SPEEDO |
I *know* that it is poor form (Oops! Someone has been watching too much of the London Olympics on the telly. I wonder what's for tea this afternoon. Is that the aroma of baking scones wafting my way or is it the bag of turnips I let rot on top of a bag of potatoes and a sack of fresh garlic? We better have some clotted cream and jam, either way.)...
As I was saying, I know that regaling you with emails is the lazy woman's blog tactic, but this is the best way to bring you up to date as to what is happening to moi at the moment. I could lie and say that I just hate repeating myself, but, puh-leeze, my Readership wouldn't fall for that.
So... Youse Guys already know how much I rely on the judgment of my MDVIP Go-To-Guy, otherwise known as a pseudo-concierge set-up with a spot on (Heh-heh) internist. Well, here's the latest, and please keep the info in mind should my blog posts get even weirder, if I'm not batting on a full wicket (ar ar!).
I think I may take a break from the shivers and do some imaginary badminton. Or rowing. But if I choose to swim around the moat, it'll have to done nekkid, as I've heard those swimsuit contraptions are nearly impossible to put on without Randy from Say "Yes" To The Dress. Check out how hard it was for Summer Sanders... and then die laughing thinking of me trying to get even one thigh in the right spot of fabric.
FIRST EMAIL, FROM ME TO MDVIP GO-TO-GUY, YESTERDAY:
i had my PICC line pulled tuesday. still having fevers, sweats, chills, spasms, the whole spiel. dr.b was out of town, saw his PA jacqueline. when i asked what the plan was now, i was told "there is no plan." of course! what was i thinking?
is this slow drop in hgb/hct anything to worry about? i know it's not enough to explain fatigue, but i am so tired. they drew labs again this week to see if it is still dropping and i am to show up for one more appt next week.
7/3
HGB 11.1
HEMATOCRIT 34.4
CRP 1.27 (EXPECTED < .8)
7/10
HGB 11.2
HCT 34.9
CRP 10.49
7/17
HGB 10.8
HCT 34.3
CRP 1.73
7/24
HGB 9.9
HCT 31.2
CRP 2.28
i see dr.d today and will see if i can get him to somehow pave the way with next week's appt with dr. s's PA. i expect that appt will be a bust, but who knows.
i don't know what to do about my eyes... dr. k probably thinks i've disappeared. ID informed me that p. acnes is one of the most "catastrophic" of all infections after cataract surgeries (well, *of course* it is!) and that she probably will want some assurance that there aren't any p. acnes colonies hanging around. right-o!
yesterday, i briefly blacked out twice, both times while walking to the bathroom. each time, i was able to forestall any severe damage or need for 911 by simply landing against the wall, leading with my head. so my head hurts, but i'm fine. i knew that my brain would count for something one day. if it gets worse, i guess i'll Pick-A-Specialist, probably dr. m.
i hope you had a restful and refreshing vacation.
what are the odds that i could get dr. d to come HERE, versus wickedly tired fred and cheery me hauling ourselves out to the airport office?
profderien,
laughing all the way to hell
SECOND EMAIL, FROM MDVIP GO-TO-GUY TO MOI, YESTERDAY:
The HGB dropping below 10 could cause some fatigue. The main concern with anemia is to be sure it’s not coming from GI blood loss.
Have you seen blood in your stools or black, tarry stools to suggest older blood from the upper GI tract? If not, the anemia may be from suppression of your bone marrow from your chronic infection. That will only improve as the infection improves.
The blackouts are another concern. Please rely on your walker or scooter more since you have the anemia. You are at increased risk for blacking out and falling.
Please keep me updated on the labs, etc. I would also hold off on Dr. K until we know there’s no infection.
dear dr. MDVIP Go-To-Guy,
i've put in a call to i.d., trying to get tuesday's lab results. have both called and emailed. i am feeling pretty awful, temp got to 101, dropped to 99, now back to 101, but more significantly, to me, i'm having chills, feel all woe-is-me-weepy, and exhausted. there's been no feeling like passing out, just a feeling of distance/unreality. and a headache.
if things get worse, i will contact them again, first, using the "emergency" line (my understanding is that dr. b is out of town), and do what they say. if need be, i'll have fred drop me off at the Lone Alp ER. unfortunately, he refuses to stay with me in the hospital any longer... he just hates that environment, and, it seems, me, in that situation.
i'm just letting you know in case there is a communication failure... for instance, when i had to go to the ER a few weeks ago, the EMTs reported that they picked me up in a "GP's office" [instead of the infectious disease infusion center] and that the problem was "a dislocated shoulder." i thought fred was following us over there but, no, he just got in the car and went home. i was shivering so much i couldn't correct anyone, but wish i had a photo of the face of the x-ray tech who immediately filmed my shoulder. she told me, "uh, we need to do this again because i seem to have cut off part of your... [long pause] ... clavicle." sure, i could have told her there was no shoulder on that side, but why muck up a perfectly good learning opportunity?
it's often like that kid's game, "telephone," where you pass around a piece of information to see how changed it is at the end.
i hope to not be calling, but thought i'd give you a head's up. thank you, thank you, for your good care and forbearance.
much of that forbearance is put to use on these emails, i am sure. sorry but when i feel this sick, i talk and talk. i am afraid, and that's what i do!
so i at least hope that my verbose communication sometimes makes you smile, even if it kills an extra few minutes of your "free" time.
hey, j (j is his Super Nurse)! come do private duty with me this weekend????? movies, popcorn, wheelchair races?
oh, and the gut is fine, no obvious bleeding.
bowing out of another graceful communication,
profderien
And as is always the case, I feel better already.
Cheerios and Fruitloops, Clotted Cream and Jam for all.
STOCKHOLM 1912 |