Showing posts with label stage 4 cancer. Show all posts
Showing posts with label stage 4 cancer. Show all posts

Sunday, November 11, 2012

Looking For A Way To Make A Difference?




I can tell that my repeated requests for you, Dear Readers, to donate to the FundRazr campaign on behalf of my friend Joyce's dying husband and her essentially destitute family have apparently stirred you to the heights of apathy.... I have my sneaky means of finding these things out, such as how the total amount of money raised to help them stay flush in food, basic shelter, medicine, and gasoline hasn't risen above $62 in months.

Sooooo.... if you are looking for a way to feel a little better about your skinflint selves, here you go:  FundRazr will feature her effort to get some money to make Billy's last days somewhat easier this Friday, in honor of Veterans' Day.


About FundRazr.com:  "With FundRazr you can raise money for Anything. Anywhere.
Disaster relief, personal fundraising, group, non-profit, organizations, schools, churches, family, politics, causes, health, animals, accident, charity, legal, memorials, education, veterans, arts, entrepreneurs, celebrations, events, community, travel, volunteer..."  Right now, of course, their home page features the myriad needs created by the monster storm Sandy.

Billy's page can be found HERE. It was set up by one of Joyce's daughter's Christina.  It could be better if that family had Mad Men skills, but they're kind of busy having hot dogs for dinner every night. Billy served his country for seven years, then was diagnosed with schizophrenia.  He's a smoker, and was diagnosed with end stage lung cancer just a few months ago.  There will be no "estate," only debt, and there won't be a windfall of veteran's benefits or life insurance.

So, please, help this family out.  All three grandkids have money-sucking illnesses -- from ADD, stunted growth, and migraines,  to Arnold–Chiari malformation and psychological issues from stress, poverty... and well, isn't that enough? Joyce also juggles the fiery combinaions that come with a family stricken with the genes of addiction, that lead to narcissistic compulsions to lie, steal, beg, and generally ignore the needs of this struggling sister, daughter, aunt, and mother.


So, Sweet Reader:  Advertise that FundRazr compaign for Billy and his family!  Tweet it!  Make yourself a sandwich-board sign and stroll about your town with insouciance and affected panache! By helping Billy die with dignity, you help Joyce carry on, you help those kids, you plant the notion of a seed that people really do care.

Confuse the public tomorrow -- they'll be expecting an inundation of blither and blather about Obama and Romney and the inevitable congressional battles -- bring them up short, reboot their tired brains with information about how to actually effect real, tangible change:  by helping Billy die with dignity, by chipping away at the medication co-pays and ambulance bills, by helping Joyce finish raising her sister's child, and serve as the stability in the lives of her own biological daughters' lives, and her 3 beloved grandsons.

You can pray all you like.  Send purple, pink, sea foam green balloons with sweet wishes inside up into the ether to choke birds and litter the landscape.  Grace the universe with good thoughts.  Make a vow to help the next needy person you trip over on the sidewalk.

You can also donate a dollar.  Use user-friendly PayPal.  Steal a buck from your Aunt Mathilda's purse. Tithe 10% of your casino winnings.  Go bet on the horses!  Swipe your kids' Halloween candy and sell it back to them, a dime a Skittle.

Billy has taken a turn for the worse, as of last night.  He cannot think clearly due to oxygen debt, despite them pumping in O2 as fast and as at high a rate as they can.  Though he's dropped an awful lot of weight, he's still a big guy, and I am very scared at the thought of him getting up and falling.  Joyce is there alone, with only her teen daughter in the apartment to help.

The nurse today heard no breath sounds on one side, and very labored, diminished ones on the other.  Billy rambles, thinking he is talking to his grandson Brian, for whom he has essentially served as father.

All the nurse could do was order some Ativan and advise Joyce that there would now be more bad days than good, and that he'd not likely make it to Christmas.  Personally, I think that was a pissy bit of not-much help, but I've never worked as a hospice nurse, never stood before a harried, harassed  stretched-to-the-max woman who is running on empty.

Okay, so your own life is tragic -- your own stories would chill my spine.  But you're smart, you're something of a techie, you're good-hearted.  Find a way to get people to go to the FundRazr page on Friday (or any day, duh!) and remind your own sweet crowd that we are all in this together.

You can even use the old "six degrees of separation" thing, though that's probably a bit tired.  I'll leave it up to you.

I would not want to be accused of being bossy or telling you your business.

P.S.  Somewhere in the margins of this blog is an invitation for you to leave traces of yourself here.  I've always meant it.  I know your stories are supremely important, your needs as soul-devouring as can be.  I've been blessed to share in some of your great moments of happiness.  It's sadly typical that I may never have thanked you -- for whatever trace you've left, even those silent electronic breezes that sometimes take my own breath away.

Sunday, November 4, 2012

Please Help Billy


Billy and his three grandsons




I was just getting ready for bed when I made my last Twitter rounds and saw this:



not what I wanted to hear, the nurse said Billy is on a decline, and there would be more of these episodes
having to get the nurse out here, Billy is not acting right, I cant get him in the bed.



CLICK HERE FOR BILLY'S FUNDRAZR   

I hope Joyce, Billy's wife, doesn't mind -- I'm stealing part of her blog posted on the Dr Phil website.  I think it helps us know him better, and if you've been on the fence about donating a few dollars to their FundRazr effort, maybe this will help you make up your mind and give a little.


I got Billy to eat just a little bit earlier which is better than not eating at all.

It is so hard to watch him each day knowing how much pain he has and not being able to do anything. Since August 13th when he came home from the hospital he has lost 30 more pounds so that is a total of 55 lbs.  He has had such a hard life already.  He has been abandoned by parents that should never have been parents (there were 4 kids one died of a drug overdose before I met Billy) when he was very small. Him and his brother apparently went to a foster home and orphanage (his other brother the one that passed on and his sister went to a foster home in Hickory) where his uncle found them and took them in, but from the stories I have been told Billy was alsway being thrown out due to his undiagnosed schizophrenia, so he has been homeless a lot, living on the streets and eating out of trashcans.  

He joined the Army the day he turned 18 and was stationed in Germany for a couple years. He was 22 when he was diagnosed with schizophrenia at Fort Bening, Georgia. He has been married once before to a woman that apparently was quite abusive to him. His sister said she was always calling him names and belittleing him and smacking him

One of the things I always got so mad at was him giving his money away, but his sister said he has done that all his life too. He would work (when he lived with his sister and before becoming disabled) and one time he heard this woman talking about needing money to feed her kids, he just got paid that day, cashed his check, kept a few dollars for himself and gave the rest to her. Libby said he was always like that, he would come home on payday and she would ask him about his check and he would say he gave it to someone that needed it more than he did.

Thought I would just share a little bit about him, he has his ways but for the most part he is really a good guy, always worried about everyone else, he still gives his money away although not as much. He has had a habit of giving everyone an allowence, he has to make sure Misty, Christina, Brian, Aric, Christopher and Shawna gets 10 to 20 dollars each,  every month. He even gave my brother money when he lived with us. I told him no wonder I couldnt get rid of anybody, he was paying them to live with us.  I dont fuss at him now for doing it, its his disability and as long as I can pay the bills he can give it away if he wants to.   There has been plenty of times we have had to borrow money (almost every month) the last week of the month to make it to payday and I would tell him that if he wouldnt give everything away we wouldnt have to do that, but he never listened, he would still give it away anyway.


Please donate what you are able -- Joyce cares not just for her husband, but really, she sees to the welfare of her mother, one of her daughters (disabled), her three (hyperactive!) grandsons, another daughter in her senior year of high school, and deals with a drug-addicted sister and brother who have an innate sense of when to strike for sympathy.  Then there are the twin daughters of the aforementioned sister, who are now also into drugs, and appear to have developed eating disorders.  

Their needs are great but I honestly believe you and I can help, as much as money can help, and prayers and intentions offered to the universe and God.

CLICK HERE TO GO TO BILLY'S FUNDRAZR PAGE.


Friday, September 28, 2012

More about Billy


Billy and his three grandsons

CLICK HERE FOR BILLY'S FUNDRAZR

I hope Joyce, Billy's wife, doesn't mind -- I'm stealing part of her blog posted on the Dr Phil website.  I think it helps us know him better, and if you've been on the fence about donating a few dollars to their FundRazr effort, maybe this will help you make up your mind and give a little.  HERE is the LINK.

And here is Joyce:


I got Billy to eat just a little bit earlier which is better than not eating at all.

It is so hard to watch him each day knowing how much pain he has and not being able to do anything. Since August 13th when he came home from the hospital he has lost 30 more pounds so that is a total of 55 lbs.  He has had such a hard life already.  He has been abandoned by parents that should never have been parents (there were 4 kids one died of a drug overdose before I met Billy) when he was very small. Him and his brother apparently went to a foster home and orphanage (his other brother the one that passed on and his sister went to a foster home in Hickory) where his uncle found them and took them in, but from the stories I have been told Billy was alsway being thrown out due to his undiagnosed schizophrenia, so he has been homeless a lot, living on the streets and eating out of trashcans.  

He joined the Army the day he turned 18 and was stationed in Germany for a couple years. He was 22 when he was diagnosed with schizophrenia at Fort Bening, Georgia. He has been married once before to a woman that apparently was quite abusive to him. His sister said she was always calling him names and belittleing him and smacking him

One of the things I always got so mad at was him giving his money away, but his sister said he has done that all his life too. He would work (when he lived with his sister and before becoming disabled) and one time he heard this woman talking about needing money to feed her kids, he just got paid that day, cashed his check, kept a few dollars for himself and gave the rest to her. Libby said he was always like that, he would come home on payday and she would ask him about his check and he would say he gave it to someone that needed it more than he did.

Thought I would just share a little bit about him, he has his ways but for the most part he is really a good guy, always worried about everyone else, he still gives his money away although not as much. He has had a habit of giving everyone an allowence, he has to make sure Misty, Christina, Brian, Aric, Christopher and Shawna gets 10 to 20 dollars each,  every month. He even gave my brother money when he lived with us. I told him no wonder I couldnt get rid of anybody, he was paying them to live with us.  I dont fuss at him now for doing it, its his disability and as long as I can pay the bills he can give it away if he wants to.   There has been plenty of times we have had to borrow money (almost every month) the last week of the month to make it to payday and I would tell him that if he wouldnt give everything away we wouldnt have to do that, but he never listened, he would still give it away anyway.

[....]

Not 100 percent sure but Roger (Billys brother) may pay for a cremation and then me pay him some of it back, but he hasnt really said for sure.  Its not what Billy wants or deserves as a veteran (to me he deserves the full military burial he should have as A veteran) but thats just how it has to be. Since the donation thing we started hasnt been going to well (not well at all in a month we have raised 63 dollars, only 12 from the online FundRazr) we have to do what we have to do even if it means the county coroner does something with the body.

UPDATE, FRIDAY, SEPTEMBER 21:
This morning, Billy finally agreed to go -- temporarily -- to the actual brick-and-mortar Hospice facility, so that they can get him stabilized on a good pain regimen, and get rid of some of the fluid plaguing him.  Also, one might make an argument for this being some timely respite for Joyce.  He will be returning home as soon as those goals are accomplished.  I've never met Billy, nor Joyce, for that matter.  She and I have played at different scenarios in our relationship -- mentor/mentee, online mutual supporters, online enemies, paranoid tag-teamers, and, finally, I think, cautious friends.

I can attest to the truth of her situation, and as someone who has been conned several times, you can put trust in that assessment.

But Billy... he's schizophrenic and I don't know what that means in any particular way.  He is becoming manipulative, emotionally, and my first reaction is, "Well, hell, the man is dying a hard death, after scrabbling through a hard life..." and other various expiations.  When Joyce was leaving to go home after they had settled him in his room at hospice, she started to close the door. Billy called out to leave it open, as he did not want to die with the door closed.

Oh... I understand Billy!  I am emotionally manipulative, calling out, and when someone risks their sanity by asking if they can help in any way?  "No, no, there's nothing anyone can do..."

Oh... I understand Billy!

Please donate what you are able -- Joyce cares not just for her husband, but really, she sees to the welfare of her mother, one of her daughters (disabled), her three (hyperactive!) grandsons, another daughter in her senior year of high school, and deals with a drug-addicted sister and brother who have an innate sense of when to strike for sympathy.  Then there are the twin daughters of the aforementioned sister, who are now also into drugs, and appear to have developed eating disorders.  

These are the kind of lives into which you'd like to deposit Mitt Romney for a long weekend, just to see what he might learn about his brothers and sisters.  Command, O Chief!

Their needs are great but I honestly believe you and I can help, as much as money can help, and prayers and intentions offered to the universe and God.

CLICK HERE TO GO TO BILLY'S FUNDRAZR PAGE.

Wednesday, September 5, 2012

billy

i don't do this often.  hmm.  in fact, i've never done this before.  which makes me question a lot about myself, but lets not go there right now -- one has the distinct impression, sometimes, reading this blog, that one is trapped in a clown car, going in circles.

an inspiring woman that i met on the interwebs has a husband dying of stage-4 lung cancer. his story is complicated, so is hers.  but you know how crisis-illnesses can crystallize things, how suddenly easy are priorities, after all?

they need money.

you know, in a way that mitt romney cannot even imagine.  given all evidence, mitt would tell her to take out a bank loan or to borrow what she needs from her mother.

people, they need money. christina, who has organized the FundRazr, is billy's stepdaughter.  if you have questions, click on her name and ask away, via facebook.

so, go HERE and give what you can.  for billy:

billy and a feline friend



from the Twitter account of @ann_joyce50