Showing posts with label Aortic Root Dilation. Show all posts
Showing posts with label Aortic Root Dilation. Show all posts

Tuesday, September 13, 2011

Me, and Damien Walters; Damien Walters and I!







parkour:  The art of moving through your environment as swiftly and effectively as possible using only the human body.



You should have seen me. You would have cheered.


It was the perfect storm of good things:  I slept an incredible four hours straight, enjoyed a balanced, rich cup of coffee in the predawn, then relaxed and laughed with the flitting, fighting chickadees.  


And, if I do say so myself, I was quite nattily dressed.


Yes, there were the normal oddities.  La Bonne et Belle Bianca Castafiore was, inexplicably, curled up on the lower shelf of the kitchen block table, covered with an antique Point de Venise lace tablecloth.  Granted, she was sacked out in a kitchen that I don't normally use, as the replica of the Karaboudjan's galley is not my idea of the ideal place to prepare or consume food.  Still, for an early morning view of the cluster of spruce trees and the bud- and canker- worms so beloved by my beloved chickadees, nothing beats the view out of the galley's over-sized portholes.


Right. Well, anyway, things began well.  That's all I am saying.
I was feeling good; I was feeling lean and mean.


I had an early morning cardiology appointment and let's face it, early mornings are not exactly what we are known for around here.  Fred and I even retrained the circadian rhythms of all the livestock and domestic animals so that their days don't actually start until mid-afternoon.


Despite my penchant for equating left with west and north with straight ahead, we had an uneventful trip into Lone Alp. 

My MDVIP Go-To-Guy referred me to a new cardiologist this year.  It's not that the old one was in any way not a great doctor, he was.  Is.  No, it is more, for me, that I just cannot tolerate dealing with anyone or anything associated with the CrapAss Hospital that has so contributed to the demise of my earthly usefulness.  Not that I've given that much thought or anything!  


I remember, in fact, my Former Cardiologist with great affection, for he once told me that I would not die so long as he was taking care of me.  I loved that brash idiocy.


Unfortunately, ever since he actually had the chance to snatch me from the jaws of death, he has been caught up in the evil machinery of CrapAss Hospital.  Because of the great Shoulder Adventures of the last three years, I've only gone in to get an echo done, and only once, and did not deal with the doctor at all -- except to have one of his partners bless me out over the phone.  (When he was done blessing me out for having skipped a few echos, he told me not to worry about my aortic dilation blowing up, "because you will never see it coming...")


Oops!  Oh, well!


So we cruised into the Free Gimp Parking, gave Ruby the Honda CR-V a pat on the butt, and found the office with nary a wrong turn and not a bit of confusion.  [We don't do well in new office buildings.  Sometimes we duck into the first cozy looking waiting room and pretend we're in the right place.  It's usually the urologist's or the plastic surgeon's joint, though, and they catch on pretty quickly and toss us out.]


The New Cardiologist's place is incredibly well-organized.  I didn't realize how much I appreciated that until I was there, in the midst of streamlined forms and efficient people.  Everyone was so good at what they did, and they communicated!  Not just with me and Fred, but with each other.


Excuse my excitement.  Little things just send me!


Now... here is the part where it's all about me, and Damien Walters, Damien Walters and I!  That's this post's title, in case you've been distracted. 


I've long been a fan of parkour, then free running, free styling -- the martial arts, too.  As my body has crapped out and essentially imploded on itself, I've traveled beyond this body via the Internet and television, finally carving out for myself niches of the imagination.  


On one of my baseline days, I'll cue up the greatest of tennis matches, admire the most powerful and musical ballet dancers, and I let my body go.  It's enjoyment.  It's distraction.  For a few years, I could even pretend it was muscle memory!


On intolerable days, I might visit PopThatZit and replay Pete Popped a Pustulant Pimple ten times in a row... or I might not!  But I will *always* end up watching Damien Walters, usually his showreels, one right after the other.  I fly, jump, fall, push, pull, defy gravity and embrace gravity, all at the same time.  I feel no pain and my tendons never retract, my muscles never seize.  I'm lithe, light as air, fast as lightening.  Pliant, compliant, but steel, I am jiu-jitsu.


When I was escorted back to the echo room, this morning, the first thing that jumped out at me was the behemoth of an exam table.  It looked as tall as a freaking elephant.


The nurse asked me if I could change into the gown on my own.  "Sure!" I said.  She asked if I could walk to the exam table.  "You betcha!" I crowed, adding, "I brought my magic cane, even. But then you are out of luck, because there's no way I can get *on* it." 


"Not even with this stepladder?  How about if I hold you up?  How about if you hang onto me?"


Because of the instability, swelling, and pain in my ankles, knees, and hips, I cannot step up or down.  The last time I tried to use one of those stepladders was in a radiology department and the tech did not entirely believe my protests that I couldn't trust my legs.  I ended up on the floor that day, and pretty mad about it, too.  I have fallen quite enough in this lifetime, thankyouverymuch.


She picked up the phone to call for the nearest Big Guy, so that my own petard could be hoisted...


But something of the spirit of Damien Walters showed up in me, today, unexpectedly.  I told her that, no, we would not be needing assistance, and that, yes, I could do this if she wouldn't mind parking my wheelchair somewhere out of the way once I vaulted out of it, pirouetted in midair, onto the beastie table.


She looked a tad bit skeptical.  She was staring at my legs and wincing.


It might have been choreographed by Balanchine.  Danced by Edward Villella.  You'd easily imagine that I was inhabited by Martina, Chris, Monica, Hana, and Steffi, tour à tour.  


But it was in every way inspired by Damien Walters.


I planted one leg here, the other there, becoming my own source of symmetry.  I plumbed the potential energy of every surface.  Briefly, I was here, then there, now attracted, now repelled.  Once, twice, I was standing --sideways -- on a cabinet.  Thereafter, I was free of surfaces altogether.


I usually crane my neck and nervously watch the progress of the echo -- it's kind of neat to see your heart as it beats, to listen to the woosh-woosh.  The nurse, after verifying that I had survived my feats of athleticism with bones and internal organs intact, was all business.  She reminded me that talking, coughing, and such interfered with the test, so I stopped talking, never coughed, held my breath when instructed, but mostly just ran Damien Walters' videos in my head.


In a first, I managed to crack up both myself and the test operator, and did, I guess, disrupt things.  They record the sounds produced by various parts of the heart, concentrating, I think, on the valves.  I heard a series that were familiar from past tests... and then, out of the blue, came what can only be described as Island Music.  "They're having a party in there!" came out before I could stop myself from talking.  Seriously, we are talking ukuleles, tambours, maracas, and seven kinds of guitars.  


Go, mine heart, go!


There were a few abnormal results from the echo, but none of them were new, none of them were worse, and one of them was actually better.  I'm really happy with this new place.


The nurse was on the warpath as we left, threatening to quit if she wasn't given an adjustable table for her echocardiogram patients, going on and on about some "debilitated" people of her acquaintance.  Whoever they are, I hope they get better soon.


And I hope the cardiologists keep that massively tall, unwieldy table, maybe tucked away in some storage room for when I come back next year.  


I haven't had so much fun in I-don't-know-when.





Thursday, February 3, 2011

What a mess...

It's a crazy time.  Given the extent of the wackiness around here, and the opportunity for more, I'll not be blogging for a few days.

Today I see the orthopedic surgeon, my old friend.  (I slept last night with my mp3 player set to repeat and repeat a Michelle Shocked album... "my old friend" is running around my brain to the tune of Anchorage... anchored down in Anchorage....

I took the time to write to my old friend
I walked across the burning bridge
I mailed my letter off to Dallas, but
Her reply came from Anchorage, Alaska

She said Hey girl it's about time you wrote
It's been over two years now my old friend
Take me back to the days of the foreign telegrams
And the all night rock 'n rollin' hey Chel
We was wild then

Yeah, well. So I'll be humming and buzzing along with the x-rays today.

Then we are rushing about Tête de Hergé like freaking maniacs, getting groceries (I am on a goodly dose of antibiotic and we are out of plain, lowfat yogurt.  Also vanilla extract, bread, and milk.  Not to mention caffeine-laced diet colas...) and a few other items of a more esoteric nature.

Then we are flying home to finish disassembling our wing of The Manor, Marlinspike Hall.

Why?  Are we being thrown out onto the streets?  If so, wouldn't The Brotherhood down the road take us in?  Yeah, couldn't we just crash at The Monastery?

No, we're not imminently homeless, we are just having some 16th century reclaimed beams and timbers -- heart of pine planks, specifically -- put in as "new" flooring here in our tiny section of the world. 

And don't knock The Cistercians, even in jest, because they're doing the installation...

What I really wanna know is:  Who bought all these damn books?

I have so much to do and such little space and time to do it in.  Also, I tend to injure myself.  Immediately.  Within five minutes of packing and piling and sorting and moving...  Yesterday, I spent the afternoon with tears rolling down my red, red face,  while putting my arcane collection of Objectivist Poetry into flimsy bags and boxes. 

When I was done, I heard this from My Darling Cohort:  Sweetie Pie?  Are you okay?  Do you need any help?

Wrong!  Well, only partially wrong.  Wrong in the sense that I implied that My Darling Cohort was not assisting.  Because he did.  A lot.  As in, a whole lot. 

Okay, I lied.  His offer to help preceded my headstrong and tearful attempts at packing up my tiny office. 

He's a good boy, is Fred!

The Felines are freaked and part of today's plan entails finding three carriers that we can safely stash them in, as the monks, who love them to pieces, tend to try and sneak them over the orchard wall, tucked in their voluminous robes.  When we retrieve them they reek of incense and garlic.

I have beaucoup medical stuff on tap for Monday and Wednesday of next week, too.  ["Too"?]  The thoughts and worries about the subanesthetic ketamine treatment never really leave my mind.  I am pinning a shitload of hope on this procedure.

So. Be good out there.  Stay warm, stay well, be happy.

The next time I talk at you, I will be able to zip around the place without the wheelchair meeting so much impedence in the form of medieval tapestries and persian rugs.  I'm gonna redefine the speed of light.

***  *************************************************************************  ***


Okay, so... here I am blogging again, less than a day after swearing off the activity.  I've said it before, and look!  I am saying it again -- I need one of those pensieve thingies, like Albus Dumbledore had stashed in his office.  The basin with swirling, shimmering vapors.  Thoughts as strings to be pulled out of the head, twirled on the end of one's wand.  Though I suppose a chopstick will do, in a pinch.

The Pensieve has multiple functions.


At times, when one's head is so full of thoughts that one cannot hear oneself think, it is useful to be able to take some of those thoughts and literally set them aside. The practiced Wizard can extract a thought from his head and store it in a phial or in the Pensieve for another time. If it is in the Pensieve, it is possible to stir the thoughts stored there together and look for patterns. It appears that the wizard has the choice of extracting an entire memory, leaving no trace of it in his head, as Professor Snape does in Harry Potter and the Order of the Phoenix, or extracting a copy of a memory, retaining the original, as Professor Slughorn does in Harry Potter and the Half-Blood Prince. It is also apparently possible to edit these extracted memories, though it is a difficult task and one which is often not done well.


If one places one's head within the Pensieve, one becomes immersed in a memory that is stored in the Pensieve, and is able to relive it as if one was living that time over again. Harry experienced Professor Dumbledore's memories of the Wizengamot trials of several Death Eaters this way in Harry Potter and the Goblet of Fire, and Professor Snape's memories of Harry's father in Harry Potter and the Order of the Phoenix.


A thought or memory stored in the Pensieve can, with proper stimulus, appear to nearby viewers as if standing on the surface of the basin. Professor Dumbledore used this technique to show Harry the prophecy that had been made about him, in Harry Potter and the Order of the Phoenix, and it is used in Harry Potter and the Half-Blood Prince when full immersion in memory was not needed.


It is also possible to take another person's memories, place them in the Pensieve, and then enter them to relive them as if one were the person whose memories you have just added to the Pensieve. Harry and Professor Dumbledore do this a number of times in Harry Potter and the Half-Blood Prince in order to determine the salient points of the early history of Tom Riddle, or as he later styled himself, Lord Voldemort.


This blog is my pensieve.

So... although we spoke of it briefly the last time I saw him, it sort of blew my mind -- and all its twirling little vapors -- when the surgeon offered up an inverted total shoulder arthroplasty as my sole option for my left shoulder.  He is fabulously talented, so to hear him call something "difficult" was scary.  It looks like this... and this looks WEIRD!


I guess I sorta didn't believe him in October when he first pitched this.  Or I developed amnesia.  The Good Doc says I've not much left to work with -- remember (someone has to), I have rampant avascular necrosis going on as well as osteomyelitis.  Oh, and I am now missing one rotator cuff.

No problem!

He's been such a savior to me, this guy, that I simply don't believe there is a technique or an obstacle that he cannot conquer or overcome.  I mean, he's done... let's see... 8 of my 9 shoulder surgeries. 

We were doing a pre-exam chat -- I was bemoaning the mess at the manor, the monks and the flooring... then the ketamine infusion therapy popped in my head, and consequently, out of my mouth.  But instead of giving him some background, or even notifying him that we were leaving the discursive region of home improvement and religious adherents for the vague regions of dissociative drug therapy, I just blurted:

"Guess what!  I'm gonna do ketamine!"

And his eyes bugged out.
And he opened, then closed his mouth.  Several times.
I could see the confusion and what may have been a burgeoning certainty of my extreme moral turpitude spread across his usually composed visage...

So I explained.

Which made it worse.

He thinks I am nuts for doing this.  Well, ptooey on you, Fabulous Orthopedic Surgeon!  Ptooey, I say, on you!  Then he went on and on about this upside-down, spikey prosthesis -- only an option, of course, if the joint space and long bones are free of infection.

Why am I always so confused?  (No, I am serious.  Why?)  Is there a cumulative but late arriving deficit that hits a person after so many surgeries, after so many foreign bodies are implanted, after nine years of insufficient sleep?  After all the pain, fevers, sweats?  How is it that I can block out such important information?  Denial?  I don't think I am in denial about anything, but then who does?  Do you know that last week, I managed to forget entirely that I have an "aortic root dilation" of growing dimensions -- now sitting right at 5 cm..  I got there because of a run of something or other, that ended in about an hour of trigeminy, and this thought:  "It would be so nice to have a heart rate under 112..." We are so wrapped up in stopping this infection that we haven't even scheduled an echo.  The last one was in ICU back in... July 2009.  Whoa.

Just what I need to indulge in:  more catastrophic thinking!  (Thar she blows!)

See?  I DO need a pensieve -- just to get rid of boring, scary, fruitless thoughts about stuff I cannot do crap about. 

Okay... I feel better.  The reverse shoulder option will only come to be when/if we rid my body of sneaky pathogens and the pain reaches the I-CAN'T-STAND-IT-ANYMORE stage.  With careful coaxing, I can stand a whole hell of a lot!

The title of this post stands unchallenged:  What a mess...