Thursday, December 5, 2013

Inside Edition Airs Two CRPS Videos

*hmmm. i am not sure why the two Inside Edition vids begin playing automatically.  my apologies for the onslaught of sudden noise.  perhaps {she prays} the problem will just disappear.  [this is why i had to abort my career as a Life Coach.]
*well, i got so fed up finally that i replaced the vids with links TO the vids.  apologies (again) for the inconvenience.

They're simplistic by necessity -- how to explain CRPS in roughly three minutes -- but a good introduction.  I am awed by the woman who gets relief from people rubbing her leg, with a rough looking blanket, no less, but beyond that, it's a fair depiction.  How I wish, though, that those of us with CRPS did not sound so certifiably insane in our verbal attempts to share what its pain is like!  The python reference was a new one for me.

I have trimmed down my answer (in non-blog life) to:  "The pain is constant and severe. It varies from burning to stabbing to throbbing.  If accompanied by spasms, it is intolerable."

In between the two Inside Edition videos, I've inserted one of my own old "standards." It's about 2.5 years old, and things aren't better, so use your vivid imagination -- in technicolor! I WISH I had the "problem" of people thinking there is nothing wrong with me.  My problem is that when strangers, even medicos, see my feet or legs for the first time, they offer to drive me to the Emergency Room.  Seriously!  My first visit to my shoulder orthopedic surgeon, his nurse kept saying:  "But, sweetie, we can't even look at your shoulder until you go get that foot treated!  Were y'all in a wreck on the way here?" She now doesn't even flinch.

Doctor Explains Mysterious CRPS Condition

Mysterious CRPS Condition Hits Home For Inside Edition Reporter

Monday, December 2, 2013

RSDSA: supporting the CRPS community

hi, beloved readers!  this is a hijacked ealert from the inimitable jim broatch of RSDSA.  CRPS is devastating, in so many ways.  there are the physical symptoms, and with years of intense, unrelenting pain come depression and anxiety.  friends and family tend to disappear.  the patient grows more disabled, less mobile, and is isolated.  financial ruin almost seems like another -- often ignored -- impact of CRPS.

consider giving someone in severe pain and struggling mightily a hand this year.  

good on ya!

RSDSA with Mission 

Dear Beloved Readers of elle est belle la seine la seine elle est belle:

This year on Tuesday, December 3, 2013, RSDSA is part of a call to action that will change the calendar and help make history. We are celebrating a day dedicated to giving - when charities, families, businesses, community centers, students, retailers, and more will come together for #GivingTuesday - a movement to celebrate giving and encourage more, better and smarter giving during the Holiday Season that we are proud to be a part of.

#GivingTuesday will create a day of giving around the annual shopping and spending season. Tomorrow is our "opening day." Starting December 3, we invite you to be part of this celebration. #GivingTuesday will show how the world can do much more with our wallets than just consume.

Please visit us at and consider celebrating this Holiday Season with a gift to The Patient Assistance Fund In Honor of Brad Jenkins and help those in need. When you donate please specify that the donation is for the Patient Assistance Fund in Honor of Brad Jenkins.

Many people with CRPS are unable to afford basic medical needs. Since its inception, the Patient Assistance Fund, has helped needy individuals with CRPS in various ways. Some examples include:
  • Adaptive controls for a motor vehicle  
  • Travel and lodging costs for individuals to consult with out-of-state pain specialists
  • Phone consultations with a pain psychologist for individuals with CRPS whose insurance refused to pay
  • Four visits at a reduced fee with a pain specialist for an individual without insurance 
CRPS can be financially devastating. Many people with CRPS lose their jobs and health insurance. Paying for medication, treatments, medical equipment and doctor's visits can be impossible. RSDSA intends to dramatically increase the Patient Assistance Fund to help many more individuals who have suffered financial devastation because they developed CRPS. 

With your help, we can provide larger grants to those in need - to adapt a home to make it easier and safer for a wheelchair bound person to get around, or to provide durable medical equipment, such as wheelchairs, scooters, walkers, and other adaptive devices. 

Our ultimate goal is to be able to work with local government and community programs to provide all those who suffer with CRPS the assistance they need when they need it.    

Please help RSDSA make a huge difference in the lives of people with
CRPS by making a tax-deductible donation today.

Be sure to visit the RSDSA website for the latest CRPS/RSD information including new treatment options, valuable resources, upcoming events, and Support Group in your area.
Click Here to Visit Now!