones, berkeley's greek theatre, early 1980s" and, indeed, there he is, front and center, bearded and beautiful. Photo by Bruce Polonsky.

#17. A Novel: The Year of the French by Thomas Flanagan
Holt, Rinehart and Winston, 1979

"In 1798, Irish patriots, committed to freeing their country from England, landed with a company of French troops in County Mayo, in westernmost Ireland. They were supposed to be an advance guard, followed by other French ships with the leader of the rebellion, Wolfe Tone. Briefly they triumphed, raising hopes among the impoverished local peasantry and gathering a group of supporters. But before long the insurgency collapsed in the face of a brutal English counterattack.

Very few books succeed in registering the sudden terrible impact of historical events; Thomas Flanagan's is one. Subtly conceived, masterfully paced, with a wide and memorable cast of characters, The Year of the French brings to life peasants and landlords, Protestants and Catholics, along with old and abiding questions of secular and religious commitments, empire, occupation, and rebellion. It is quite simply a great historical novel."

#18. Encounters with the Archdruid by John McPhee
The Noonday Press, 1971
Three wildernesses, Four ecologies...

#19. A People's History of the United States, 1492-Present by Howard Zinn
Harper Collins, 1980, revised and edited 1995

#20. The Grateful Dead, Vancouver, B.C. 6/25/73 and Olympia Theater, Paris, France 5/4/72 (cassette tape, live)

#21. The Grateful Dead, Cow Palace, San Francisco 12/31/72 and Spartan Stadium, San Jose 4/22/79 (cassette tape, live)

Crossed out: Brahms, Chamber Music and Charles Mingus (ending with Mood Indigo)

#22. Bob Dylan, Royal Albert Hall, Manchester England, 5/17/66 (cassette tape, live)

#23. The Grateful Dead, Oakland Auditorium Arena, 12/31/81 (cassette tape, live)
Crossed out: Minnesota 10/19/71

#24. One Tibetan Windhorse Prayer Flag Garland, Handmade in Nepal by Tibetan Handicraft Industry for International Campaign for Tibet, www.savetibet.org 888-Tibet-Now

Contains a variety of important symbols in Tibetan Buddhism. These include the Endless Knot, representing the interrelatedness of all things; the Double Dorje or Diamond Scepter, symbolizing the indestructible and compassionate nature of Buddhaís teachings; the Buddha or awakened one, who introduced the Dharma or Buddhist teachings into this world; and the Healing Mantra, a matrix of Tibetan symbols that make up a healing mantra or sacred prayer. Hanging flags are believed to constantly be sending their prayers to the universe. To dispose of old flags with respect, please burn them.