"This one was made by Holly Schank for hers and our friend Michelle De Leonard."
There's been a pleasant dearth of fresh CRPS/RSD research to report lately, and so it seems the right moment to announce that, as a disease entity, CRPS is now on the map.
Things that mark this arriviste take on things? A ribbon. A plastic bracelet. A few correspondingly sick celebrities. An annual black tie Silent Auction... and at least one Walkathon.
Check, check, check, check, and... check!
But most of all? Most of all, there has to be a quilt.
I have an Attitude about Awareness and the various ways of Raising Awareness. I experience roughly the same sensations that I associate with a plummeting blood sugar -- it's très hypoglycemic. It's kind of a reaction against the prevalent Political Correctness.
Let's just say that my favorite cause button depicts a crisp red AIDS awareness ribbon against a white background, with "Fuck the red ribbon / Find a cure" in bolded italics.
Okay, so in addition to a constitutional dislike of What's Expected, my wariness about all the Awareness flying around might -- might -- have something to do with laziness, and I ought to be ashamed.
The most excellent Doctor Roberta, who Suture[s] For A Living, is the obvious medical blogger to make the announcement, as her handiwork outside surgery is as beautiful as it is within. She is one of few doctor bloggers to address Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy: Here and here.
In her blog recently, she passed on details about the CRPS/RSD Awareness Quilt Project from its organization page over on Facebook:
Contribute a 12" x 12" patch to be added to the RSD/CRPS Awareness quilt. Make sure you keep what you want to show 1" away from the borders... This is for pain awareness. Help spread the word and make a square...if you need help participating please let us know....Mail all quilt panels to: RSD/CRPS Awareness Quilt P.O. Box 500915 Malabar, Fl. 32950-500915. Check out our links for information that can help you put your square together...everything from sewing tips to iron-on tranfers using your printer. If you have any questions please feel free to drop Troy Walker a message and I'll help you out if I can. Thank you very much for helping to spread awareness of Chronic Pain.
At last count, there were 137 panels documented by pictures on the Facebook page.
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