Friday, June 21, 2013

biofilm conference

the crap growing in my bones has taken on the form now known as a "biofilm" community -- think of it as a gated community of stuck-up bacterial homeowners who want nothing to do with you, and reject your every antibiotic offering. well... it is good to know that people are finally putting their heads
together to figure out how to evict these suckers...


Thursday, June 20, 2013

is that you?

hi sweeties --

i copy below the group email just mailed out to my nearest and dearest as an explanation for why this blog probably shall be put on ice for a bit.  i can't see a blessed thing.  well, that's a huge exagerration... but writing is a pain.  fear not, however, for a plan is being put in place:

hey all -- this is a group email.  i saw (as if through a fog... sorry!) the eye doc yesterday.  now, the internet claims it's impossible but she is claiming i now have two cataracts in each eye for a total of four.  she further claimed that it's possible to have a total of three per eye.  do i have yet another whacked out doctor?  let us hope not.  she hopes to avoid doing surgery at the same time to make a drainage hole in each eye because of glaucoma but won't decide until the last minute.  the cataract surgery causes a natural spike in eye pressure and she wants to see the latest pressures before deciding.

i have to have general anesthesia because of the crps dystonia (the infamous spaz attacks, not a great idea during eye surgery.  "oops!").  that means finding a hospital/facility with an anesthesia department that will agree to operate on a person with a systemic infection. 

1, 2, 3:  crazy laughter!

we went ahead and scheduled it at two places, crossing our fingers, but "talks" are still ongoing about the infection.  the bacteria i harbor in my bones is infamous for post-op eye infection.  but, of course. anyway, i need to take a few weeks of prophylactic meds and get medically cleared (more laughter) so we are looking at august and september.  they do each eye two weeks apart.

fred was stellar.  he was there to help me absorb info and also to charm the pretty doctor.  she talks a mile a minute.  in the middle of about the third mile, i glance over at him to see if he is okay with what she is proposing post-op (almost daily trips to her office for pressure checks for a month, o joy) -- and fred is deeply engrossed in a novel.  so i hit him.  at least it slowed her down, because she cracked up.  fred resumed reading...

so please excuse if i am not quite as verbose as usual -- i can barely see to write and am doing so these days with a great deal of magnification and even then, most everything is a blur.

but all will be well. one day.

i am gonna miss james gandolfini.

that is all.  please resume whatever you were doing.  oh, yes.  i love you!

retired educator, blind bat

Monday, June 17, 2013

Hannah Prepares to Kick Cancer's Booty

A note from Hannah's mom was posted on Caringbridge today:

And so we begin the 3rd chapter in kicking Leukemia's tail. Hannah was admitted last night and already had her anti-seizure meds to counteract the chemo. This morning started HEAVY chemo. Her immune system will be killed off over the next 10 days. BMT [bone marrow transplant] infusion will be on the 26th. We are all ready to get this behind us! 
Go, Hannah, Go!

Sunday, June 16, 2013

Thought I Would Try CNN For White Noise

I sometimes have to turn the television on for distraction in the wee hours -- usually choosing, and this is just between us, I Love Lucy -- but this morning, I decided to give CNN a try.  Normally, my CNN viewing is limited to waiting rooms.  I guess office managers consider the news network to be neutral in content and therefore peace will reign in the huge areas where sick and hurting people gather for up to hours at a time, citizens of natural good will.


I don't watch television any longer as I cannot even distinguish faces, so I try to pick something relatively easy to follow by listening alone.  It turns out that includes pretty much everything.

But I had to change the channel when I heard this, from the mouth of a very fuzzy headed Republican who looked like Paul Ryan but, really, who knows?  The hot discussion was the likelihood of the latest gun control legislation making it to the floor, passing, or continuing its current use of solving the sequestration crisis of shortage of toilet tissue. The release of Joe Biden's report was being hailed as the undue influence at work this go-'round.  Fuzzy-headed guy, though, reached deep down so as to give the country, his employer, an explanation for the likelihood of failure awaiting any killing machine measures:

"Well, listen.  We have big legislation coming up on immigration and we don't want to get these things confused."

So I turned off the Idiot Box and turned on the oh-so-much-better laptop.  This headline caught my eye:
53 Senators Blew Off Briefing On Secret NSA Program Because They Wanted to Go Home
Fifty three senators skipped Friday’s briefing on the secret NSA data mining program, because they wanted to go home early for Father’s Day weekend.
According to The Hill:
The Senate held its last vote of the week a little after noon on Thursday, and many lawmakers were eager to take advantage of the short day and head back to their home states for Father’s Day weekend. 
Only 47 of 100 senators attended the 2:30 briefing, leaving dozens of chairs in the secure meeting room empty as Clapper, Alexander and other senior officials told lawmakers about classified programs to monitor millions of telephone calls and broad swaths of Internet activity. The room on the lower level of the Capitol Visitor Center is large enough to fit the entire Senate membership, according to a Senate aide.
The problem is that these same senators who skipped the briefing are in charge of overseeing the program. When congress doesn’t take its oversight duties seriously, or even worse, abusing their powers to chase empty scandals, the freedoms of every American are at risk.
It doesn’t matter how you feel about the Patriot Act and surveillance programs. This is about 53 members of the Senate who refused to stay at work, and do their jobs.
The problem of members not attending briefings is a rampant epidemic. Members of congress constantly blow off important briefings, and instead rely on special interest groups to tell them how to vote. This is how the NRA was able to stop wildly popular background checks legislation. Some members of congress vote how they are told to, because they fear that special interest groups will work against them in the next reelection campaign if they don’t. 
The next time a member of congress claims that they didn’t know about something, the first question asked should be, “Did you attend the briefing?” The odds are pretty good that they didn’t.

Finally, explanations for the massive amount of congressional non-progress that I can understand!